lovenikkole
The queen loved #KhloeyBriann and she loved her princess crown just like #Elsa #Frozen #obsessed #cutekidsclub2014 #hydrocephalus #butlercountyfair
obsessed - khloeybriann - cutekidsclub2014 - frozen - butlercountyfair - elsa - hydrocephalus -
ellie_gierman : Can you like my 2 most recent pics?:)
genestarwind - foreveramommy_ - tiva616 - ellie_gierman -
instagram
lovenikkole
Her love and curiosity for the world amazes me. #KhloeyBriann #cow #hydrocephalus #butlercountyfair #cutekidsclub2014 #cutekidsclub #fair
cow - khloeybriann - cutekidsclub2014 - butlercountyfair - hydrocephalus - cutekidsclub - fair -
foreveramommy_ - tiva616 - mommymclean -
instagram
itsnotlikeitsbrainsurgery
An after surgery pic...the worst feeling is waking up after surgery & feeling all the pain. #hydrocephalus #hydrohope #surgery #aftersurgery #ouch #worstpain #painful #painwarriors #er #hospital #illness #illnesses #keepfighting #mylife #myjourney #painwarriors #vpshunt #shunt #shuntlife #shuntssuck #chronicallyill #chronicillness #sick #sickgirl #brainproblems #neuroproblems #brainissues
illnesses - illness - keepfighting - brainproblems - shuntssuck - hydrocephalus - ouch - cutedarkcircles - worstpain - mylife - chronicallyill - vpshunt - surgery - aftersurgery - chronicillness - er - shuntlife - shunt - brainissues - hospital - neuroproblems - painwarriors - myjourney - sickgirl - sick - hydrohope - painful -
itsnotlikeitsbrainsurgery : #cutedarkcircles
libertycircles : Very cool!
itsnotlikeitsbrainsurgery : Brain surgery isn't cool..but ok. @libertycircles
jstein0109 : @itsnotlikeitsbrainsurgery I'm very relieved to hear that everything went well. I'm sorry to here that it had to get to the point of surgery. I know it sucks and it is very nerve racking. But you pulled through and that's all that matter. My thoughts and prayers are with you always. I hope the recovery process is fast and successful. 😊❀️πŸ’ͺ
dianacole5555 - rosenamalicdem - purpleviolin91 - jstein0109 -
instagram
amy_booher
Friends are absolutely necessary in the #relentlesspursuit of happiness.... So are golf coaches. And if you're lucky, they are one in the same. #teamamybooher #fuckhydrocephalus #shuntlife #hydrocephalus #headache #brainsurgery #recovery #relentless #love #bestfriends #teacherspet #theresnocryingingolf @shermann22 @boo_her
fuckhydrocephalus - love - recovery - theresnocryingingolf - hydrocephalus - brainsurgery - relentlesspursuit - shuntlife - bestfriends - teamamybooher - teacherspet - relentless - headache -
dianacole5555 - rainetastic121 - arlettelavelle - ahockma13 -
instagram
twilyon
hydrocephalus -
ricoandino : Nice selfie. #homo
twilyon : Says Rico #hydrocephalus
ricoandino : Sweet sleeve. #rorschachtest
instagram
ashleewellsjaxn
Oh how far we've come! Itty bitty 5 week old Nova waving goodbye to UIC as we boarded an ambulance to Lurie to get ready for her first brain surgery. #novagram #micropreemie #hydrocephalus #transportkid #tbt
transportkid - novagram - hydrocephalus - tbt - micropreemie -
tmpstbty : So breathtakingly bitty.
traceyhawkphotog : Yes big girl! Nova was beautiful since day oneπŸ’—πŸ’—πŸ’žπŸ’—πŸ’—πŸ’ž
mothergoose5.18 : πŸ’–πŸ’–πŸ’–πŸ’–πŸ’–
wellmaybeiamahippy : ❀️
bizabeth_jane : #GoNovaGo #TooPrecious #ThankGodForMedicalStaff
toitugglekuhn : Sweet Nova. She's going to do amazing things in this world.
