identical - preemies - love - brothers - monodi - identicaltwin - pacc - son - baby - preemiepower - preemie - 33weeks - pregnancy - junebaby - acc - boy - brother - niculife - nicumom - hydrocephalus - twining - tiny - twinsofig - twins - babies - mother - 2014 - monoditwins -
77zee : Aww😢😊😊👶👶
saradical : Brothers hand is extra tasty today hehe 👬😘😍
alishacassandra : 😍
brown_beauty_40 : @teeflo74 awww
hurricanekiki : So absolutely in love they are beautiful
scorbin76 : Beautiful!!!
dgonzalesrn : Just saw this and now I'll watch it like a million times!!! That's Easton right? He's a good boy to be sucking and looking for food!!! @cleaneating_sassy
cleaneating_sassy : #preemie #preemies #33weeks #2014 #babies #baby #boy #son #twins #twining #brother #brothers #hydrocephalus #nicumom #niculife #mother #junebaby #pregnancy #identical #identicaltwin #monoditwins #monodi #tiny #love #preemiepower #acc #pacc #twinsofig
twisted_dad - love2wo - meganac16 - stephanie_gonzales -
| silly girl 😂 | #faceofhydrocephalus #hydrocephalus #autism #lovelondon #londonb #teamlondon #hydrobaby #epilepsy
epilepsy - hydrocephalus - faceofhydrocephalus - londonb - hydrobaby - lovelondon - teamlondon - autism -
iron_addict33 : Her fake ass lol @keey_leauxsteez
keey_leauxsteez : Lol @iron_addict33 you hear this laugh though ?!? She's laughing because I'm holding up her foot and sniffing it lol
iron_addict33 : Lmao oh wow y'all weird @keey_leauxsteez
keey_leauxsteez : @iron_addict33 hating ?! I think sooo
keey_leauxsteez : @mizbprettyred
brown_suga9627 - creatednotmade_ - ms_morganp - duccmane -
Daddy entertaining LC while we waited earlier today. We found out that she is for sure deaf in her right ear, severe hearing loss and 50-60% moderate deafness in her left. We were pretty sure she was hard of hearing so it wasn't a shock or anything. Oh, Charlotte, you're taking us on the ride of our lives. #hydrocephalus #dandywalker
junebugsmomma : Aww, heartbreaking though. I love your attitude. She is beautiful and her happiness from the love you give her will make your journey even more beautiful.
mishmariep : Xo
adrimorrill : You are wonderful and have such a great attitude. Love being around you guys.
dolciem : Aw man Christa, that must have been some pretty tough news to take in. As someone who just took an aural rehabilitation class, I have so many questions! All I can say is that Charlotte is a lucky little lady to have you two as her advocates. Just do your research with all of the options the doctors give you, you will ultimately make the best decision for your family no matter what the opinions of others may be. You can do this!
annadparker - mishmariep - mal_weeks - seanessy_watson -
Ice Bucket Challenge complete. Along with donations to #ALS, #hydrocephalus, #foundationfightingblindness and #pcos awareness. Last summer we donated money to 3 causes that are special to us in honor of those who attended our wedding. I think we found a new summer tradition!:-) #giveback #awareness #icebucketchallenge
pcos - icebucketchallenge - foundationfightingblindness - giveback - hydrocephalus - als - awareness -
lindzeynicholson - jaymethornton23 - bexta2010 - tinabobina1234 -
This girl shed some tears at the park today. She wanted to climb the last few steps to get to Roman who was sitting at the slide. She started crying and said "Mama I can't do it. I scared" Roman and I encouraged her and I helped lift her legs. She said "I'm almost there!" and exclaimed "I did it!" when she got to the top. She has been having more fears lately and will question her ability to do something . Our family is always by her side encouraging her. We push her to the best of her ability, with lots of love & confidence she can do it. #spinabifida #hydrocephalus #afos #physicaltherapy #tiedye #vscocam #iphone5
ma20166 : Oh and she has wicked upper body strength. Look at that arm!
erniebufflo : Lately, Claire often says "I need help" before even trying. Working a lot on getting her to try before we intervene.
ma20166 : @erniebufflo I think people who don't know her situation (like random people at the park) may think I'm being too hard on her. She'll ask me to carry her and I tell her that she can walk. Most of the time she just needs us to tell her she can do it. Sometimes she melts down (typical toddler). I had a PT tell me once that kids with SB need to continued to be pushed. Obviously I'd never ask something of her that was not feasible, but I know she's capable more then she knows she is.
