ellenevald
Just finished listening to my awesome friend Austin's live performance of his very own "IHope". I loved every bit of it!!! I hope it brings some much needed attention to this very serious disease #iih #ptc #pseudotumorcerebri #ihope
pseudotumorcerebri - ptc - iih - ihope -
ellenevald : Did you see it @elilicious ? 😊
elilicious : @ellenevald yes. I'm in the fb group he started as well. He's such a great kid. I saw him at the last IH conference in Ohio with his parents.
elilicious - afitthingaday - maria1707 -
instagram
ellenevald
#painsomnia #spoonie #spoonielife #iih #fibro #fibrowarrior #chronicallyawesome #butyoudontlooksick
fibro - spoonie - painsomnia - chronicallyawesome - spoonielife - fibrowarrior - iih - butyoudontlooksick -
electriquita : #Truestory @mariabelhinha
electriquita - pattya925 - counting_spoons - bea_lupie_fighter -
instagram
stephticle65
IIH UK and ANN CONROY TRUST #September #Awareness #iih #ptc #ih #intracranialhypertension #pseudotumorcerebri #charity #chiari #arnoldchiarimalformation #syringomyelia #cure #ihope #relieve #intracranial #pressure #neurological #spinal #lumbarpuncture #diamox #topiramate
relieve - september - ptc - pseudotumorcerebri - intracranialhypertension - neurological - intracranial - ih - cure - topiramate - arnoldchiarimalformation - iih - charity - lumbarpuncture - chiari - spinal - diamox - syringomyelia - ihope - pressure - awareness -
instagram
mamfah88
Until I was diagnosed, I had no clue. September is #iih awareness month. #idopathicintracranialhypertension #spoonie #iihuk
iihuk - iih - spoonie - idopathicintracranialhypertension -
bethanyrumble13 : Love you xx
bethanyrumble13 - counting_spoons -
instagram
kellster2
#september is #awarenessmonth for #intracranialhypertension #ih #iih #pseudotumorcerebri #educateyourself #research #beaware #becomeinformed #hydrocephalus #brainpain #cerebralspinalfluid #ihope #holdonpainends
beaware - holdonpainends - cerebralspinalfluid - educateyourself - september - hydrocephalus - pseudotumorcerebri - intracranialhypertension - research - ih - brainpain - ihope - awarenessmonth - iih - becomeinformed -
phillykid79 - thedirtygentleman - cables1213 -
instagram
beccawatson93
#invisibleillness #iih #idiopathicintracranialhypertension #quote
quote - idiopathicintracranialhypertension - iih - invisibleillness -
hannahbach2 : 💕
copperkettles : You're a bloody gem!💚💚💚
beccawatson93 : @hannahbach2 @copperkettles 💗💗 thanks gorgeous girlies xxx
little_man_and_me - susanneigmf - dldj23 - louby_lou -
instagram
cannabis.queeen
Awareness month #iih #ih #September #awarenessmonth #silentsuffering #braindisease #pseudotumor
ih - braindisease - silentsuffering - september - awarenessmonth - pseudotumor - iih -
transforming_sarah : are you also a sufferer @cannabis.queeen
cannabis.queeen : Yes I am. For seven years @transforming_sarah
transforming_sarah : Long time mines been nearly 3
cannabis.queeen : Any amount of time is a long time with this disease. @transforming_sarah
mamfah88 - transforming_sarah - kellster2 - steller_syd -
instagram
kaynychole
My IH awareness photo. Intracranial Hypertension is a debilitating disease. I'm lucky in the sense that medications control it. But many others aren't so lucky. Us fighters & survivors are strong & determined. I hope for a cure one day. ‪#‎IHope‬ ‪#‎IIHawareness‬ ‪#‎Pseudotumorcerebri‬
iihawareness - pseudotumorcerebri - awareness - iih - ihope -
kaynychole : #IHope#IIH#pseudotumorcerebri#awareness#IIHawareness
hiiamsammy - __watermelon01 -
instagram
_lenii_benii
I like the summer rain I like the sounds you make We put the world away We get so disconnected♥
liebe - iih -
rebekka_brg : mein wunderschönes mädchen *-* #liebe @_lenii_benii ♡
nata98lena : Süß :*
_lenii_benii : danke♥ #iih #liebe @rebekka_brg @nata98lena
buesra1999 : Meine Schöne💕💕 lieb dich @_lenii_benii
_lenii_benii : selber ♥ ich dich auch ♥ @buesra1999
sandra56_fxs - andrexdasilva - julia.jumpie2799 - antonia_2107 -
instagram
maathusckfiilipee
#BOOATAARDEE #EUU #IIH #ELLLAA #RSRS
euu - rsrs - iih - booataardee - elllaa -
tawiine_vieira - naarygiovanna - theusin_uc - nataliajenyfer -
instagram
reslermomma
Posting this pic as inspiration! This was my bridal shower in 2008. I was 140 lbs. That is my goal for this school year- to get back there. Back on South Beach diet tomorrow. The first 2 weeks are the hardest so I apologize in advance for any grumpiness :) #weightloss #pcos #iih #hypothyroidism @karagrayy who is your mama holding? I can't remember.
