mattsneary
Sonny says "onward to Brad and Sara's rehearsal dinner!!" #Sonny #trustthebum #sunbum #mtjm #roadtrip #weddings #rehearsal #bestfriends #raysofsunshine #sunnydays #liveyourlife #bebiggerthanyourself
rehearsal - sonny - raysofsunshine - sunbum - weddings - roadtrip - mtjm - liveyourlife - bestfriends - bebiggerthanyourself - trustthebum - sunnydays -
trustthebum : Haha, safe travels Sonny. SB
_kybaby729 : I want a cool monkey
mattsneary : Www.trustthebum.com :) and its a gorilla :D but Sun Bum is AMAZING! Try some out! Come up to MI and we can go to beach and I'll let you see a lot of their stuff, towel, hat, football, and almost all their sunblock, cooling gel, and lip balm. Yup I got it all :D
_kybaby729 - laurene_de_oliveira - raacheyv - emilyy.sea -
instagram
mattsneary
Hold onto your hats ladies and gentleman... @mtjme is going to have a physical store/office fully functional! Please follow along as we build up an epic store/office! The online store is rockin! Go to www.mtjm.org and check out our gear! #mtjmestore #constructionsite #buyourproducts #cfawareness #mtjm #mtjme #liveyourlife #bebiggerthanyourself
constructionsite - mtjmestore - mtjm - liveyourlife - bebiggerthanyourself - buyourproducts - cfawareness - mtjme -
erinphillips8284 : "Physical store"??? When was this decided?
mattsneary : Haha its just our office. Instead of everything being in totes :)
karicarp28 - laurene_de_oliveira - asneary14 - ferg5212 -
instagram
hime_scissorhands
#mtjm #cysticfibrosistattoo #database #SaltyGirl
mtjm - saltygirl - cysticfibrosistattoo - database -
andrewoodleyjr : πŸ“± nice
ohsoawful - olivia_micka - cindy.dad - hannahmichelle1996 -
instagram
yogi_aims
You guys! I'm super stoked! Why? Because I blew the highest numbers for my PFT (lung function test) that I have in a long time. I'll be the first to say that numbers aren't everything. They aren't even the biggest thing. But they are a part of the bigger picture. My energy is back too! My lungs don't feel as great as my numbers reflect but they ARE feeling better and I know they will continue to improve. That being said, I'll be staying in the hospital over the weekend instead of going home today. I'm okay with that though. I can't rest when I'm at home, hell I can hardly rest in here haha πŸ˜‰ When I get out though...I'll be ready to crush mountains! #lifeisgood #stoked #cysticfibrosis #fucf #beyourownsuperhero #hospitallife #mtjm
fucf - hospitallife - mtjm - stoked - cysticfibrosis - beyourownsuperhero - lifeisgood -
cheers_and_screams : Wonderful news!πŸ˜ƒ
liz_ba03 : That is awesome. And btw I love your shirt. And you look amazing! @yogi_aims
tinybutmighty84 : WAHOO!! Congrats!! You rock girlie!! Glad to hear your feeling better, and breaking outta the slammer soon. Love it!!
jenny_livingston : LOVE this post!!
hippie_kohlburn : Yay! Such super good news all the way around! πŸ’—
briannelh : Amazing news!!!!! Congratulations!!! You're a warrior ❀️❀️
yogi_aims : Thank you for the love and support everybody!!! @cheers_and_screams @liz_ba03 @tinybutmighty84 @jenny_livingston @hippie_kohlburn @briannelh πŸ’—πŸ’—πŸ’—πŸ’•πŸ’•πŸ’•
yamahallicwife : Love this!!
