#hearttransplant #lungtransplant #t1d #diabetic music #musicalinstrument #flute #piccolo #clarinet #bassoon #trumpet I really miss playing my wind instruments. I can't wait till the tests come back because I know it's not them that got me sick. Because, I've been playing them for a long time before my eosinophilia pneumonia. It's so hard it's like giving up giving up your phone! 💚💙 I have commotions tomorrow. And have to record auditions for interlochen. Please wish me luck. 🙏 cello solo, harp solo, and trio. 🎼🎻🎵
t1d - lungtransplant - musicalinstrument - bassoon - piccolo - diabetic - flute - hearttransplant - clarinet - trumpet -
scolistrong_ : That's so Pretty. Alex I know form the bottom of my heart your get a rating of over 1000 on your solo and trio. Don't stress your self out. I know you got this in you.
muhammaddwikusyuliqan - blasiian2x - boxsidethinker - katedebetaz -
So I uploaded my transplant vlog to my regular channel, YouTube.com/NoelCFvlogs in order to save some of the confusion people have been having about accessing the video! Thank you everyone for the support and love I've been receiving since the new post! I can't believe some of the emails I've received already. I really hope it's helpful and gives hope to my fellow cf'ers! http://youtu.be/pczIhFFVZ9Q #cysticfibrosis #cyster #vlog #vlogging #lungtransplant #doublelungtransplant #cf #cfvlogs #cfaware #cfawareness #fibro #justbreathe #65roses #dukeuniversity #dukehospital #65redroses #BreatheEasy #health #lungs #mylife
cyster - dukehospital - lungs - lungtransplant - cfaware - cf - 65roses - mylife - cfvlogs - 65redroses - cfawareness - cysticfibrosis - doublelungtransplant - fibro - vlog - breatheeasy - health - justbreathe - vlogging - dukeuniversity -
allison_holt - christhrash15 - kk_nicole_s - t_hatton_31 -
After getting all good news at Roo's appointments we decided to visit our old neighborhood. We love Lawerenceville and now we are headed out to eat with some friends. We are so very blessed. #hesmyfavorite #hearttransplant #lungtransplant #donatelife
ahealingplace - roohere - gr4ssh0pp3r -
The lungs on the right are my old lungs back in Feb 2014 and the lungs are the left are my new lungs today! Docs say I'm doing great!😁😙💨 #lungtransplant #pulmonaryfibrosis #makeeverybreathcount 💙💚
totallylovelife : Interesting spin on #tbt
onery_j - princess_leeuh - skidget10 - therayway93 -
So I finally uploaded a vlog about my life leading up to transplant. I really hope people find it informative! It's not on my old vlog channel, NoelCFvlogs, it is on my channel that'll be used instead, NoelYourBelle! I've gotten messages from people saying my old videos help them a lot and I hope this is the same! Thank y'all for being so sweet and supportive. Seriously. y'all don't even know! 😘💜🌹 #cysticfibrosis #cyster #cf #lungtransplant #doublelungtransplant #justbreathe #breatheeasy #fibro #pulmonarysystem #pulmonarydisease #livehappy #65roses #cfvlogs
cyster - lungtransplant - cysticfibrosis - pulmonarysystem - doublelungtransplant - fibro - cf - 65roses - pulmonarydisease - livehappy - justbreathe - cfvlogs - breatheeasy -
k_weatherly - jenna__raee - emilyanneburns - _hellokate_ -
Happy 11 months LUNGAVERSARY to moi!! A big whopping shout out to my amazing donor and their family. Without your generous decision I wouldn't be here today. You have given me life and your loved one lives on. Muah!! #lungaversary #lungtransplant #lungtransplantlife #lungtransplantrecipient #doublelung @organdonation #11months
lungtransplantrecipient - 11months - lungtransplantlife - doublelung - lungtransplant - lungaversary -
lace87 - monikashoogz - adam8197 - niconicosou -
_jnaynay7714 - ballin4christ21 - kellynelson84 - aleeya_marie -
tashndawsmom : Lookin like a Diva💁❤️love the look!!!