kristencharlini : Oh, her sweet words made me tear up! We had a similar experience at the orthotist last week (I'll blog about it--too long for IG). Our girls are so much braver than they know!
leia2mkconner : i really like this picture
believe_dmb41 : 💪💪
ma20166 : @kristencharlini Can't wait to hear about it!
lilah_and_the_city - believe_dmb41 - shannon_s57 - savmardav -
Today this little man went into surgery for a shunt revision! I am anxiously praying for you bud! He is such a strong little guy! He's my inspiration ☆ #hydrochepalus #spinabifida #ianarmandoherrera #praying
chellelovee12 : #hydrocephalus
goinsky - lela_815 - olivialashai - lorilynn_nicole -
lydiablackmore - davemaydew -
bsnffc - wheelsoffire2014 - davemaydew -
She is an A+ traveler! Fifteen round trips, all to Kansas except for one trip to Cali and she has been a very easy traveler. #sheisthebest #specialneeds #hydrocephalus #corticalvisualimpairment #sweetsavannahmae
dmcsaf - tiffany.healey - janalynnie - teej4 -
Doing some walking today! #goeastongo #teameaston #hydrocephalus #spinabifida #walking #walker #physicaltherapy
lbendik6301 : Very nice! I also have sb but have never walked on my toes like that. Can you explain? @jst13
ray_slate - molliechessor - sarahxsloaner_ - robertsdddz -
If I'm going to get my strength back, I have to start eating like an athlete again... Starting with farm eggs and sausage, and coffee with @kerrygoldusa butter and coconut oil. And my journal.... Yeah. Control what you can control. Keep pushing. #struggle #stayheartstrong #nevergiveup #hydrowarrior #hydrocephalus #shuntlife #recovery @boo_her @andi_wollen @courthouseperformance @klg0715
tmeireis1556 : @amy_booher can you taste the coconut flavor when you cook with it?
amy_booher : @tmeireis1556 in the coffee I don't taste the coconut... But that's because I've got the other stuff in there too.. I blend a hot Americano with 2tbsp grassfed butter, 1 generous tbsp of the coconut oil, a splash of raw maple syrup, and a little vanilla and cinnamon. You blend that up in the blender and it is so amazing, like a spiced latte but really rich. I'm not a fan of the coconut oil for most cooking, because I don't like that sweet flavor it gives (on eggs, vegetables etc) try the coffee!!
tmeireis1556 : @amy_booher thanks! I keep wanting to try it in different things but hesitate for that reason. :) I'll try the coffee suggestion. It sounds delicious!
tmeireis1556 : @nutmegmonster you should try this coffee with BP. Sounds like something you both would enjoy!
andi_wollen : You've got this!! Be badass everyday!!
gummie8614 - iammariamorales2013 - biggin1301991 - powpowprrmeow -
#repost and #throwback to #2013 Painting faces at the #MickeyMouse and #MinnieMouse themed year - end party for Developmental Clinic child patients at Dr Yusuf Dadoo hospital 💟🎈🎀 (with our faces painted😆) #physicalrehab #selfReward #preciousMoments #littlefaces #CerebalPalsy #autismAwareness #downSyndrome #underNutrition #hydrocephalus #patients #makeThemSmile #love #goodness 🐥
mickeymouse - love - littlefaces - makethemsmile - goodness - throwback - autismawareness - minniemouse - repost - physicalrehab - downsyndrome - preciousmoments - undernutrition - hydrocephalus - selfreward - patients - cerebalpalsy - 2013 -
shakeel_keelo : Aww Miss Mickey now ;)
shehnazoo : 😂 oh what good memories! I'm planning on bunking work and going to this years end of year party... You in?
nasreen_ismail12 - ruheehoosain - safiyyahdabhelia - raddiyyah_gangat -
My #nephew goes in for his 7th #surgery today.. It's never over for a #hydrokid. #hydrocephalus #operation #goodthoughts #hershey
shad711 - rachel_derman -
policeofficerslostinthelineofduty - huntingtonsdisease - antibullying - childabuseprevention - followforfollow - glassbeads - support - hope - bracelet - hydrocephalus - cerebralpalsy - customjewelry - coloncancer - dystonia - ribbon - raiseawareness - follow - reyessyndrome - crimevictimsrights - awareness -
beads4acause : #follow #followforfollow #customjewelry #raiseawareness
sam_writes : Very cool mission ♡♡
beads4acause : Thanks love 💋💙 @sam_writes
beads4acause : #hydrocephalus #coloncancer #cerebralpalsy #crimevictimsrights #dystonia #reyessyndrome #antibullying #huntingtonsdisease #policeofficerslostinthelineofduty 💙
infinitesmileproject : Like it!
