deleshahayes
I refuse to just lay here & let my body deteriorate. Ive lost the weight before & i can do it again.
iih -
deleshahayes : #iih
deon_monroe -
instagram
ashraemills
Almost all the way healed up, still a spot or two that's gotta get there. Still have not regained the feeling back from my neck to my forehead. . . Hopefully that comes with time... And I have about an inch and a half of hair growth, not bad for only a little over a month out! #pseudotumorcerebri #pseudotumor #iih #intercranialhypertension #vpshunt #brainsurgerysurvivor #nohairdontcare #onestepatatime
brainsurgerysurvivor - pseudotumorcerebri - onestepatatime - nohairdontcare - intercranialhypertension - pseudotumor - vpshunt - iih -
xo_chante_xo - jxhnbxnd - paisleys_mommaa - boochi_ -
instagram
maruhli
Na hoffentlich nicht... #dixi #klo #witzig #nürnberg #fun #ekelich
witzig - hunger - dixi - nürnberg - fail - wc - ekelich - bayern - iih - nuernberg - nuremberg - bavaria - toitoi - franken - klo - fun -
brutzl0r : 😂 Der Slogan ist überdenkenswert 👍
maruhli : Hätten die mal jemanden gefragt, der sich damit auskennt ;)
maruhli : #nuernberg #bayern #bavaria #fail #iih #hunger #nuremberg #franken #wc #toitoi
lachenderesel - brutzl0r - hoorn2014 - yinmuc -
instagram
jenniferjfitness
#health #fitness #healthjourney #TagsForLikes #IIHjourney #fitnessmodel #fitnessaddict #fitspo #workout #bodybuilding #cardio #gym #train #training #photooftheday #health #healthy #instahealth #healthychoices #active #strong #motivation #instagood #determination #lifestyle #diet #getfit #cleaneating #IIHsucks #exercise #IIH
motivation - fitnessmodel - fitspo - iihjourney - gym - getfit - instahealth - cleaneating - active - healthychoices - determination - diet - bodybuilding - strong - cardio - iih - healthjourney - training - lifestyle - healthy - iihsucks - fitnessaddict - instagood - tagsforlikes - train - health - fitness - workout - exercise - photooftheday -
gabrielfresnedas : nicee :)
bridgeys_health_challenges : Awesome!
mhnf_lifestyle - bianca_fruitarian - michellealexa9 - stick2341 -
instagram
alessiamrv
<3 Francaa. #amoremio #sorella #amiche #semprenoi #sempreinsieme #bellabro' #lungomare #pontile #estate #divertimento #felicita ' #sorrisi #ladolcezza #love #sister #friends #girls #summer #happy #happiness #smile #smiles #sweet #sweetness #mine #iih
summer - love - sempreinsieme - estate - smiles - sweet - felicita - mine - amoremio - semprenoi - sorrisi - sorella - lungomare - friends - iih - happiness - amiche - sister - divertimento - girls - pontile - bellabro - smile - sweetness - ladolcezza - happy -
blue_oce : Hi Follow meB-)
francescapernali : #vitamia#bellissima#tiamo#♥️
dalila8_ - vita92 - mattia.morin - carlottafavitta -
instagram
slaymassivefakten
Wow, dat Video! Very thank you! Really authentic! Ehm naja wie im Video gesagt wird das mein Abonnenten Special und ich entschuldige mich für mein Lispeln (danke Zahnspange -.-'). ♥ Auf jeden Fall Danke an alle! ♥ . >INFO < Fakten kommen heute abend gegen 20 Uhr. Hater werden sofort geblockt! . . . #alte #schreckschraube #slaymassive #fakten #Wissenswertes #iih #bad #hair #day #alchemisten #fan #doge #dat #zahnspange #potato #hastag #blue #eyes #danke #abonnenten #special #300 ~♡
slaymassive - fakten - eyes - wissenswertes - 300 - schreckschraube - hair - fan - zahnspange - iih - special - blue - dat - potato - alte - doge - day - danke - bad - abonnenten - alchemisten - hastag -
josaris : Awwww gott bist du putzig 😊
onlinefakten : ✌
mr.__simon__ : Peace
maqqadamia : Habn wir gern gemacht 😅
linn214 : Süß :D Wir danken dir für die Fakten. :)
annechribra - pieter_punch - suppenhund_06_ - gerifaction -
instagram
_digio_
#Iih
iih -
liciuns - avetasara - rokrocco - anydallo__00 -
instagram
someone_who_really
Nominated by @heather_evans99 im nominating @mrcheeshead @andrewthepeen @elizabeth_offc #icebucketchallenge im donating $20 to the ALS foundation and $30 to IIH research #iih #als #fun #thatscream
icebucketchallenge - fun - thatscream - iih - als -
mrcheeshead : Good for
mrcheeshead : U
mrcheeshead : Now it's thundering outside how the fuck am I going to do this challenge
someone_who_really : Bath tub @mrcheeshead
mrcheeshead : No @someone_who_really
elizabeth_offc : Challenge accepted. Either today or tomorrow. Depends on hw.