audreyfulkerson - tinybutmighty84 - good_fiends - my_2_hearts -
instagram
jimba12
Ormond beach with pizza! @aschwarzman #ormondbeach #curecf #cfmeanscurefound #mtjm
mtjm - ormondbeach - curecf - cfmeanscurefound -
sophie_chlo - heywhitegirl321 - woodsk01 - 106andpark_r -
instagram
darlin.xo
Normal lungs vs CF lungs: As I've stated, I produce more mucus and much thicker mucus than a person without this disease. It mainly affects the lungs. The build up of mucus causes me to cough incessantly at times, which causes inflammation. Bacteria grows and causes pneumonia, which means a hospital stay for IV antibiotics. CF only gets worse with time. Breathing gets harder, getting enough oxygen gets harder, and respiratory failure usually results. Sinuses get blocked by mucus, leading to infection and causing fever, nasal drainage, and headaches. My lungs are permanently scarred, which is visible on x rays. Breathing is just tough some days. #cysticfibrosis #cf #awareness #cysticfibrosisawareness #cfawareness #may #awarenessmonth #65roses #justbreathe #saltygirls #spreadtheword #educateyourself #fucf #cfwarrior #cffighter #morethanjustme #MTJM #MTJMe
fucf - cysticfibrosis - may - spreadtheword - cf - 65roses - saltygirls - awarenessmonth - educateyourself - cysticfibrosisawareness - cfwarrior - mtjm - morethanjustme - justbreathe - cffighter - cfawareness - mtjme - awareness -
riahandcats : This makes me sad dude. That's horrible... I'm so sorry you have to go through this.
darlin.xo : C'est la vie. @riahandcats
riahandcats : Yea...
christinaclarke78 : It is tough sometimes. Agreed! But you gotta try and work with what you got ♥
defytobreathe - anxiety_management - chronicallyliving - jessicabeancoach -
instagram
cfdaddy
Been a good day with the kids #mtjm #curecf
mtjm - curecf -
saltymomma - cfmommy33 - bitty_love - amylabonski -
instagram
darlin.xo
I neglected the last 2 days with my posts. Oops. So here is today's. "You are so skinny, lucky" Weight gain/loss is greatly affected by Cystic Fibrosis. The build up of viscous mucus in our bodies can prevent key nutrients and fat from being absorbed. Enzymes created in the pancreas that digest fat, starch, and protein aren't properly passed into the intestines. As a result, those living with CF, should ingest more fat and calories and take oral enzymes for nutrition. Our metabolic rate is about 3x faster than someone without CF. *A doctor told me that* Luckily, I do not suffer harshly from weight gain. My weight is healthy and normal for me, however, many of cysters have a very hard time keeping weight on. Many of us weigh beneath 100lbs. It's a hard thing to deal with. When I get sick I drop weight easily and look like a bag of bones. My ass and boobs deplete. It's hard to get that back. Don't envy us that. You have no idea how it makes us feel. We'd rather be healthy than weigh 80-100lbs, because it's not attractive. #cysticfibrosis #cf #awareness #may #cysticfibrosisawareness #cfawareness #may #awarenessmonth #65roses #justbreathe #saltygirls #mtjm #morethanjustme #cysters #fucf #cfwarrior #spreadtheword #educateyourself #weight #enzymes
fucf - enzymes - cysticfibrosis - may - cf - weight - 65roses - saltygirls - awarenessmonth - educateyourself - cysticfibrosisawareness - cfwarrior - mtjm - morethanjustme - justbreathe - spreadtheword - cysters - cfawareness - awareness -
_emilyfi : I don't really think its fair for you to say whether someone's attractive or not based on their weight..
darlin.xo : I'm speaking from the perspective of someone with cf. And these girls would agree with me. I don't think it's attractive in a personal sense because I don't look the way I want to, and it's hard for me to do that. Just as it is for the girls who suffer deeper than I do. But perhaps I should have worded that a bit differently. @_emilyfi
kelseprincess - lexerzbaby - barefoot_fl_mama - avacc49 -
instagram
mattsneary
Just a little photo shoot for the mtjme store this afternoon. #mtjm #mtjme #mtjmegear #mtjmestore #awesomegear #liveyourlife #bebiggerthanyourself
mtjm - liveyourlife - awesomegear - bebiggerthanyourself - mtjmestore - mtjme - mtjmegear -
erinphillips8284 : Is that a Kilimanjaro PATCH?! Why don't I have this.