bwcarlson : Wow. Amazing.
ffireworkss : She's amazing
grettylove - pmaehj - lauraleegarcia312 - lauraweetziewilson -
instagram
junebugsmomma
#tbt One of my all time favorites!! #bestsweaterever #specialneeds #hydrocephalus #hydrocephalusawareness #corticalvisualimpairment
specialneeds - bestsweaterever - hydrocephalusawareness - hydrocephalus - tbt - corticalvisualimpairment -
ktpie4141 - thebabybirdboutique - deni_kay - crat22 -
instagram
biggautumn
Can't believe my baby just died! I'm so heart broken! RIP Penny 9-25-13 to 7-24-14 #sad #heartbroken #hydrocephalus #mybaby
heartbroken - mybaby - hydrocephalus - sad -
anunar_ohana - philomenatterrell -
instagram
dmcsaf
#TBT September 2012 Jordan only #minutes old. I #vaguely remember this moment, I only got to #hold him mere #minutes before he was whisked away to Children's. Its amazing to see him in this way, what a #journey we've had so far. Boy, he just amazes me at his fight. Hes #progressed so much. I'm so #proud to be his mommy. #hydrocephalusawareness #hydrocephalus #tracheoesophagealfistula #mymiracle #lilfighter #lilmiracle #hydroangel #hydrowarrior
hydroangel - lilfighter - progressed - proud - hydrocephalus - tbt - vaguely - journey - hydrowarrior - hydrocephalusawareness - tracheoesophagealfistula - mymiracle - hold - minutes - lilmiracle -
karabearaa - tuba_b - jslang327 - clouds_85 -
instagram
sanders_ct
#Hydrocephalus && #ChiariMalformation Survivor.
hydrocephalus - chiarimalformation -
said_mansour - adhoffman81 - djp3ter - fiass1989289 -
instagram
meliiinda_suuue
#mother #son #love #family #blueeyes #smile #happy #freckles #sweet #cerebralpalsy #hydrocephalus
love - family - freckles - hydrocephalus - son - blueeyes - mother - smile - sweet - cerebralpalsy - happy -
nikki_grof - anderawannita - nicki_bobby - gevocrates -
instagram
havefaithinmattie
#KalebEmmanuel #Smiling #Babyboy #HangingOut #CouchPotatoes #LoveThisBoy #SpinaBifida #Tracheostomy #Hydrocephalus
tracheostomy - lovethisboy - hangingout - kalebemmanuel - hydrocephalus - spinabifida - babyboy - smiling - couchpotatoes -
brittanylovee19 - pkmnjustinnn - primo516 - powpowprrmeow -
instagram
kellygdesign_creative
A hot Momma in Nashville is going to love her new earrings!
etsy - branding - hydrocephalus - kellygdesign - kellygdesignboutique - mplsigers - atreatformom - hotmomma - earrings - graphicdesign -
kellygdesign_creative : #kellygdesign #graphicdesign #branding #mplsigers #earrings #hotmomma #atreatformom #kellygdesignboutique #etsy #hydrocephalus. etsy.com/shop/kellygdesignboutique
obiaris : Props!
marky_ih - ines_bustamante - lacomstock - daniellindhphoto -
instagram
michelledawn21
Somebody's a happy girl this morning! #aspynlindawitbeck #ridgeandaspyn #littlesmile #hydrocephalus #hydrobaby #miraclebaby
aspynlindawitbeck - miraclebaby - hydrobaby - hydrocephalus - littlesmile - ridgeandaspyn -
mommacheychey : πŸ˜πŸ‘ΆπŸŽ€
mommacheychey : @michelledawn21 she is so beautiful
a.r.e.a.n.a - beckyandgrant - rpdwife172 - aimsy_french -
instagram
ktpie4141
Poor guy has a tooth breaking through on top of everything else... It's been a rough couple of days... Where's the fast forward button πŸ˜” #supercam #camspam #cameronsfirsttooth #veinofgalen #vpshunt #hydrocephalus
veinofgalen - cameronsfirsttooth - vpshunt - hydrocephalus - camspam - supercam -
fettie1989 : Cutest baby ever!! Strong little guy !! πŸ’ͺ❀️
shannylkoch : πŸ˜” strongest lil guy i know!!