beads4acause : Thank you, the beads are gorgeous in person this is one of my favorites :) @infinitesmileproject
novelist_mutima - fedendogan - raamkrishna - sam_writes -
bandsarelife1323 : Love you Amy! Praying for Alex!
shes_loved__ : Love you too! Thanks! @bandsarelife1323
bandsarelife1323 : No problem! :) see you tomorrow! @shes_loved__
y_a_m_i_l_e_t_ - __smokey__16 - marek_long - genesis.mejia -
lot801 - xo_jessave - jenniferlgarcia7 - nisa_starchy1 -
Meet hydrocephalus: #igersofmn #mallofamerica #walkforacure #elsaspack #hydrocephalus #pediatrichydrocephalus #shuntlife #epilepsy
mallofamerica - epilepsy - hydrocephalus - pediatrichydrocephalus - shuntlife - igersofmn - elsaspack - walkforacure -
gummie8614 - olivesandsprigs - nikirobisonbrows - dmsiggens -
Finally. ..got Jordan #answering the question "What does a #cow say?". We #tried this the other day and he was being #silly and kept saying Hi! #makingstrides #proudmommy #hydrowarrior #hydrocephalus
tried - cow - answering - hydrocephalus - anythingispossible - hydrocephalusawareness - silly - hydrowarrior - makingstrides - proudmommy -
beads4acause : My goodness that sweet little face 😍💙
dmcsaf : @beads4acause thanks
fitmom90 : @dmcsaf Awww...good job!
dmcsaf : @fitmom90 I don't know if you saw the video I posted earlier this week posing the same question and he kept saying Hi. It was funny. Little things like this make me so happy because we were told he would have cognitive delays, another doc told he'd never talk. He's also missing his corpus callosum in his brain so this just goes to show how wonderfully adaptable our brains are! #anythingispossible #hydrocephalusawareness
frenziedfraggle : What does the corpus callosum do?
fitmom90 : @dmcsaf yes, I did see the video from earlier in the week. So funny how kids will do stuff like that but the you turn on the camera and they don't cooperate. He seems to be doing well! Yes, it's so amazing how the brain/human body adapts. Your little boy is a fighter!
dmcsaf : @frenziedfraggle , to answer your question, it allows the different parts of your brain to communicate with each other
beads4acause - katiechiavarone - ilovenyc2006 - karabearaa -
bailey_bunn3 : That is the sweetest things that made my entire day
kamdyns_momma : That was the sweetest thing. 😍 love him!
owlfit : This guy! 💘
__hasiba__ : Thats so cute :)
krystles7 - dameeyola - owlfit - christymaines12 -
September is hydrocephalus awareness month. I was diagnosed at 13 months old. I really wish there was a cure already #hydrocephalus #awareness #findacurealready
_b_3_r_n_i_3_ - bigdadddyroma - caitywho01 - roflatmeg -
Yay for mail day! Got Cams new cause and effect toys and new therapy ball in today!! Now time to play 👶💙😊🎹 #supercam #camspam #physicaltherapy #occupationaltherapy #hydrocephalus #veinofgalen #hemiplegic
occupationaltherapy - physicaltherapy - hemiplegic - hydrocephalus - camspam - supercam - veinofgalen -
mommymclean : Nice! Liam hates our therapy ball. But it works wonders!
chevellelove_her : That face is just too cute! :)
chelseahyndman : Jamison does well with his therapy ball!! Is that one shaped like a peanut or regular?