hypothyroidism - pcos - iih - weightloss -
karagrayy : I'm pretty sure that's my nephew Lance! Awww I miss all you girls!!
reslermomma : Miss u 2!
alinad86 - livelaughlove0087 - mrsdrlevy - wildflower__xoxo -
instagram
wendy_edith_
#hihi#höhö#lw#sonntag#hair#nase#maul#amor#iih
du - bist - sonntag - hair - lw - höhö - wowww - nase - amor - maul - hihi - iih -
kecks076 : Iss so
wendy_edith_ : <3
marcodrexel : Wendy du modellll
wendy_edith_ : Marcoooooooo duuuuuu
marcodrexel : <333
wendy_edith_ : :****
yaaaasssiiii : Woooow schönheit.
wendy_edith_ : @yaaaasssiiii duuu honeyy
lena___100 - maaraike - xx.paffi.xx - kaderasli_alev -
instagram
sab71kay
September is #IIH Awareness Month. We need to find a cure! #Ihopeforacure
ihopeforacure - iih -
zoe_m777 - graziana1961 -
instagram
kitaj3
This my increasing chart for my tablets I was on 3 a day when I first got out of hospital now I'm on 10 tablets a day which increases even more on Tuesday and then Friday.. this is fine etc what's not fine is the fact that I may not get my site back to 100% again because my IIH may have ruined the optic nerve in my right eye :( #chart #medicine #acetazolomide #diamox #sad #iih #idiopathicintracranialhypertension #neurologicalcondition #brain #braincondition #hatethis
neurologicalcondition - acetazolomide - idiopathicintracranialhypertension - chart - sad - diamox - brain - braincondition - medicine - iih - hatethis -
helen__gabrielle - learn_medicine - dlorajameelx - afrequentflyer -
instagram
ashraemills
Went back to the eye surgeon, absolutely no improvement in the swelling of the disk and nerves and no changes in my vision. So back to the neurosurgeon to check my shunt and make sure it is properly working. I'm starting to think this surgery wasn't worth it, the days get longer and the pain gets worse & Im still losing my vision..... The one thing the doctors told me they could fix... I don't want to go blind before I'm 30! I need a cure! #pseudotumorcerebri #pseudotumor #iih #intercranialhypertension #vpshunt #brainsurgery #visionloss
intercranialhypertension - visionloss - pseudotumor - vpshunt - pseudotumorcerebri - brainsurgery - iih -
sab71kay : :( Sorry to hear that.. but it's true: We do need a cure urgently!
1nonly_mrsburns : Your always in my prayers. !
lalayurworld : I wish I was there to be with you! @ashraemills we love you ash stay strong!
1nonly_mrsburns - our_happily_everafter - jxhnbxnd - k_ksmommy1015 -
instagram
kaynychole
I want something like this on a t shirt for IIH awareness month but something prettier.
awareness - psuedotumorcerebri - ihopeforacure - iih - ihope -
kaynychole : #iih#psuedotumorcerebri#ihope#ihopeforacure#awareness
instagram
crystalgraz
I'm a blonde now!!!! So in love with it!!!!
hair - happy - love - pcos - losingweight - makeup - iih - pcosweightloss - weightloss -
crystalgraz : #hair #happy #makeup #love #losingweight #weightloss
crystalgraz : #pcos #pcosweightloss #iih
rexiecatmeow : It goes perfect with your brows!
crystalgraz : @rexiecatmeow i think it's pretty close to my natural color , I guess we will see when roots grow out
thesaltlifewife : Gorgeous!