whatmakesyoubowtiful : 😎😊💜
care.0402 : I love the sunglasses
prosers : Hey, @anangelfish! Happy New Year!
anangelfish : Thanks everybody!
anabanana_22 - brailey_bender1 - silvia_lico - micheleglenn -
#hearttransplant #lungtransplant #dog #puppy #havanese #music I slept well last night. But this morning I had a real bad coughing spell and through up. I'm staying home to relax💙💚
maggiedog12 : 🙏🙏
patsyann23 : Perfect song!! Hope you're feeling better!
maskedyaiba : Glad you're resting up!! Please continue to get well!! 🙏🙏🙏🙏🙏💙💚💙💚💙💚💙
sharipurple : 💜Happy u slept well last night. Hope u feel better.💙💚🙏
scolistrong_ : I'm siting at school wishing I stayed home today I regret it now
elena_knits : Hope you're feeling better by now
whts.nxt - mariehigh520 - pranp75 - elena_knits -
Trust your journey, in time everything will make perfect sense. ❤️ #john137 #staystrong #keepfighting #bebrave #spoonie #scleroderma #pulmonaryfibrosis #lifeonthetransplantlist #DoubleLungTransplant-waiting #AutoimmuneDisease #ChronicIllness
crestsyndrome - pulmonaryfibrosis - keepfighting - spoonie - invisibleillness - staystrong - chronicillness - scleroderma - lungtransplant - autoimmunedisease - systemicsclerosis - lungdisease - john137 - interstitiallungdisease - bebrave - lifeonthetransplantlist - doublelungtransplant -
jereleneevonne : I sure hope so. Many many days that is really hard to see. Thank you for the inspiration and love...kinda been needing itl praying for you lovely lady 💞💜💞💜
jojoegaray : @jereleneevonne yes, some days are pretty tough but we will get through, I just know it!!🙏 Thx so much for your kind words and sweet prayers. Sending hugs. Praying for you always!😘💛
74_palm : Glad they do!! And love following ur journey sweetie!😍😘🙏 your a true inspo.for me and God bless yiu🙏💗
74_palm : @jojoegaray ^^^^
jereleneevonne : 💜Thank you!! 💞😘💜 @jojoegaray
rdbuttrfly : Yes it will. Amen 🙏 💙 💚
rozuna63 : You are always on my mind, in my thoughts and in my prayers sunshine 🙏
jojoegaray : @rozuna63 I appreciate you so very much, thank you for all you caring support and prayers!💛
crohnie_for_life - lilismami - isavel320 - crickaway -
Post Transplant 6 Minute Walk=684 feet with no oxygen or stopping!!! 🚶😄 #proud #majormilestone #lungtransplant #recovery
2muchtumi - andretogersen -
#hearttransplant #lungtransplant #doctor When it rains look for rainbows, when its dark look for stars.' Keep holding on, look for the positives in life even when its raining inside your mind. I went to get a n injection in my back to help with my pain. It seems to have helped a little. When I go to Pittsburgh they are going to a real nerve block instead of just an injection in the scar. They also adjusted my anxiety medicine. I still feel like I'm going to have a hard time sleeping. Oh well 😕💚💙
smithieswimmer : Oh ok I understand now! I don't really know you but I am very proud for you not giving up! Even tho you have been through so much and you keep going strong! There need to be more people out there like you!
notmyheartandlungs : Thank you! @smithieswimmer
sharipurple : 💜I'm so sorry for all u have to go thru. I'm proud of u for always looking for the rainbows & the stars & being positive. U know you're an inspiration for everyone that knows u. Stay tough💪💚💙
smithieswimmer : Your very welcome! I'm here if you ever need me
sunni.is.bae : Tbh: you are one of the strongest people I've ever seen, you keep pushing and you always keep your head up and keep faith, you are an angel #ily #keepyourheadup
notmyheartandlungs : Thank you! @sunni.is.bae
sunni.is.bae : You are welcomee!