house_of_hughes : He is so precious.
junebugsmomma : I hope he feels better soon. We have a molar coming through over here.:(
ali4x : @ktpie4141 sending love sweety πŸ˜™πŸ’“
mrskate_compton : Poor little fella 😫 love love love you KF 😘😘😘
ktpie4141 : Love you moreee @mrskate_compton
jab721 : Mine is still toothless
fia8183 - jada_07 - gabrielllesanchez - jessicaj_smith -
instagram
chronically_determined
I'm feeling crest fallen πŸ˜ͺ It's been an emotional day, first the call from the hospital, and then I found out they want to change our insurance at work after all the fighting I've done to get my appeal approved. I get home, and there's an email from a dear friend who just doesn't get it. She's afraid I'm thinking Dr. R will make me normal, maybe I'm buying too much into this, and my one good moment this last weekend means there are other options. I broke down and had a good cry. Ever since I can remember I've suffered, and it's steadily gotten worse. The past 6 weeks have been so brutal, and when I need the support the most I'm given doubt and caution. I'm not an idiot, and she should know that. I don't think I'm going to be healed, or be "normal." I have suffered for too long, and I know better. I just want to help slow the progression of blindness and paralysis. I don't want to be disabled. I want to be able to socialize, and really want to be there, not be covering up the misery I'm feeling... I want, I want. I honestly just want a chance, I know there are no guarantees. 😞 I also know it's my fault. I isolate myself when I'm really bad, and most people only see me socially when I have the headspace to handle everything. I also believe in thinking positively, embracing love, showing gratitude, not holding back, and trusting the universe... All of this gives the impression I'm not as sick as I really am.😳 I guess what hurts is I thought she saw how much I needed this, and how scared I am. #chiarimalformationawareness #fightlikeagirl #chronicpain #chronicillness #lifeofaspoonie #spoonieslife #spooniesisters #chroniccondition #hydrocephalus #posturalorthostatictachycardiasyndrome #pots #mylife #conquerchiari #chiaristrong #scared #hurt #crying #lonely #wontgiveup #warrior
chronicpain - conquerchiari - lonely - warrior - pots - scared - fightlikeagirl - hurt - chiarimalformationawareness - wontgiveup - mylife - spoonieslife - chronicillness - spooniesisters - posturalorthostatictachycardiasyndrome - hydrocephalus - chroniccondition - crying - lifeofaspoonie - chiaristrong -
ggfgourmet : @chronically_determined Have you tried a Paleo or AIP diet for your conditions?
chronically_determined : @ggfgourmet I'm vegan and gf. I try to avoid cards as much as possible, and focus on things that are high in protein. It helps with bowel movements and allergies, but diet isn't going to change the shape of my skull or stop the compression of my brain, nerves, and arteries. Believe me, I've tried everything. It's time. 😘
tiffanyyy_x333 - mctd_support - lilnaths_redhead - stay.smiling.xoxo -
instagram
cleaneating_sassy
When it comes to #preemies everyday counts... It's not a count down its a count up! Today is the #twins due date. Hard to believe that they still should have been cooking! Happy Due Date babies even if you are 49 days old... πŸ’™πŸ‘ΆπŸ‘ΆπŸ’™
identical - preemies - love - babies - monodi - son - baby - preemiepower - preemie - 33weeks - pregnancy - junebaby - brothers - boy - brother - niculife - nicumom - hydrocephalus - twining - tiny - twins - identicaltwin - mother - 2014 - monoditwins -
gabywinters : They are precious! I hope they are together again very soon. Hey Sassy, I am just about to start working on my crafty thing again to finally sell on Etsy. We have been very busy this summer, but I still check on you and your little babies when I can. I will get back at you soon. Sending love xoxo
dede3777 : They are thriving cause their mama is amazing!!!!