someone_who_really : It has to be today @elizabeth_offc
elizabeth_offc : I CANT 😩
johnel58 - amanda_jones_3 - chrisduhfer_ - mattat2399 -
instagram
ellenevald
Painsomnia... Thank God for SATC ☺️#fibro #fibromyalgia #spoonie #spoonielife #intracranialhypertension #iih #ptc #butyoudontlooksick
fibromyalgia - spoonie - ptc - fibro - intracranialhypertension - spoonielife - iih - butyoudontlooksick -
ellinreps - simplysowers - counting_spoons - maria1707 -
instagram
ellenevald
My favourite fibro-buddy!❤️ #gustav #gingercat #fibro #fibromyalgia #spoonie #napalldaysleepallnightpartynever #catsofinstagram #iih #intracranialhypertension #ptc
gustav - catsofinstagram - fibromyalgia - spoonie - ptc - fibro - intracranialhypertension - gingercat - napalldaysleepallnightpartynever - iih -
futureenglishteacher93 - thegirlnamedman - fibrofree - counting_spoons -
instagram
kellster2
#imtoosexy #lol #oldladyglasses #eyes #dilation #youjealous #swag #superstyle
eyes - pseudotumorcerebri - neuroopthamologist - intracranialhypertension - retina - imtoosexy - blessed - visionloss - ih - lol - iih - dilation - refraction - papilledema - swag - eye - pressure - idiopathicintracranialhypertension - imlucky - superstyle - opthamologist - hope - youjealous - oldladyglasses - nerves - ptc - appreciation - awareness - opticnerve -
kellster2 : #neuroopthamologist #opthamologist #nerves #retina #visionloss #imlucky #iih #ih #ptc #eye #pressure #refraction #appreciation #idiopathicintracranialhypertension #intracranialhypertension #pseudotumorcerebri #awareness #hope no vision loss! Feeling very #blessed thus far in my journey with ptc.
kellster2 : #Papilledema #opticnerve
kimberly4072 : I need to find sunglasses that fit over my glasses
kellster2 : @kimberly4072 these are just thin plastic to use under my glasses. I just got my eyes dilated and pressure checked, etc. The sun&lights can damage them afterwards if these aren't worn for 2hrs. I need new clip-ons, too though
doutoraretina : Show!!!
kimberly4072 : Really I hate when they dilate them. Rr
londect8310 - theekruger - omar_dc - nymaura -
instagram
lizadonni
#truefruits #einfachugly #iih
einfachugly - truefruits - iih -
sveaschmidt - maria__xcyyx - alinka_m_alinka - lea_rahman -
instagram
eiykaresta
#headache #traditional #pain #iih #idiopathicintracranialhypertension #mokterkeluarasabigekmata #kafarah #Allahuakbar Soothe me very well with this traditional therapy "daun bunga raya".. Ins sha allah hopefully my headache relieve.no more stabbing pain in my head.cause my headache can last to 2 or 3 days..pity me cant take any medicine at the moment to ease my pain.. Paracetamol doesnt help at all.. NAY!😕
pain - mokterkeluarasabigekmata - idiopathicintracranialhypertension - allahuakbar - kafarah - traditional - iih - headache -
liyanahusaini88 - bambangrs - elizabethadrienne - qeishaqalilla -
instagram
elena_m123
#regram #nofilter #life #iih #chronicpain #battle This is what I live with everyday. I probably have 2-3 spoons every day and have to manage and function a normal life. It's difficult but I still cope. I just want people to remember when you fight chronic pain, yes you can become grumpy and yes you become tired. So I'm sorry but every day is a battle. I just have to fight.