maskedyaiba : Keep smiling love!! Your rainbow is closer than you know!! 💙💚💙💚💙💚💙
macbaby5 - sheilagigits - pranp75 - donyamojaveri -
My Dad finally waking up after his double lung transplant. What a stud he is. The sheer magnitude of this operation still has me bewildered. #doublelungtransplant #lungtransplant #transplant #organdonor #miracle
swankonline : What!?? Holy cow. He is one tough cookie! Why did they have to replace his lungs? What was going on??
swankonline : Sorry forgot I was logged in to my business acct. @groovingupslowly
sweetns58 : Pulmonary Fibrosis had destroyed both lungs. He's been sick since 2006, had a real turn for the worse last June, just got on the transplant list Dec. 14.
phatoronto : Wow. He was transplanted fast. Lucky one! Best wishes.
groovingupslowly : @phatoronto thank you and yes he was transplanted quickly. He is doing very well so far. We are so happy and hopeful❤️
luvshoesgirl - mandakate516 - teamghbitches - bowfishingbirdy -
Bout to be taken back for my 6 month bronch. Returning to my life and everything I've been wanting all rides on this surgery. Hoping I can return home to my friends and family, soon!! #cysticfibrosis #lungtransplant #donatelife #justbreathe
jbug1128 : @noelmybelle praying for you cyster! I have followed you for a while bc this past year has been the start of my own transplant journey. You have inspired me in many ways...stay positive bc everything will go great! God has this!😊💜😘
erincain23 : Praying!!!! Love you!!! 💜💜💜
_mirandachatham_ : Goodluck!:)
sweet_and_salty65 : Good luck Cyster!! 🌹💜
beboptime : You got this!
samrawiththecamera : Praying for you @noelmybelle !
chelseaaamcauliff - charliedeaton123 - kellieraesulli - holytrinity3 -
notmyheartandlungs - jasontiesman - jenny_paz - dogsfordonation -
#hearttransplant #heart #lungtransplant #lung #heartlungtransplant #eosinophils #prednisone #prednisoneproblens #bloodwork Yet! My eosinophils are at 0%. I really hip my doctors lower my prednisone. It's. Ben causing so many side effects. 😩 but, they probably won't change bit till I see my Pittsburgh doctors. I'm seeing my Psychiatrist tomorrow to change some of my meds. 💙💚
heart - heartlungtransplant - prednisone - lungtransplant - eosinophils - hearttransplant - lung - bloodwork - prednisoneproblens -
rosamundisch : Get well soon 😊 x
elliewheels : Good luck! I hope you figure something out!💜
courts.journey : Keep fighting and don't lose hope!
_butter_chloe : U will get better ❤️ Ik it 💛💗
juliaaajonesss : they switched me from prednisone to hydrocortisone, it's a lot better and it doesn't swell up your face and has a lot less side affects. you should see if u can switch. good luck!
rugrat_mark : Awesome Alex! Knew it'd be 0% this time. Making progress ☺
maskedyaiba : 🙌🙌🙌🙌🙌🙌 💙💚💙💚💙💚💙
journeyappstore : Hi there. We are creating something very special & would love you to take part in it. Please look at my last post & see what were doing.
harrys153 - taylor_l_reig - jessicapictures14 - maskedyaiba -
And here is another #CFawarenessday post. I hope everyone can learn something from mine and so many others' stories. #donatelife #cysticfibrosis #lungtransplant #justbreathe 💜🌹
alwaysalex_ : Love you 💜
joemeggithink : 💜💜💜
andretogersen : Changed lungs last wednesday. Feels great!
mattlepp : You are amazing
donyamojaveri : Whats the problem for you?
chelseaaamcauliff - sophiamalena - _hannah_nicole_story - mickiboo22 -
Today is #CFawarenessday and here is a little of 2014 that I'd like to share in honor of spreading awareness. These pictures span over about 6 months. Despite how rough these pictures look, I consider myself SO blessed to have overcome what I have. I'm so proud of all of my cf friends who continue to fight and beat this. I've lost many loved ones, but I haven't lost hope that we are getting closer and closer to a cure. Transplants aren't guaranteed to save you, but they certainly saved me and I'm forever grateful to my donor and to my future donor if there comes a time when I need another one. I feel it's my life's work to spread awareness of cystic fibrosis as well as organ donning. If you are able to give someone else life or another chance at it, why wouldn't you? Let's all try to make cf better and the world even a little bit more of a happier place. #cysticfibrosis #donatelife #cf #lungtransplant #transplant 💜🌹
journeyappstoremal : Hi There! :) We are creating something very special and it will help a lot of people out! Please check out my last post and help us by either liking the pic, tagging friends, or reposting it please!!