mama_gabb : Omg they are both so so cute ! Those little faces and those cute little noses. I'm so glad they are both doing so well. Prayers sent your way Sassy. You are such a strong mama 😊😻 @cleaneating_sassy
dgonzalesrn : I agree with Aunt Dede!!! @cleaneating_sassy @dede3777
dgonzalesrn : Happy due date sweet babies!!! @cleaneating_sassy
cleaneating_sassy : #preemie #preemies #33weeks #2014 #babies #baby #boy #son #twins #twining #brother #brothers #hydrocephalus #nicumom #niculife #mother #junebaby #pregnancy #identical #identicaltwin #monoditwins #monodi #tiny #love #preemiepower
dani_to_the_yell : Happy due date little precious babies! I love you all
twins.triplets.and.more : They are beautiful!
sarezack - tjayhorton - e_vanh00k_ - barracuda3110 -
instagram
_terecamberos_
My handsome. #mj#spinabifidamom#spinabifida#hydrocephalus#lovehim
spinabifidamom - lovehim - spinabifida - hydrocephalus - mj -
durhamtempietvyg - alcamberos10 - maestrapita - kaydayway -
instagram
michelledawn21
#aspynlindawitbeck #ridgeandaspyn #hydrocephalus #hydrobaby #septoopticdysplasia #miraclebaby
aspynlindawitbeck - miraclebaby - hydrobaby - hydrocephalus - tubie - septoopticdysplasia - ridgeandaspyn -
michelledawn21 : #tubie
ttcbabyrichard : What a sweet baby girl!!😍😍
umbrellaoptional : So precious! <--- this goes for ALL the beautiful photos you posted. What a sweet way to capture such a sweet family!
noellejade : So sweet!!!
erinnchris : Precious!
mmbailey : πŸ’—πŸ’—
stargurl044 - rainee_28 - withinmyfrontdoor - aimsy_french -
instagram
italiansdoitbest_19
I've been wanting to write #mystory for a while but I've been too sick lately but I thought today was a good time since kind of feeling depressed, thought it might help ....β™‘ so here's my story.. I got diagnosed with hydrocephalus September of last year and have had 5 brain surgeries since. My first one was sept 20th i had another 2 in november on my way to my to the hospital for my 3rd surgery that was supposed to be the next day I got in a car accident and busted my head which had staples in it on the window...so that sucked and then i had the 4th one around Christmas; which i spent in the hospital :( and the 5th one which is my most recent one in late april, I also had a brain bleed #subduralhematoma; right before my most recent surgery. All of my surgerys have been done by the same neurosurgeon at the same hospital in Newport Beach ca. But I'm currently looking for a new neuro surgeon. I've had three different types of shunts & two revisions. I suffer from chronic debilitating headaches everyday and I suffer from chronic nausea and vomiting and I have vision problems and balance problems. Then I got diagnosed with #peripheralneuropathy a disease that causes shooting and cramping and sharp pain and numbness with your hands/arms and legs/feet, but it has spread to my back and now they think it might be #fibromyalgia. Most days I can barely leave bed. I dont go to school or work anymore. This disease has greatly impacted my quality of life. I hope that soon I will find a #neurologist who actually fixes me. I am here for anyone who needs to talk. We all need to #support eachother. I love the #hydrocommunity on insta super sweet. Keep trucking on my #hydrowarriors I'll do a more in detail story when I'm feeling better..β™‘
illnesses - mystory - illness - keepfighting - fighters - hydrohope - hydrowarriors - chronicallyill - fighter - mymedicalstory - chronicillness - depression - fibromyalgia - depressed - support - hydrocephalus - myjourney - subduralhematoma - hydrowarrior - hydrocommunity - neurologist - peripheralneuropathy - mylife - hospital - hope - headache -
italiansdoitbest_19 : #hydrocephalus #hydrohope #hospital #hope #hydrowarriors #hydrocommunity #hydrowarrior #headache #illnesses #illness #keepfighting #myjourney #mymedicalstory #mystory #mylife
prettygirlspoop : You're amazingly beautiful stay strong love!!! @italiansdoitbest_19
italiansdoitbest_19 : Thank you so much β™‘ @prettygirlspoop
stephalliday : Wow. I feel for you that's a lot in such a short time. What caused your hydro? I was diagnosed @ 27 with aquductal stenosis and have had 10 surgeries.