regram - chronicpain - life - battle - nofilter - iih -
theeng4752 -
instagram
liasjourney
Getting a head start to my awareness . Friday makes three years since I was diagnosed with intracranial hypertension . I'm still here .. Still kicking .. Good and bad days . God is good no matter what .. Why me ? Why not me . #ih#iih#intracranialhypertension#ptc#headpain#brainpain#chronicillness#raredisease#anniversary#threeyears#standingstrong#suvivor#blue#green#nataliasangels#xoxo
raredisease - ptc - standingstrong - intracranialhypertension - ih - headpain - brainpain - threeyears - nataliasangels - chronicillness - iih - suvivor - blue - xoxo - anniversary - green -
stephticle65 : Beautiful nails x
ladieruiz - stephticle65 - clarissaexplains_it_all - k_starship -
instagram
kellster2
#tigger #timehop #howtotell #iih #ptc #ih #pseudotumorcerebri #intracranialhypertension #awareness #spoontheory #spoonie #spoons #invisibleillness #chronicillness #hope #holdonpainends #itneverends #247pain #hydrocephalus
timehop - intracranialhypertension - pseudotumorcerebri - ptc - ih - spoontheory - howtotell - 247pain - chronicillness - iih - itneverends - holdonpainends - spoonie - invisibleillness - hydrocephalus - spoons - hope - tigger - awareness -
shiphrahm : It was on mystery diagnosis last night. A 12 year old girl. Parents thought she was faking all her symptoms. Crazy.
kellster2 : @shiphrahm omg that's so awesome! What channel? Is like to try&get my hands on it to watch&maybe even get a copy. I know the show is no longer in production as of a year&half ago. .. unless they brought it back. I'm glad they have it on there! Sure wish I had watched it years ago! 😊 Thanks for sharing thatm I'm going to let my Florida support group know
kitaj3 - rraawwrr22 - hannahelizabeth_n - stellarlovesyou -
instagram
singit2mepls
Mummy's not feeling that great tonight so we're having some snuggle time on the big bed while she rests her head. #ih #iih #intracranialhypertension #ptc #pseudotumorcerebri #brainpain #dizzy
ih - dizzy - brainpain - intracranialhypertension - pseudotumorcerebri - ptc - iih -
elouisehelder : Not liking the pain but little Eva is a sweet sight.
elouisehelder - luvmysweetboys - baritonebrat -
instagram
mystinadenby
Not very glamorous today. I took this because I was trying out Make Up For Ever's N9 which came in my birthday gift from Sephora! I don't look great becsuse I had my shunt adjusted, after over 24 hours of not sleeping. #IIH #pseudotumorcerebri #LPShunt #sephorabirthdaygift
sephorabirthdaygift - lpshunt - pseudotumorcerebri - iih -
instagram
immabnikkib
#GoingThruTheMotions #IIH #HoldingFirm
goingthruthemotions - iih - holdingfirm -
djflamez_1 - chippyprat - becauseimanna - sexy_michicara -
instagram
melli_se
#training #flexibility #auauau #split #workingformyscorpion #meinarmistausgulasch #iih #dancebitch #mondaynight #sport
training - auauau - meinarmistausgulasch - dancebitch - flexibility - split - mondaynight - sport - iih - workingformyscorpion -
nalasophie - sarahkarazma - sandrojanusewski - arina_bibi_ -
instagram
panda_jann
#porkê #tãoo #retards *---* #iih #taao #meus ;P #ILoveU ;*
iloveu - tãoo - retards - taao - porkê - meus - iih -
sarazp210 : Hey, you guys won the free Nike Gear Give-Away Raffel - Text me @ 1-512-589-8436 @pitzalise @marijntjuuuuuh @lucasttaveira @__jdoug__ @sorry0123456 @mac.morano @paolarizo2 @mari_vigeta @wreck.it.ralph_ @timo_jd_fan
rosypatricinha -
instagram
rousey3