holytrinity3 : Amen
joemeggithink : 💜💜💜
jessica_lucy17 - sprincess20 - we_shall_burn_together94 - megsanjones -
#autoshow #carshow #detroit #fish #fishtank #aquarium #car #fishbones #saganaki #hearttransplant #lungtransplant #bloodwork We went to the auto show for a little yesterday and then we went out to eat. I got blood work today I'm hopeful for 0% eosinophils and a good prograf level! 🙏💙💚
saganaki - fishbones - autoshow - car - fish - lungtransplant - detroit - aquarium - carshow - bloodwork - hearttransplant - fishtank -
sharipurple : 💜Hoping for a 0% for u too🙏
rugrat_mark : I know it'll go well Alex! @notmyheartandlungs
manicarr65 : Praying for you...
msshawnie : Praying for you
elizabethbuslepp_ : who do you have for economics?
elizabethbuslepp_ - banana.split.22 - christyan_gonzales - _fdennin17 -
Feel like shit look like shit. #thatshowitgoes#whenyourenearlydead#andyourownbfdoestwanttoseeyou#butfuckit#imbetteroffalone#feelinghopless#cysticfibrosis#cf#lungs#lungtransplant#doublelungtransplant#rejection#uhhh#fml#maybe#idkwhatelsetosay
uhhh - lungs - lungtransplant - cf - butfuckit - feelinghopless - thatshowitgoes - imbetteroffalone - rejection - cysticfibrosis - maybe - doublelungtransplant - andyourownbfdoestwanttoseeyou - fml - idkwhatelsetosay - whenyourenearlydead -
netteffinstar : Hugs love
gotnicole93 : Dont waste your time with him your better than that :)
callmepan : I'm just mad cuz I'm lonely he isn't thattt bad lol
seydoo001 - thenewboydahlia - oakraza - netteffinstar -
Rocking the Stanford today. 82 degrees today in LA. 💪📼🌅🌞 #fitness #gym #stanford #losangeles #swole #fitfam #exercise #tank #oxygentank #cysticfibrosis #lungtransplant #organdonation
losangeles - tank - fitfam - cysticfibrosis - stanford - swole - gym - lungtransplant - fitness - organdonation - oxygentank - exercise -
remuco : you're the best do not forget💪cheer up...
marshmellowterrorist : GET LEGS, WALDO. You got this!
shiva.aliabadi - marykgetz - nymphtress - chelsie_beauty -
#hearttransplant #lungtransplant #t1d #diabetic #type1diabetic You may think of it as a punishments. but it's really a blessing that was meant to be!💙💚
scolistrong_ : Needle?? I be in the next state before you can get one of those near me and I'm scared of spiders as well 😂
sharipurple : 💜U certainly are a Blessing that's for sure.
maggiedog12 : Miracles-living proof u r! 🙏🙏
maskedyaiba : That's actually a cool shot!!
notmyheartandlungs : Thanks. I've gotten really good at doing different types of angles and focuses from the class I took last year. 💙💚 @maskedyaiba
maskedyaiba : Keep it up!! You're so very talented!! 🙌
iconclothes - banana.split.22 - frenchgirl1999 - elena_knits -
journeyappstoremal : Hello there! This is my new profile in order to support our cause and aim at spreading awareness for many disabilities, disorders, and more.. Can you please repost and check out my photo on my page to help us spread the cause?