italiansdoitbest_19 : @stephalliday it definently sucks. They have no idea what caused it or why it came out of the blue. Oh wow 10? How old are you now?
ariana.grende : Dang... Wow. U put me in tears.. And im still young and i dont know what some of the hashtagged words tht u didnt explain are but u are a really strong person and you have my prayers. Keep fighting hard. Dont give up. You will win those battles and hopefully overcome the diseases surgeries and pains. I love u and remember. Some people have it worse. So dont feel bad. Im one of your supporters and feel free to talk to me when ever. KayπŸ’•
always_lifted : ❀️ keep your hear up, tough soldier
stephalliday : @italiansdoitbest_19 33 last week. :)
giannaddoretha - isaac_galeano13 - jstein0109 - kristilcurtis -
instagram
junebugsmomma
Toddler and youth sizes available now!! Link in profile. For any of you who may want an adult size, the link is www.teespring.com/hydrocephalus awareness. Unfortunately, I could not combine and there are two links:( #hydrocephalus #hydrocephalusawareness #anchors #teespring
teespring - hydrocephalusawareness - hydrocephalus - anchors -
lilcocobea : ❀️ @junebugsmomma!!! We will be ordering ours soon!!!
amy_booher : @junebugsmomma so cute!! I've always been a fan of the anchor-hydro reference... I've seen a few moms with cute tattoos!! πŸ’—
junebugsmomma : @lilcocobea, Thank you for your support😘
junebugsmomma : @amy_booher, Thank you. I didn't know there was a reference, but I'm in love with this shirt. You need one! You are a hydro warrior😘
ajg0131 : I'll check this out tonight!
junebugsmomma : @ajg0131, please do😘
valmichaelsgrosgrainribbons : Love it!
dmcsaf - cortnyjane - ajg0131 - crat22 -
instagram
itsnotlikeitsbrainsurgery
I've been wanting to write #mystory for a while but I've been too sick lately but I thought today was a good time since kind of feeling depressed, thought it might help ....β™‘ so here's my story.. I got diagnosed with hydrocephalus September of last year and have had 5 surgeries since. My first one was sept 20th i had another 2 in november one around Christmas; which i spent in the hospital :( and the most recent one in late april, all of my surgerys have been done by the same neurosurgeon at the same hospital in Newport Beach ca. I've had three different types of shunts two revisions. I suffer from chronic debilitating headaches everyday and I suffer from chronic nausea and vomiting and I have vision problems and balance problems. Then I got diagnosed with peripheral neuropathy a disease that causes shooting and cramping and sharp pain and numbness with your hands/arms and legs/feet, but it has spread to my back and now they think it might be #fibromyalgia. Most days I can barely leave bad I dont go to school or work anymore. This disease has greatly impacted my quality of life. I hope that soon I will find a #neurologist who actually fixes me. I am here for anyone who needs to talk. We all need to #support eachother. I love the #hydrocommunity on insta super sweet. Keep trucking on my #hydrowarriors I'll do a more in detail story when I'm feeling better..β™‘