mattsneary : @erinphillips8284 they will be on the store today
erinphillips8284 : Go ahead and put one out for me...
emilyeuphoria : I want all the things
karicarp28 - asneary14 - samone95 - ko2204 -
instagram
marcstrawser
#withoutshoes Donate some Shoes To some Kids #mtjm
withoutshoes - mtjm -
jessiemtjme - sab_sandeen - erinphillips8284 - heythere_cassie -
instagram
darlin.xo
This is an old picture, obviously, but it's the only decent one I have with me using my nebulizer. A nebulizer is used to inhale medications. Cystic Fibrosis patients all have one. I use mine every day. There are different medications to take. Currently I am on a duo neb consisting of Albuterol and Ativan (Lorazepam). The albuterol opens my airways, and the ativan serves as a longer acting medicine to keeo my airways ooen and orevent them from aggitation. Arivan also releases GABA (gamma-aminobutyric acid), which is a brain chemical that is naturally calming. It is suppose to reduce anxiety amd relax the patient. I think ot does. Hypertonic Saline is another one. Itis pretty much salt water. It mobilizes and improves airway clearance. In English? It makes me cough a lot!! Pulmozyme is my antibiotic. It thins out the mucus, which makes it easier to expell through coughing. These should be done about 3 times a day. The albuterol as needed. Nebulized treatments are a pain in the ass, but that's my world. #cysticfibrosis #cf #awareness #may #awarenessmonth #cysticfibrosisawareness #cfawareness #65roses #justbreathe #saltygirls #nebulizer #breathingtreatment #breatheeasy #spreadtheword #educateyourself #MTJM #morethanjustme
cysticfibrosis - may - cf - 65roses - saltygirls - awarenessmonth - mtjm - educateyourself - cysticfibrosisawareness - breatheeasy - breathingtreatment - morethanjustme - nebulizer - justbreathe - spreadtheword - cfawareness - awareness -
meghanjoycemcarthur : Hyper saline, pulmizyme, tobramiacin, and cayston. My current nebulizer cocktail.
darlin.xo : Doc won't put me on Tobi because of the cost. @meghanjoycemcarthur
meghanjoycemcarthur : Well consider yourself lucky. It tastes like butt hole. Lol
heyyyyyitsleila : Agreed @meghanjoycemcarthur πŸ‘πŸ˜‚πŸ˜‚πŸ˜’
asthma_inspiration - austincitylemons - christinaclarke78 - brownmanproductions -
instagram
bringthehurst
So #cfrunner ..you know the kid with that one terminal lung disease? Comes in hot with the top 20 out of hundreds in the #ironmantri #ironkids one mile. My tears of joy turn to pain as I'm reminded of reality when I ask how it went and he tells me it went great until he got the pain in his right lung. It's what happens when he gets out of breath. He discribes it as "my lung explodes but only in one little spot". I'm not sharing this for sympathy or sorrow, during CF Awareness Month I'll share more of the life one with cf endures because that helps raise awareness. #fucf #mtjm #dogood #liveyourlife
fucf - ironkids - dogood - mtjm - liveyourlife - cfrunner - ironmantri -
erinphillips8284 : ROCK. STAR. πŸ’œ
justinlivinlife : πŸ™Œ
ericquinney : #stud
sleavitt57 : What an awesome young stud!