chlo_92 : Cute 😍 @lizziemckay xo
carts_7 - kyyylo - kellydecharmoy - makenaahouston -
#hearttransplant #lungtransplant #dog #puppy #havanese #donatelife With being on such a high dose of steroids I have already gone up on my blood pressure medicine, my anxiety medication, and my insulin to carb ratio. 😕💚💙
notmyheartandlungs : It's okay as long as I'm getting better. @tmp525
elena_knits : That's terrible, I hope you can cope with it. Take care ♥
sharipurple : 💜I pray for u every day to heal & feel better & someday to not need all those meds🙏
notmyheartandlungs : Thanks @sharipurple
tripleheart : @notmyheartandlungs Why did they up your meds? Are u having a rejection? :(
notmyheartandlungs : No. A eosinophilia pneumonia @tripleheart
tripleheart : I just read up on it, had never even heard of that kind! I'm so sorry this is happening to you. I hope some day in the future, better solutions are available for people like us. I hope they cut down your prednisone as soon as possible & that things start to get better for you. You absolutely deserve it! ❤️ @notmyheartandlungs
animalslove365 : Lovely pic ! We give free shoutouts :) Check our accout description if interested.
jessrob3190 - thellf - walkswithwhiskey - dogsfordonation -
#baby #picture #babypictres #hearttransplant #lungtransplant #donor #donatelife #classical #music #Mozart I know I'm not a normal kid. I am so blessed. I mean I was a completely random kid adopted from Russia. And, if I weren't I would most likely not still be alive. I was on the transplant list from only 2.5 weeks. That should be a world record. Some people wait years. I know the medicines can be a pain mostly from the side effects. I never thought I would get diabetes. Every day I pray for my donor that he or she went to the best place.💜🙏 I will make this second life of his or hers the best and stick to my job. Which is staying healthy. I love my donor!💚💙 the picture in the top right is me and Cassie. I miss her so much😘 #weatenterrier #dog #puppy
picture - music - donatelife - classical - mozart - lungtransplant - dog - hearttransplant - babypictres - weatenterrier - baby - donor - puppy -
frkgraham : 💜
maskedyaiba : And this is why we love you soooo much!! 💙💚💙💚💙💚💙💚💙😘😘😘😘😘
naomi_zarzecki : 💙💚💙💚
tangerinetea : You're awesome.
tripleheart : You were meant to be ❤️👌
makhulow : that is so inspiring...@notmyheartandlungs
_queenamelia_ : you're incredible 💜
scoliosis_inspired : You are so strong and inspiring😊🙊 @notmyheartandlungs love ya!
the_waitinglist - jessicapictures14 - rapgame_joeyramone - macbaby5 -
Looking like a cartoon character with those anime dimples showing. At least I feel great today! Been a long week, but I'm looking at heading home soon!! #lungtransplant #justbreatge #cysticfibrosis #cyster
kalynstreet : Caden says when you get back we have to play a FULL game Clue! @noelmybelle
erincain23 : @noelmybelle I agree with @kalynstreet!! But Kalyn will just beat me again 😭
shellygirl95 : Your adorable! @noelmybelle
dal_palll : Why are you so cute
taylor_1188 : I like that shirt
jasmineenichole - taylor_1188 - cf_awareness - holytrinity3 -
#questions #hearttransplant #lungtransplant #fish #fishtank #aquarium If anyone had any questions just dm me. You can ask me anything it won't bother me! Thank you everyone for the support it's really helped me keep moving forward!💚💙
notmyheartandlungs : I had my heart and double lung transplant in May 2013. @sharipurple
notmyheartandlungs : Aw thank you so much!💙💚 @h.a.d.y.a
iamcaseyann : Okay. Well I hope you feel better honey! Love ya😘💙💚
maggiedog12 : 🙏🙏😘
jai_beats : Have you ever read Harry Potter?
notmyheartandlungs : Lol I've only read the first and last one. But I've seen all the movies and love them!💙💚 @jai_beats
jai_beats : @notmyheartandlungs awesome man!!
prncsdawn : @notmyheartandlungs the next #transplantgamesofamerica are being held in Cincinnati June 2016. That's not far from our area. I'm gonna probably enter something easy like bowling. Haha.
esullivan_12 - ricky_mo_48 - frenchgirl1999 - mkklenke -
wr3qtify - ceesawlove - whening - blessed_thatsme -
totallylovelife : Yay! Hey @eribodydancenow do you have blue in your hair?
