nizakay
Hai Malam ni sy berjaga lagi .. #babyaldrian sorry mama...
hydrocephalus - babyaldriankuat - babyaldrian - hydrobaby -
nizakay : #hydrobaby #hydrocephalus #babyaldriankuat
joysyooky - shheydaa - serizain - shaa_sha -
instagram
bianca_graves
I'm not even gonna TRY to sugarcoat this one. I am DAMN proud of this latest achievement!! It's something I've been trying to do for YEARS. THIS is why I'm so passionate about working out & staying healthy. It might not look neat & perfect (YET!!), but 6 months ago this wouldn't have even been a POSSIBILITY. Best part? NO pain in my hips or ANYWHERE!!!
toofeisty - nevertakethingsforgranted - fighter - fitspo - fitspiration - nevergiveup - fitnessjourney - hydrocephalus - neuraltubedefect - determination - spinabifida - dedication - fitfluential - defyingtheodds - fitfluence -
bianca_graves : #spinabifida #hydrocephalus #determination #dedication #defyingtheodds #fitnessjourney #fitspiration #fitfluence #fitfluential #fitspo #fighter
nanan68 : @bianca_graves I have spinabifida, too. If you want to see my scoliosis, my brace and my other pictures here on Instagram, then please add me.
bianca_graves : #neuraltubedefect #nevergiveup #toofeisty #nevertakethingsforgranted
twylah92 : #spinaWHAT! #BeyondLIMITS
push.4.victory - nanan68 - adairmackenzie - frofitmoms -
instagram
piaottosen
#juletræf2014#hydrocephalus#hydrocephalusforeningen#kreativ#julekort#jul2014#engel#cafeapoteket#
julekort - jul2014 - kreativ - hydrocephalus - cafeapoteket - engel - hydrocephalusforeningen - juletrรฆf2014 -
instagram
hydromomma
A makeshift #cape and #daddysboots. Just a normal #Sunday night. #preemies #hydrobabies #hydrocephalus
preemies - hydrobabies - cape - hydrocephalus - sunday - daddysboots -
gigib1126 - launant - reannay - thefrontportch -
instagram
hydromomma
Some quality cuddle time with #pennylane #hydrobabies #hydrocephalus #preemies #cerebralpalsy
pennylane - preemies - hydrocephalus - hydrobabies - cerebralpalsy -
thefrontportch - launant - reannay - theother_guys -
instagram
believe12590
For over a year, this girl has been there for me when I needed her...she easily became a 3rd #sister and #BestFriend to me. Our hour long conversations for no reason when we have things to do couldn't be better, and our snorts make us #unique :) I love you Stef, thanks for everything ๐Ÿ˜š
sister - bestfriend - survivor - hydrocephalus - brainsurgery - overcomer - vpshunt - dreamfightbelieve - unique - devis - revision -
stefleopold : ๐Ÿ˜Š love you more!
believe12590 : #hydrocephalus #VPShunt #devis
believe12590 : #revision #BrainSurgery #survivor #OVERCOMER #DreamFightBelieve
clykn : sweeeeeet @VinesBeLike
cordell_is_awsome - joefnleo - rae__allen - kcristino3 -
instagram
junebugsmomma
Savannah Mae is 3 1/2 today!! We celebrated with a gingerbread cookie. A new blog post featuring some of her favorite things, and things I just love about her:) #sweetsavannahmae #hydrocephalus #corticalvisualimpairment #corticalblindness #specialneeds
corticalblindness - specialneeds - sweetsavannahmae - hydrocephalus - corticalvisualimpairment -
jen_lynn77 : Happy Birthday and a half Savannah. โ˜บ๏ธ
dreambiglittleones : ๐Ÿ™Œ๐Ÿ™Œ๐Ÿ™Œ
laurelannesherwood : Happy 3 1/2 beautiful Sav!