shellyjelly - chevellelove_her - janalynnie - carriehoffrogge -
4lovesbabies - andyandvel7 - minassssssassss -
My little fighter☺️, 2 surgeries in the first 12 days of her life- she's so strong it's unbelievable. I'll forever love you baby girl #spinabifida #Myelomenigocele #Hydrocephalus #spinabifidaawareness #Myelomenigoceleawareness #Hydrocephalusawareness #vpshunt #shunt #brainsurgery
myelomenigoceleawareness - hydrocephalus - brainsurgery - myelomenigocele - hydrocephalusawareness - spinabifida - vpshunt - shunt - spinabifidaawareness -
rudelladeville : 😍🙌👏💪💖👶🎀👑
rudelladeville : how long did she have to stay off her back after her myelo repair @gummie_spinabifida
gummie8614 : They kept her off about a week @rudelladeville
goddessemmz - rudelladeville - onna_monroe - bianca_graves -
hydrocephalusawareness - lovemyniece - raiseawareness - squaready - hydrocephalus - hydrocephalusribbon -
ovo_xo_vero : #HydrocephalusAwareness #HydrocephalusRibbon #Hydrocephalus
jazalynrivera - honeydip_xoxox - rtl371897 -
First day of school! #AlexandraLouise is ready to tackle middle school and the 6th grade, #LorelaiLeigh is stoked to be a 4th grader, #ElsaLelise and #ElisabethElva are ready to rock the 1st grade! Meanwhile, @greenstan is looking forward to getting the house organized again after an awesome summer! How did I get so lucky to have these amazing girls as daughters?? #firstdayofschool #Kennewick #ihavefourdaughters #sisters #bestfriends #blessed #Sorensonsisters #specialneeds #hydrocephalus #microcephaly #cerebralpalsy #adoptionawareness #adoptionrocks #love #hitthebooks
specialneeds - love - kennewick - blessed - elsalelise - lorelaileigh - microcephaly - sorensonsisters - adoptionawareness - alexandralouise - sisters - elisabethelva - firstdayofschool - hydrocephalus - bestfriends - photobombgiraffe - ihavefourdaughters - hitthebooks - adoptionrocks - cerebralpalsy -
el_donaldo : Thanks! @scrambled_egs @maytje75
stacibhenry : So cute. You guys have a great family!
lisajking : Gorgeous girls
meesh1979 : #photobombgiraffe
el_donaldo : Haha! Good call @meesh1979!
el_donaldo : #photobombgiraffe
el_donaldo : Thank you @stacibhenry! I can't believe you guys have a high schooled now!
el_donaldo : Thanks @lisajking!
monicasullivan1 - mariahwagar - jenwoods5 - leahteah77 -
#support #fundraiser #seandeescents #hydrocephalus seandee.Scentsy.us order under the hydrocephalus fundraiser party. #thanks or your support!
My therapist reminded me of of this simple and somewhat cliche mantra last night... Sometimes all you can do is #battle one day at a time. The #struggle is real, people. Caught between who you are, and who you should be, how you feel, how you want to be, and how you used to be. I can't live in the past- I'm a waaaay better version of myself now than I ever was before, it's just different. Trying to be ok with that. I love my life, I love @boo_her and I will fight forever, for what's important. #hydrocephalus #shuntlife #stayheartstrong #nevergiveup #relentlesspursuit
amy_booher : @lalalalinds_ thanks Lindsey. ((Hugs))
nikihargitt : @amy_booher you are such an inspiration to me with my battles and upcoming surgery!! You are amazing!!
andi_wollen : Absolutely hands down - one of the most inspirational, beautiful, strong, and badass woman around! You've got this!!
amy_booher : @nikihargitt 💗💗💗
amy_booher : @andi_wollen 😘 love you
irisespino : I'm considering seeing a therapist... do you recommend that? It seems to be going well for you. ☺
why_charlie : @amy_booher beautiful words! 💕
amy_booher : @irisespino yes, very much. It helps me a lot. Good to have a neutral party to bounce things off...
dmcsaf - 11.kimruiz.11 - bo_peep_xo - carlicc11 -
#augustphotochallenge #day #26 #siblings #sister #love #her #hydrocephalus #meningocele #awareness #old #photo #favourite
26 - love - her - favourite - photo - hydrocephalus - sister - meningocele - old - siblings - augustphotochallenge - day - awareness -
perfectionsenemy - bunnypchina - kjy224 - clarkie09 -
mallofamerica - branding - hydrocephalus - pediatrichydrocephalus - kellygdesign - igersofmn - elsaspack - walkforacure - graphicdesign -
kellygdesign_creative : #graphicdesign #kellygdesign #branding #igersofmn #mallofamerica #walkforacure #elsaspack #hydrocephalus #pediatrichydrocephalus
spread_the_thread : Nice!
kellygdesign_creative : @spread_the_thread: thanks!
dappergoat : Love it!
sabrinaehlisbrows : This brings back memories. My daughter was a miracle and avoided a shunt. God definitely intervened.
amy_booher - matharrison - weprintforyou - lizzyozz -
I love #seeing the #world through Jordan's #eyes. #curious #persistent #nevergiveup #whatisthatmommy #park #swinging #joysofatoddler #hydrowarrior #hydrocephalusawareness #hydrocephalus #keepfighting
seeing - eyes - keepfighting - world - nevergiveup - park - hydrocephalus - persistent - hydrocephalusawareness - hydrowarrior - swinging - joysofatoddler - curious - whatisthatmommy -
natalieoram93 - brittsterxo - tuba_b - excuseme_whileikisstheskyy -
kalilbit - mistymaeheyyy - beyoutifuldeere -