eribodydancenow : @totallylovelife no I don't but it does look like it doesn't it?
mikayla_shelton : I think it looks really good!
eribodydancenow : @mikayla_shelton thanks girl 😘
shelikestogarden : I love your makup!!! What kind of mascara do you use :p
eribodydancenow : Thank you! I always use maybelline! @shelikestogarden
eribodydancenow : @shelikestogarden read that wrong, thought you said eye shadow 😜 but mascara is still maybelline and it's the colossal cat eye😸
nikkolestinson - bunty_mhk - mikayla_shelton - totallylovelife -
Another one of our awesome fashion houses @blairnadeaumillinery for our #bloom2015 fashion show. She makes the most amazing head pieces. We are so excited you are part of the show Blair! 👌💘💕 . . . . . #cysticfibrosis #curecf #organdonation #charity #fundraiser #caledon #toronto #canada #lungtransplant #fashion #style #indiedesigners photo by @magnoliastudios
toronto - canada - style - fashion - cysticfibrosis - bloom2015 - lungtransplant - caledon - fundraiser - curecf - indiedesigners - organdonation - charity -
blairnadeaumillinery : Xo! I am so excited to be involved!!!!
nicolelillyanne : 🙆 beauty! @blairnadeaumillinery
shopdoku : Nice!
magnoliastudios : 😍
nessa3220 - jpughh - shopdoku - annemcginn2 -
#hearttransplant #lungtransplant #puppy #dog #havanese #prednisone Last night was absolutely awful for me! I could not sleep for anything. Most likely from the high dose of prednisone. I was having terrible night sweats. My chest was really tight and it was difficult to breathe. I'm better now but I'm extremely exhausted. I have my math midterm and band. So today shouldn't be too bad. When I get home I'm definitely going to rest. Stay strong everyone💚💙
sharipurple : 💜U are a brave young man. After a night like u had & u still say today shouldn't be too bad. U have a great attitude. U make so many of us proud. Hope your day is good & u can rest after your midterms.💚💙
jessicapictures14 : So cute, love dis :)
hiphopinmysoul_ : Hope you feel better and good luck on your midterm I have mines today as well
notmyheartandlungs : Thanks good luck to you too! I'm really looking forward to hanging with you in Florida! @hiphopinmysoul_
butlergraphics : Good luck on the midterms. Sending good vibes that you get the rest you need. 👍
whatmakesyoubowtiful : 💜💜
maggiedog12 : 🙏🙏
elena_knits : I get insomnia and night sweats from prednisone too. That and an awful mood. Take care and I hope you can sleep tonight.
harrys153 - z_n_j_ - un.usuxl - elena_knits -
Gotta love all the lovely AIR in those lungs!! 💜❤️#lings #lungtransplant #doublelungtransplant #CysticFibrosis #cf #breatheeasy #MayoClinic #Mayo #organdonation #donorlove #xrays
lings - xrays - donorlove - cysticfibrosis - mayo - lungtransplant - mayoclinic - cf - breatheeasy - organdonation - doublelungtransplant -
nikhendrix : Truly beautiful! 💓
sophia_cf65_fit : I love you so much
kaitybrady : So fresh and so clean clean
notmyheartandlungs : Did you have a heart monitor on?
erintaylor8284 : No not in this xray @notmyheartandlungs. The thing you see on my chest on the right is my portacath. Used to get picc lines all the time but they ended up tearing up my veins until they couldn't get one in. So that surgically placed a permanent port in my chest that delivers meds directly to my heart (the tube you can faintly see down the middle). It can be accessed and deaccessed but it's always there :)
phatoronto : Nice black stuff! :)
mortonpen - pixiemom13 - kelley227 - jzolispeck -
They really did suck! Nothing will ever make me as happy as my new lungs do! #lungs #lungtransplant #transplant #cysticfibrosis #secondchance #life
journeyappstoremal : It would be amazing if you could help us out and please read our last post, it is very heart warming.
amandaworlds7 - heytherepaulaschef - greenlydia - shoshanalana -