My illness... #iihawareness #iih #idiopathicintracrainalhypertension #nocure #illness
nocure - iihawareness - illness - iih - idiopathicintracrainalhypertension -
brandiee_mariee - mikaela_clemente - ils_mango - trudypayne2 -
instagram
kellster2
#nofilter #chrisandkelly #universalstudios #sundayfunday #family #momswithink #awareness
tattoos - momswithink - family - idiopathicintracranialhypertension - sundayfunday - intracranialhypertension - honoryourcurves - ih - spoontheory - cuddling - anagram - themepark - pseudotumorcerebri - iih - holdonpainends - universalstudios - spoonie - hydrocephalus - ptc - chrisandkelly - hope - legalizethunderthighs - nofilter - awareness -
kimberly4072 : Aww
cables1213 : I love this picture!!! 💘
kellster2 : #legalizethunderthighs #honoryourcurves #tattoos #hope #anagram #holdonpainends #pseudotumorcerebri #ptc #intracranialhypertension #idiopathicintracranialhypertension #iih #ih #hydrocephalus #spoonie #spoontheory #themepark #cuddling
legalizethunderthighs : Aww what a great shot of an adorable couple of lovers! :)
kellster2 : @legalizethunderthighs thanks! 💑
cables1213 - counting_spoons - umiyoko_lo - phillykid79 -
instagram
alicianordbo
#Magisk#nomnom#iih😄
nomnom - magisk - iih -
kirstenhallais : Dei der æ magiske!! 😍
ceciliemadelen - sarahkloster1996 -
instagram
brandiee_mariee
This is so true!! I'm not even taking it any more and still have the side effects!! That is some nasty stuff!!! #pseudotumor #iih #papilledema #vpshunts #brainsurgerysurvior
pseudotumor - papilledema - brainsurgerysurvior - iih - vpshunts -
lelyrene - holy_smokes - ivettevaldivia_ - peace_love_and_arabellarose -
instagram
kitaj3
1 in 100,000. 😔 my doodle lol I know it's shit but meh.. #idopathicintracranialhypertension #iih #raredisease #braincondition #neurological #pain #sad
raredisease - neurological - braincondition - pain - iih - idopathicintracranialhypertension - sad -
kellster2 : I think more accurate would be: 1 in 100,000 are dx! Think of all those suffering with no dx or the wrong dx
kitaj3 : Oh my, Yeah. I hate to think about the sufferers, with no dx or wrongly dx it's a hard illness to dx technically though. @kellster2
kellster2 - rachiiet - afrequentflyer - girlinshadow -
instagram
dazesie
LOL!! #thanks for the #laughs @kermit_f_frog 👌#hateismyvertebrea #movealong In time youll learn, you will get #nowhere in #life walking in #hate The #experiences you achieve walking in #love will always get you #further - Obviously my opinons and thoughts bother you, why keep going through my #posts ? If you think critizing me and my photos will upset me, you have it backwards. That means im getting exactly where I need too. 💪💚 #cannabis #cannabiscommunity #mmj #mmjpatient #fibro #teamgreenlean #1love1heartbeat #onelove
life - lonely - love - mmjpatient - instaweedgram - laughs - teamgreenlean - freedomfrompharmaceuticals - movealong - weedstgram - experiences - thanks - mmj - further - onelove - hate - 1love1heartbeat - kush - spoonie - fibro - posts - iih - cannabis - nowhere - dank - maryjane - hateismyvertebrea - icanbecauseofcannabis - cannabiscommunity -
ad_rj : @kermit_f_frog is a BITCH😏 NIGGA 😂😂😂
kermit_f_frog : @ad_rj you look like a Mexican I don't think your qualified to use that word
dazesie : @ad_rj LMAO look girl ^ im still dying over an attempted insult..lmao kermit calling out a ms.piggy...can we say #lonely lmao😂
dazesie : @kermit_f_frog no one is qualified to use that word...no matter what race What exactly are you trying to acheive here?