mystory - hydrocephaluscrap - brainproblems - fighters - hydrowarriors - chronicallyill - fighter - chronicillness - brainsurgerys - depression - headaches - fibromyalgia - brainissues - depressed - support - hydrocephalus - brainsurgery - hydrosupport - hydrowarrior - hydrocommunity - neurologist - hydrohope - brokedown - hospital - hope - headache -
itsnotlikeitsbrainsurgery : #brokedown #brainproblems #brainsurgery #brainissues #brainsurgerys #chronicallyill #chronicillness #depressed #depression #fighter #fighters
carlicc11 : xxhydrohugsxx If you ever want to talk to someone, I'm here for you! :) @itsnotlikeitsbrainsurgery
itsnotlikeitsbrainsurgery : #hydrocephaluscrap #headaches #hydrocommunity #hydrowarrior #headache #hydrowarriors #hydrocephalus #hydrosupport #hydrohope #hospital #hope
itsnotlikeitsbrainsurgery : Thank you @carlicc11
_be_your_self_14 - givesmehope___ - kinky.teens - carlicc11 -
instagram
lexi.hazel.3
"I have hydrocephalus but Hydrocephalus doesn't have me." #Hydrocephalus #Shunt #needacure
hydrocephalus - shunt - needacure -
rawr_im_carls : Tbh Lexi, I think that you're absolutely gorgeous!!! We haven't really talked before except for saying hi a few times in the hall but we should talk more! πŸ˜‹
dylan_cox90 -
instagram
gotshuntcom
This is from when I (@vikingfrog86) was around 8 months old. I had a #shunt placed for #hydrocephalus when I was 16 months old but before that happened I couldn't hold myself up. I was in this position so that I could sit up without falling over :)
hydrocephalus - shunt -
espressonist - lyndamonroe - kdegrand - kotasgrandma -
instagram
chronically_determined
I'm hiding in the bathroom at work doing my happy dance!! Why? Because if I do it out in public it'll be expected, and just this little but made my head and neck hurt, and I was dizzy. 😣😳 SO, why the happy dance? It's getting real!! I just received my pre-registration call from Park Ridge Health, $9,000+ in testing, and my insurance is standing by their word, charging me a copay of $125 without any fuss. Keep me in your thoughts and prayers as I continue wrapping things up at work, cleaning, and packing for this trip!! YIKES!! This is really happening!!!! #chiarimalformationawareness #fightlikeagirl #chronicpain #chronicillness #lifeofaspoonie #spoonielife #spooniesisters #chroniccondition #hydrocephalus #posturalorthostatictachycardiasyndrome #pots #mylife #conquerchiari #chiaristrong #happydance
chronicpain - conquerchiari - posturalorthostatictachycardiasyndrome - happydance - hydrocephalus - fightlikeagirl - chroniccondition - spoonielife - chiarimalformationawareness - mylife - lifeofaspoonie - pots - chronicillness - chiaristrong - spooniesisters -
_t_i_m_a_r_i_e : Danie, you deserve this moment! I love you!
chronically_determined : @_t_i_m_a_r_i_e I love you too girl! Wish you were closer 😘
streich22 - the.butterfly.garden - zebrafierce - toughcookie_1 -
instagram
jadexolauren
P R A Y for IRIS ❀️ PLEASE keep my amazing friend in your prayers and send positive vines her way, she is in an unexpected coma! Thank you for your love an support! If you know Iris you know how beautiful she is and how strong she is, please God be with her through this!πŸ™πŸ’œ #prayforIris #hydrocephalus
hydrocephalus - prayforiris -
caseybraccini : πŸ™πŸ™πŸ™πŸ™πŸ™
doughy_03 : Love you @irisespino , prayers your way β™₯
mscaddy1965 : πŸ™πŸ™πŸ™πŸ™πŸ™πŸ™
pred_k : πŸ™πŸ™πŸ™ prayers your way beautiful
doughy_03 : Are visitors allowed jada?