ariellecaputo : keep being you, ur awesome
l.b.ripper - hyperfightclub - english_with_rob - jrmygilgenmann -
instagram
teamgareth
May is Cystic Fibrosis Awareness Month! Wear your Team Gareth gear and tag it! Tomorrow we have Great Strides at 10am in Mayfaire, Wilmington. Help us find a cure and add tomorrow's for my boy. He is the whole reason I do what I do. #teamgarethfightcf #teamatoz #cff #cfri #cflife #cfmama #mtjm #addingtomorrows #curecf #Mayfaire #wilmington @teamatoz
mtjm - teamatoz - teamgarethfightcf - mayfaire - cflife - wilmington - cfmama - cfri - cff - curecf - addingtomorrows -
hopeforwarriors : Hey Warrior! ❀️ I would love to feature you on my page, by sharing your story and connecting you with other warriors fighting similar battles! If you're interested, please DM or kik (hopeforwarriors) me a photo (which will be watermarked for your protection), and a summary of your story. Fight on!
jenschweiz : Annie, are you selling these shirts?
teamgareth : @hopeforwarriors yes. Would love it!
teamgareth : @jenschweiz yes :-) 10$ each suggested donation. Proceeds go to team Gareth CFF
jenschweiz : Shall I send you a check? Or how do I order them? We are all about team Gareth!
teamgareth : @jenschweiz you can do PayPal. The email is casunshine77@gmail.com.
friends_prod - girlspowerandfitness - trippledad - nanaheaven -
instagram
bringthehurst
#2 makin it happen. #cfrunner quickest on the time... #fucf #mtjm
fucf - cfrunner - 2 - mtjm -
striptaxidermy - nicholelaree - spnrallen - cleo6301 -
instagram
caymenlover
Can't wait to go back next year! #mtjm #daytonabeach
mtjm - daytonabeach -
jennashe2014 - laurrand - cfchef - cynthia_lyn -
instagram
bringthehurst
Pig is awake and not up to his ears in work. Ready to party with AM classes. #mtjm #hateproject #dogood #crossfit that makes for one happy pig.
mtjm - dogood - hateproject - crossfit -
joshua_athleticedge : awesome πŸ’ͺ
cfmommindy - joshua_athleticedge - barbells_and_ponytails - ginap17 -
instagram
cassie_1506
More from the #mtjm . our team! ♥ #mtjm5k2015
mtjm - mtjm5k2015 -
midn1ght0ker - limaleems - reefertech907 - rosesaunders0811 -
instagram
barefoot_fl_mama
This chick. #sisters #seestur #DaytonaBeach #EastCoast #florida #AtlanticOcean #Daytona #floridadays #floridabeach #beachlife #sisterlove #mtjm #sandandsaltwater #floridagirls
floridabeach - floridadays - daytonabeach - daytona - eastcoast - atlanticocean - florida - seestur - floridagirls - mtjm - sandandsaltwater - sisters - beachlife - sisterlove -
kyliecole : You'd love @poolsidefm's account :)
eleniberi - northflaboy - day_dreamer1985 - whatchsdotcom -
instagram
barefoot_fl_mama
One of my #favorite people in the world, my #sister! #seestur #sisterlove #AtlanticOcean #DaytonaBeach #florida #mtjm #cysticfibrosisawareness #amazingview #EastCoast #floridagirls
floridagirls - sister - daytonabeach - amazingview - eastcoast - cysticfibrosisawareness - florida - atlanticocean - favorite - seestur - mtjm - sisterlove -
brittany_marie_smith - djbigcrunk - darlin.xo - day_dreamer1985 -
instagram
catherinemcg27
So great to see the cysters and fibros come together for the MTJM 5k for cystic fibrosis this weekend! True warriors! #mtjm #morethanjustmiles #mtjm5k2015
mtjm - morethanjustmiles - mtjm5k2015 -
_raaach_h : Do they all have cf ?