pynkphynk : @kermit_f_frog I think you just confirmed yourself as @actabliss here. Still no rebuttle or comment on any questions I posed to you? Man up little one
pynkphynk : @dazesie I'm assuming @kermit_f_frog has a self image problem. Or a vision problem because I'm not sure how some one as thin as you can be seen as fat
ad_rj : @kermit_f_frog and u look like a dumb little bitch with No life!!! TRUST U FONT INSULT OR FAZE NOBODY DUMBASS! ! 😂😂😂😂😂😂😂😂
dazesie : @pynkphynk its ok baby, im celebrating keeping my 120lbs 💪
smokers_only_page - eshsena - hudnutlanell - pynkphynk -
instagram
moerlepoerle
Wenn ich in der Wüste wäre, und kurz vorm Ertrinken wäre.. #haha #LOL #bonaqua #gerolsteiner #daseinzigwahrelesmona #iih #haltdiefresseundsprichweiter #cupcakes #schautmalkurzvorbei #zombieapokalypse #hollisteristscheiße #heuteisteingutertagzumtanzen #foodtastyyummiundtamtam #dasklingtwieeinekrankheit
hollisteristscheiße - foodtastyyummiundtamtam - cupcakes - heuteisteingutertagzumtanzen - schautmalkurzvorbei - haha - lol - dasklingtwieeinekrankheit - haltdiefresseundsprichweiter - daseinzigwahrelesmona - zombieapokalypse - bonaqua - iih - gerolsteiner -
lenaa_ge - medlin__ - __chantal_c - isabel_la99 -
instagram
lar_sch
#fixundfertig #therme #kids #wassermachtsomüde #einfachmalchilln #tv #kerzen #schönwarm #scheisswetter #dassollaugustsein #iih #kalt #nass #instapic #iphonesia #iphone5s #beauty #beautiful #turkey #germany #brownhairs #browneyes #schlafen #ahoi ✌️
beautiful - beauty - ahoi - schönwarm - dassollaugustsein - instapic - einfachmalchilln - fixundfertig - therme - browneyes - kalt - iih - turkey - nass - kids - wassermachtsomüde - schlafen - kerzen - tv - iphonesia - brownhairs - germany - scheisswetter - iphone5s -
courtney.stannard - temaovod - nicole.guevara - vanessa_scerra -
instagram
elliehuby
Chalky tablets 😖😷 #IIH #acetazolamide #diamox #meds #tablets
diamox - meds - tablets - iih - acetazolamide -
janietheresa : Ha! I know right? How many milligrams do you take? I take 250 milligrams twice a day.
elliehuby : I take 250mg three times a day now just gone up from two a day x @janietheresa
janietheresa -
instagram
dazesie
must #believe - i wont #allow it to #destroy me ---- today will be an interesting one #pain spiked #fever and beginnings of #hallucinations -- yet another #spoonie #adventure --- #iih #fibro
fever - pain - spoonie - fibro - adventure - allow - hallucinations - destroy - believe - iih -
cloudycatz81 - universes_secrets - cavalosa1 - farmer_birdley -
instagram
dazesie
#spoonie #chronicillness #battleinside #pain #iih #fever #fibro
fever - pain - battleinside - spoonie - fibro - chronicillness - iih -
cloudycatz81 - djmreal - hannahelizabeth_n - ad_rj -
instagram
ellenevald
If you have to stay in bed all day, do it with style! (And all your cats😉) #selfie #thisisme #intracranialhypertension #iih #butyoudontlooksick #fibro #fibromyalgia #pseudotumorcerebri #chronicallyawesome #napalldaysleepallnightpartynever #masseraffilteroggejl #såkanmanikkeseminerynker #hashtagoverload
fibro - fibromyalgia - usedtoomanyspoons - spoonie - selfie - pseudotumorcerebri - intracranialhypertension - chronicallyawesome - såkanmanikkeseminerynker - thisisme - napalldaysleepallnightpartynever - hashtagoverload - iih - butyoudontlooksick - masseraffilteroggejl -
electriquita : Pretty lady ♥
pipperpivskid : Mon ikke du har et # eller to for lidt der?
ellenevald : Det er sparetider jo
ellenevald : Takes one to know one @electriquita 😘
ellenevald : #spoonie #usedtoomanyspoons
creativelycassie - khjanni - cbrowner76 - nazz31 -
instagram
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