lesliepepsi85 : Breaks my heart to hear that but I have Faith that God is with her. And I pray he is with you, her friends and all her family during this difficult time
jadexolauren : @doughy_03 right now just her immediate family
nessuh27 : Friend any update on her
boom_boomz_ - wataworldwoodro - backseattroll - lesliepepsi85 -
instagram
amy_booher
This is how my sweet old girl feels about this wet #Oregon weather... I think she's picking up on the fact that I don't feel well either - so I think we'll head home to get some rest and wait out the rain clouds. #proofoflife #hydrocephalus #headache #humanbarometer #therapydog #bestfriend #stayheartstrong @boo_her
bestfriend - therapydog - hydrocephalus - oregon - stayheartstrong - humanbarometer - relentlesspursuit - proofoflife - headache -
junebugsmomma : Does the change in weather cause more hydro headaches? Or just hydro @amy_booher?
amy_booher : @junebugsmomma we are noticing a correlation in my pressure type hydrocephalus headaches every time there is a major weather change... It sucks-- Oregon is probably not the most stable place to live in terms of that... But I love it here. Grrr. βš“
junebugsmomma : I always wonder if Savannah has or will have headaches. It's extremely hard to know with a non verbal child. She is pretty happy. I hope you feel better soon:)
amy_booher : @junebugsmomma totally understand your concern. Thanks Lacey. βš“
xoxo_taylorchristine : Isn't it crazy how hydro headaches work? I don't have a shunt, so I'm not sure what it's like to have a shunt related headaches. I've just always had 'headaches' which are really migraines when looking at severity . But before I had surgery, I tracked the barometric (atmospheric) pressure and documented my headaches with the pressure number . It was an attempt to find a correlation to rule out every possibility to definitely say it was my hydro. Having you mention the weather in relation to having headaches made me think of my similar situation! With crazy weather comes more headaches! Just a part of our norm!
amy_booher : @xoxo_taylorchristine hi Taylor... Yeah, hydro headaches are so bizarre. My husband always says, God only knows...on any given day it could be something different. So you have an ETV? You've never been shunted ?
amy_booher : @xoxo_taylorchristine oops...hit send too soon...what age were you diagnosed? I was diagnosed at 17, but they tried the shunt 3x before the ETV. Then I had that for 11 years (still have it) but had to get a shunt again, in 2012. Hang in there!! #relentlesspursuit
junebugsmomma - powpowprrmeow - 13rianaleerey - mt4ever13 -
instagram
1d_elli_1d
Celebrating the boys 4 years anniversary with ice cream #anniversary #4years #onedirection #harrystyles #louistomlinson #liampayne #niallhoran #zaynmalik #sweden #swedishgirl #wheelchair #spinabifida #sbteens #hydrocephalus
liampayne - sbteens - swedishgirl - hydrocephalus - anniversary - niallhoran - sweden - harrystyles - louistomlinson - spinabifida - 4years - onedirection - wheelchair - zaynmalik -
camilapnce16 - nikii_2010_1d - matinga95 - shachargino -
instagram
tiffiniemae
One year #decompression #chiari #brainsurgery today!!! It's been a crazy year! #chiarimalformation #syrinx #hydrocephalus #shunt there's been a lot of pain but the amazing people in my life have helped me endlessly along the way. I'm stronger now and very grateful. Looking forward to a year of less pain and lots if happiness ahead!
chiari - decompression - shunt - syrinx - hydrocephalus - brainsurgery - chiarimalformation -
brynn36 : Are you one year today?? I'm 2 years today! We have the same anniversary!!!
tiffiniemae : @brynn36 yep, we have the same anniversary! I'm one year in! How are you doing? I has my decompression a year ago and in May I has a VP shunt put in for hydrocephalus.