catherinemcg27 : Yes, I don't know if they are all in this photo but Tommy Danger said there were a total of 49 at the event. Pretty cool! I'm hoping that my 24 year old son will go with me next year. @_raaach_h
karicarp28 - ewanleeds - portrayinghope - ericoare -
instagram
darlin.xo
You could say I'm a dork. You could say I get really excited. And you could even say it was a fucking dream come true. All of that is completely accurate. #Daytona #daytonabound #daytonabeach #saltygirls #saltygirlstakedaytona #eastcoast #cysticfibrosis #cf #morethanjustme #MTJM #awareness #cysticfibrosisawareness
daytonabeach - daytonabound - cysticfibrosis - morethanjustme - saltygirlstakedaytona - cf - mtjm - cysticfibrosisawareness - eastcoast - saltygirls - awareness - daytona -
chevroletbabe_abrianamarie : That's so cool!
thebikersnetwork : Such a nice bike, come and tell us about it at www.bikersnetwork.net !
chevroletbabe_abrianamarie - brownguy69 - kelseprincess - liquidambition -
instagram
darlin.xo
My #cysters and #fibros can drink!! #club #alcohol #drinking #drink #drank #drunk #rum #Daytona #daytonabound #daytonabeach #saltygirls #saltygirlstakedaytona #eastcoast #cysticfibrosis #cf #morethanjustme #MTJM #awareness #cysticfibrosisawareness
daytonabound - cysticfibrosis - drunk - club - drink - cf - saltygirls - drinking - alcohol - daytonabeach - daytona - eastcoast - cysticfibrosisawareness - saltygirlstakedaytona - rum - mtjm - morethanjustme - drank - cysters - awareness - fibros -
brownguy69 - centerforautism - cynthia_lyn - lmslovepink -
instagram
darlin.xo
So much salt under one roof! #Daytona #daytonabound #daytonabeach #saltygirls #saltygirlstakedaytona #eastcoast #cysticfibrosis #cf #morethanjustme #MTJM #awareness #cysticfibrosisawareness #cysters
daytonabeach - daytonabound - cysticfibrosis - morethanjustme - saltygirlstakedaytona - cf - mtjm - cysticfibrosisawareness - eastcoast - saltygirls - cysters - awareness - daytona -
chevroletbabe_abrianamarie - rosieraabe - gretchenboerner - duffeykatherine -
instagram
darlin.xo
The greatest people I've ever met. #Daytona #daytonabound #daytonabeach #saltygirls #saltygirlstakedaytona #eastcoast #cysticfibrosis #cf #morethanjustme #MTJM #awareness #cysticfibrosisawareness
daytonabeach - daytonabound - cysticfibrosis - morethanjustme - saltygirlstakedaytona - cf - mtjm - cysticfibrosisawareness - eastcoast - saltygirls - awareness - daytona -
riahandcats : It really is so awesome what he and all of you are doing for eachother. Got quite the community!
riahandcats : πŸ’ͺπŸ’‹
darlin.xo : Thanks, Mariah. @riahandcats
sloppysecondsbitch - rachelmagsby - yrock85 - brownguy69 -
instagram
darlin.xo
My #fibro from another continent!! #Australia #Aussie #Daytona #daytonabound #daytonabeach #saltygirls #saltygirlstakedaytona #eastcoast #cysticfibrosis #cf #morethanjustme #MTJM #awareness #cysticfibrosisawareness
daytonabound - australia - daytona - cysticfibrosis - morethanjustme - saltygirlstakedaytona - fibro - cf - mtjm - saltygirls - daytonabeach - eastcoast - aussie - awareness - cysticfibrosisawareness -
justinlivinlife - welzoo - cfshealth - barefoot_fl_mama -
instagram
darlin.xo
My cyster and fibro from down under!! #Daytona #daytonabound #daytonabeach #saltygirls #saltygirlstakedaytona #eastcoast #cysticfibrosis #cf #morethanjustme #MTJM #awareness #cysticfibrosisawareness