angelmomma6_15_14 - hastings_ttc - thesaltlifewife - my2boystristanandcruz -
instagram
singit2mepls
Hubby heard my brain was hurting & brought me home a BIG coffee. We're both hoping the caffeine helps. #ih #iih #intracranialhypertension
ih - intracranialhypertension - iih -
elouisehelder - baritonebrat - kahlixx - littlemissnonam -
instagram
singit2mepls
That red line may just explain why my head is SCREAMING right now. Need to get some caffeine into me. #ih #iih #intracranialhypertension
ih - intracranialhypertension - iih -
liasjourney - baritonebrat -
instagram
ellenevald
Dear #fibromyalgia and #iih #ptc ... I don't remember us agreeing that you could take over my life! Please f**k off! I was supposed to be at a family reunion celebrating my sister's birthday right now. Instead I'm in bed with an icepack on my head. Not cool! The least you could have done was to bring wine!!! #spoonie #spoonielife
spoonielife - ptc - fibromyalgia - iih - spoonie -
cbrowner76 : Feel better!😞
ellenevald : To top things off the neighbour is having a party... In the garden!!! Gaaah 😁 If they only had a good taste in Music, but no.. I'm listening to "go West" on repeat. Give a Girl a break!!!
erikazb : Kram❤️
emmacoleman64 : I'm the same. X x
frhegaard : Kram til dig😘
thegirlnamedman - maria1707 - cbrowner76 - elilicious -
instagram
mamfah88
#spoonie #iih #idopathicintracranialhypertension
iih - spoonie - idopathicintracranialhypertension -
just_breathe_nicole - tiff_rene21 - ju__spoonie - natascha2793 -
instagram
transforming_sarah
Both my favourite tattoos in one picture the family tattoo is ony right shoulder and the strength that I got yesterday is on my left in love with my ink. #ink #tattooed #tattooedgirl #tattoo #tattoodesign #roses #rosetattoo #strength #flowers #family #inkaddict #iih #idiopathicintracranialhypertension #like4like #follow4follow #followback #red #blue #green #pretty #inlove
followback - family - rosetattoo - follow4follow - inkaddict - ink - flowers - tattooed - iih - blue - tattoo - strength - idiopathicintracranialhypertension - tattooedgirl - roses - green - pretty - tattoodesign - like4like - red - inlove -
ann_audrey : Like my latest selfie?💕(: #i #will #like #spam #follow
misssweetcheeks2014 - ninemonroe - ann_audrey - dabthing -
instagram
cuppiecakes18
September is IH awareness month. I was diagnosed in 2011. Please spread the word about this terrible disease. Thank you. :)
blind - help - september - share - ptc - ih - dizzy - iih - migraine - nauseous - disease - like4likes - sick - donate - awareness - headache -
cuppiecakes18 : #migraine #ih #iih #ptc #headache #blind #dizzy #nauseous #sick #september #awareness #disease #help #donate #like4likes #share
omg_its_lisa_ : Like my last pic please
_elizagraceflips - kymberlyfzkw - omg_its_lisa_ - triston_anthony_14 -
instagram
riah43
September is IH awareness month. It's time to show my colors and spread the word. This month I'm participating in a much anticipated walk with other IHers, and I'll be sharing my knowledge with you all in hopes of informing others and in hope to find a cure. #iih #intracranialhypertension #ih #awarenessmonth #blueandgreen #pseudotumorcerebri #knowledgeispower #ihope #ihrfoundation
blueandgreen - pseudotumorcerebri - intracranialhypertension - ihrfoundation - ih - ihope - knowledgeispower - awarenessmonth - iih -
shannon.noel : Hi.. Could u please make me one of these and send it to my DM so I could spread awareness? Thank you. :)
riah43 : @shannon.noel I didn't make it. I'm part of a closed group on Facebook called life with IIH. One of the admins made it for me. They have made over 400. And will make u one. :)
shannon.noel : I think I am apart of that group! Lol
shannon.noel : Oh wait I'm apart of a different one. Lol
shannon.noel : Oh yes it's the same group.. They just wrote me back and agreed to make me one! :)