mjjdnani0307 - dime_143 - justforlife2003 - genap -
instagram
sionnaine13
I absolutely adore this pic. T's nana took it when he spent the weekend with her and poppa. He looks like his big bro at 3, scuffed knees and allπŸ’š #latepost #son #lovehim #cerebralpalsy #hydrobaby #hydrocephalus #swing #thatsmile #cantdowhat? #milestone
hydrobaby - thatsmile - latepost - swing - hydrocephalus - son - cantdowhat - milestone - lovehim - cerebralpalsy -
carolinjteodora - smitty_gram13 - missdanielle_24 - paulatobe__ -
instagram
junebugsmomma
When Kelle Hampton (@etst)launched a campaign for NDSS and the inclusion of all children, I was inspired. For months, I wanted to support #hydrocephalusawareness and all abilities and design a tee. Finally, it dawned on me. #anchors. I'm excited to launch a campaign close to my heart in more ways than one. All proceeds will go toward our walk in honor of my #sweetsavannahmae. Youth sizes will be available tomorrow. Please help us raise awareness for #hydrocephalus and support #abilities Link in latest blog entry:) #beyounique
beyounique - specialneeds - hydrocephalusawareness - sweetsavannahmae - teespring - anchors - allabilities - hydrocephalus - abilities -
junebugsmomma : #allabilities #specialneeds
ashleyvsherwoodsmith : Really neat Lacey! Love the words and the design! I will be ordering a couple :)
junebugsmomma : Thanks! @ashleyvsherwoodsmith
junebugsmomma : #teespring
thestoneco - kelliu14 - e_borggie - jennzboyz -
instagram
shirley_rocks87
Come join Team Jared for our fundraiser event at Market Place on August 10th!!!! #teamjared #shuntsquitwedont #fundraiser #donate #specialneeds #cerebralpalsy #hydrocephalus #strokesurvivor
specialneeds - donate - teamjared - strokesurvivor - hydrocephalus - fundraiser - shuntsquitwedont - cerebralpalsy -
shirley_rocks87 : If you want to donate or attend please let me know!!!
junebugsmomma : I just started a hydro awareness campaign. It last 21 days so shirt would not be available right away? I could donate a shirt? Or I could donate a hydrocephalus bow/hair clip?
shirley_rocks87 : Anything you can do would be greatly appreciated!!!! @junebugsmomma
shirley_rocks87 : And to everyone else, if you can't make it, you can click the link in my bio to donate!
supfreckles : I too have a special need child i think this is so amazing and beautiful ! Would attend if i am not working
shirley_rocks87 : Awesome @supfreckles are you from around here??
supfreckles : Yea i live in danbury @shirley_rocks87
shirley_rocks87 : @supfreckles nice! Hopefully you'll get to come!
natcoker69 - nicolemarie_25 - solelymanouche - alinne.netto -
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ktpie4141
SO happy to have my Miracle Baby home lots and lots of snuggles for this sweet boy πŸ‘ΌπŸ’™ #miraclebaby #supercam #camspam #hydrocephalus #vpshunt #veinofgalen
veinofgalen - miraclebaby - vpshunt - hydrocephalus - camspam - supercam -
tinkandkey : @ktpie4141 😘😘
nicolercortes : Aww he's so handsome! How is he doing and how are you doing? Love your shirts!
mrskate_compton : I keep coming back to this. I just love you guys so much. 😘😘😘
ktpie4141 : Thank you girls!!! @shellyjelly @insta_mia
ktpie4141 : I know! He is the sweetest @jessicao124
ktpie4141 : Thank you! We are doing good! Happy to be home that's for sure :) @nicolercortes
ktpie4141 : @aww we love you tooooo @mrskate_compton
ktpie4141 : Aw thank you so much! Tell Hankie we said hi!! @jessicaj_smith
krystalbear25 - chevellelove_her - nicolemm82 - kthomp38 -
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