daytonabeach - daytonabound - cysticfibrosis - morethanjustme - saltygirlstakedaytona - cf - mtjm - cysticfibrosisawareness - eastcoast - saltygirls - awareness - daytona -
tiffanietillert - duffeykatherine - brownguy69 - rachelmagsby -
instagram
darlin.xo
First time meeting my soul cyster! #Daytona #daytonabound #daytonabeach #saltygirls #saltygirlstakedaytona #eastcoast #cysticfibrosis #cf #morethanjustme #MTJM #awareness #cysticfibrosisawareness
daytonabeach - daytonabound - cysticfibrosis - morethanjustme - saltygirlstakedaytona - cf - mtjm - cysticfibrosisawareness - eastcoast - saltygirls - awareness - daytona -
rie3465 - brownguy69 - yrock85 - justinlivinlife -
instagram
darlin.xo
#Daytona #daytonabound #daytonabeach #saltygirls #saltygirlstakedaytona #eastcoast #cysticfibrosis #cf #morethanjustme #MTJM #awareness #cysticfibrosisawareness
daytonabeach - daytonabound - cysticfibrosis - morethanjustme - saltygirlstakedaytona - cf - mtjm - cysticfibrosisawareness - eastcoast - saltygirls - awareness - daytona -
tiffanietillert - gretchenboerner - rosieraabe - duffeykatherine -
instagram
darlin.xo
#Daytona #daytonabound #daytonabeach #saltygirls #saltygirlstakedaytona #eastcoast #cysticfibrosis #cf #morethanjustme #MTJM #awareness #cysticfibrosisawareness
daytonabeach - daytonabound - cysticfibrosis - morethanjustme - saltygirlstakedaytona - cf - mtjm - cysticfibrosisawareness - eastcoast - saltygirls - awareness - daytona -
rie3465 - tiffanietillert - gretchenboerner - duffeykatherine -
instagram
darlin.xo
Until next time, my string, beautiful, salty #cysters #Daytona #daytonabound #daytonabeach #saltygirls #saltygirlstakedaytona #eastcoast #cysticfibrosis #cf #morethanjustme #MTJM #awareness #cysticfibrosisawareness
daytonabound - daytonabeach - daytona - cysticfibrosis - morethanjustme - saltygirlstakedaytona - cf - mtjm - saltygirls - eastcoast - cysters - awareness - cysticfibrosisawareness -
rie3465 - rachelmagsby - duffeykatherine - lmslovepink -
instagram
darlin.xo
Saying goodbye. I miss all of you already. I love you all So much. #Daytona #daytonabound #daytonabeach #saltygirls #saltygirlstakedaytona #eastcoast #cysticfibrosis #cf #morethanjustme #MTJM #awareness #cysticfibrosisawareness
daytonabeach - daytonabound - cysticfibrosis - morethanjustme - saltygirlstakedaytona - cf - mtjm - cysticfibrosisawareness - eastcoast - saltygirls - awareness - daytona -
rie3465 - tiffanietillert - rachelmagsby - duffeykatherine -
instagram
darlin.xo
Kisses. Salty Girls Taste Better. Lol!! #cyster #Daytona #daytonabound #daytonabeach #saltygirls #saltygirlstakedaytona #eastcoast #cysticfibrosis #cf #morethanjustme #MTJM #awareness #cysticfibrosisawareness
cyster - daytonabeach - daytona - cysticfibrosis - morethanjustme - saltygirlstakedaytona - daytonabound - cf - mtjm - cysticfibrosisawareness - eastcoast - saltygirls - awareness -
kissobesitygoodbye - tiffanietillert - gretchenboerner - duffeykatherine -
instagram
darlin.xo
I love this Salty Girl!!! #cyster #Daytona #daytonabound #daytonabeach #saltygirls #saltygirlstakedaytona #eastcoast #cysticfibrosis #cf #morethanjustme #MTJM #awareness #cysticfibrosisawareness
cyster - daytonabeach - daytona - cysticfibrosis - morethanjustme - saltygirlstakedaytona - daytonabound - cf - mtjm - cysticfibrosisawareness - eastcoast - saltygirls - awareness -
kissobesitygoodbye - brownguy69 - duffeykatherine - rie3465 -
instagram
Iconosquare feedback