riah43 : Good. The admins are awesome and super kind. @shannon.noel
glowingbeam - laceyp91 - ashleyrahner - steller_syd -
instagram
missnatashajae
#IH #IIH #IHope #BBFChallenge #BBF #raredisease #awareness #support #2014 #photooftheday #instagood
raredisease - bbfchallenge - bbf - support - instagood - ih - ihope - 2014 - iih - awareness - photooftheday -
cuppiecakes18 - kate2984 - scooberdoo -
instagram
langel420
Yup.... #IH #IIH #PTC #intracranialhypertension #psudotumorceribri
ih - intracranialhypertension - iih - ptc - psudotumorceribri -
cuppiecakes18 - ashraemills - ewiles09 -
instagram
transforming_sarah
A nice touch up #tattooedgirl #tattoo #tattoodesign #inkaddict #ink #iih #idiopathicintracranialhypertension #freshinkfeeling
tattoo - idiopathicintracranialhypertension - tattooedgirl - freshinkfeeling - inkaddict - ink - tattoodesign - iih -
rikkihell4 - sallyyyx - candycrimexx - martinabartoletti -
instagram
transforming_sarah
No edits my new ink :) so in love #tattooedgirl #tattoo #tattoodesign #freshinkfeeling #ink #inkaddict #strength #iih #idiopathicintracranialhypertension
tattoo - strength - idiopathicintracranialhypertension - tattooedgirl - freshinkfeeling - inkaddict - ink - tattoodesign - iih -
steller_syd : That's gorgeous!!
transforming_sarah : Thank you very much @steller_syd I have an almost matching one my other shoulder in traditional rose colour with family written on which is further down my page
ashraemills - rikkihell4 - justink182scholes - steller_syd -
instagram
prettierthanyou_17
Ice bucket challenge :3 ;D Ich nominiere @jannes_unvi die anderen wissen Bescheid :) ♡ #icebucket #icebucketchallenge #iih #instaicebucket #als #fuckaaa @_eveliiina_
icebucket - icebucketchallenge - fuckaaa - iih - instaicebucket - als -
prettierthanyou_17 : Danke bebii fürs helfen :* @_eveliiina_
_eveliiina_ : Ich bin toll !
melvinc5 : 😂😂❤
prettierthanyou_17 : ;D ♥ @melvinc5
melvinc5 - jule_vs - xxmynameismariexx - gerri_s04 -
instagram
ellenmay242
This is me everyday 💗 #iih #idiopathicintracranialhypertension #intracranialpressure #hydrocephalus #shunt #brainsurgery #pain #headaches #sickness #dizziness #doublevision #blurredvision #blurredspeech #horrendous #mylife #everyday #hateit #raiseawareness
pain - blurredspeech - idiopathicintracranialhypertension - horrendous - blurredvision - hateit - mylife - doublevision - raiseawareness - iih - headaches - shunt - intracranialpressure - sickness - hydrocephalus - brainsurgery - everyday - dizziness -
ladycherylga - mae_rosexx - misscheryl_soldiers - arunoreilly8 -
instagram
brittbry22
#eeg #seizures #epilepsy #iih #brainsurgerysurvivor
seizures - eeg - epilepsy - iih - brainsurgerysurvivor -
brenda85201 : Get well soon !!!!
tiffanykairos : I completely understand what you're going thru! Praying all the best! God bless! 💗
ashbug1101 - brenda85201 - silkysweetpea - awaywithepilepsy -
instagram
aurora_sini
#iih #biara #dolore #gymnastics #split #summer #sun
summer - gymnastics - split - biara - sun - iih - dolore -
haileybty1 : Very nice! Are you a gymnast? Share more vids on Instagram please! The app allows you to put all your moves as highlights together with any music you want. XD
fabio_deko - gymnast1elite - dany__marco - _saaaaraaaaaa_ -
instagram
sorr0wplagues
So I had to decline but I've actually shown numbers so people can donate as alot of people haven't bothered 😡 #charity #icebucketchallenge #als #iih #cancer #cancerresearch #aplasticanemia #anemia #donate #dontforgettodonate #raredisorder #braindisease #neuropathicpain #wateraid
cancer - raredisorder - cancerresearch - anemia - iih - icebucketchallenge - braindisease - neuropathicpain - wateraid - dontforgettodonate - aplasticanemia - donate - als - charity -
dietzlerenid - macayla.mae - sparkles_the_serial_killer - iwokeupazombie -
instagram
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