itsjustgia_ : Happy birthday savannah! ๐Ÿ’•
mrsjcox - heebygirl - tinkandkey - jennzboyz -
instagram
chronically_determined
My Nola bear. This picture says SO much! Nola is the kind of cat that doesn't like to be cuddled, and she only allows petting on her own terms. But, I've been so overwhelmed and exhausted this week that she's been sleeping right on my chest, with my arm over her stomach. She doesn't leave, she just lays there and loves me. I leave for NC for pre-op for my decompression surgery 3 weeks from today, and I'm super stressed with everything that's going on with the preplanning, fundraising, getting my work caught up, etc. I've hit a wall, and I've been fighting tears and panic attacks -- so not like me. Nola knows. My baby doll. ๐Ÿ˜ป #NolaCat_IN #tortie #tortoiseshell #catstigram #petstigram #adorable #mylove #chiarimalformationawareness #fightlikeagirl #chronicpain #chronicillness #lifeofaspoonie #spoonielife #spooniesisters #chroniccondition #hydrocephalus #posturalorthostatictachycardiasyndrome #pots #mylife #conquerchiari #chiaristrong #invisibleillness
chronicpain - conquerchiari - tortie - petstigram - catstigram - fightlikeagirl - hydrocephalus - spoonielife - chiarimalformationawareness - mylife - lifeofaspoonie - chronicillness - spooniesisters - posturalorthostatictachycardiasyndrome - invisibleillness - pots - chroniccondition - mylove - nolacat_in - tortoiseshell - adorable - chiaristrong -
rosey088 - smiling_spoonie - rock_a_duckie - accessoriesaddict1999 -
instagram
carjenvaz
Raising #awareness for #Hydrocephalus #PediatricHydrocephalusFoundation #AnnualPastaDinner #Fundraiser
fundraiser - annualpastadinner - hydrocephalus - awareness - pediatrichydrocephalusfoundation -
nini045 -
instagram
lucky_year
Best friends! #kingcharles #brotherfromanothermother #love #protector #bestfriends #brothers #dog #baby #spaniel #hydrocephalus
love - brothers - hydrocephalus - dog - brotherfromanothermother - spaniel - bestfriends - baby - kingcharles - protector -
mario7810 - simply_tiger - malisaibtrimarchi - luckydoggi -
instagram
xxx_amyb_xxx
๐Ÿ‘Œ๐Ÿ‘Œ๐Ÿ‘Œ๐Ÿ‘Œ #tylerlee #hydrocephalus #cure #wish #christmas #hydro #shunt #son #soldier #blueribbon
tylerlee - shunt - blueribbon - wish - hydrocephalus - son - soldier - cure - christmas - hydro -
clint58 : ๐Ÿ˜˜
xxx_amyb_xxx : โค๏ธ @clint58 xx
amandaking1961 - randallking1986 - journeyappstore - jadehunt89 -
instagram
eringarson
I'm going home today! After a very tough shunt surgery, and many highs and lows, I finally get to go home and see my family and friends and begin my recovery. I could not be more grateful for a hospital. SickKids has the best doctors and nurses in the world! My doctor did everything in his power to make me better and I'm hoping this will be it for a long time. Bye for now SickKids, I will see you soon London. Time to begin my recovery. ๐Ÿ’ช๐Ÿฅ๐Ÿ™๐Ÿ’™๐Ÿ˜ญ #sickkids #hospital #road #to #recovery #tough #week #recovering #neurosurgery #ready #to #be #home #relentlesspersuit #hydrowarrior #hydrocephalus
week - sickkids - tough - recovery - recovering - be - hospital - hydrocephalus - to - neurosurgery - hydrowarrior - relentlesspersuit - ready - home - road -
specialchild0604 : Hopefully your shunt works now ๐Ÿ˜„
xodannyxo96 : Your an amazing girl hope all goes well wish I could have seen u
sendasc - conway.lucy - oliviagould_2 - futuremrsbiebs -
instagram
calibhayley
My little boy #dandy-walker#hydrocephalus#my world # son # autism# hypomobilety#
dandy - hydrocephalus - my -
lihabonfio - _beckyyy_babex - cduperre30 - caitlin_finlay -
instagram
melissamay1992
My beautiful friend Demi has hydrocephalus and she is the most amazing, strong young lady I know! Miss you so much @demirose213 I'll see you soon ๐Ÿ’œ stop growing up!! #hydrocephalus #awareness #warrior
warrior - hydrocephalus - awareness -
ks.ashley - demirose213 - paige_lmml - legaultcallie -
instagram
ktpie4141
So happy to be home with my boys! We are still giving Cameron Tylenol to manage the pain but other than that he is doing great :) Happy Sunday ๐Ÿ™โ˜€๏ธ๐Ÿ’™ #supercam #camspam #veinofgalen #hydrocephalus #hemiplegia
hemiplegia - hydrocephalus - camspam - supercam - veinofgalen -
fabulousmimi22 : I am so happy that he is home!!!!!
ktpie4141 : I know right!! @niffer_rose
ktpie4141 : Aw thank you ladies โ˜บ๏ธ @julymel @chornish
ktpie4141 : Me too lol ๐Ÿ˜„๐Ÿ™ @sjv721 @fabulousmimi22
ktpie4141 : Yes the swelling went down so much!! He is on a diuretic so that helps :) @mommymclean
nicolercortes : He looks great!! So glad to see he's home!
cameron_stimson : Yay! So happy you're home and he's doing well! Praying he continues to feel even better!!
ktpie4141 : Thank you both for all the prayers ๐Ÿ™๐Ÿ’™ @nicolercortes @cameron_stimson
chevellelove_er - cameron_stimson - gabrielllesanchez - 88zengirl88 -
instagram
nizakay
Superheroes always had something power built in their body, like my Superson too.. #babyaldriankuat keep strong baby boy. #bintangaldrian #hydrobaby #hydrocephalus #shuntbaby #shuntlife
shuntbaby - hydrobaby - bintangaldrian - shuntlife - hydrocephalus - babyaldriankuat -
aidaseblie : Be strong deng
fishfirdauz : Semoga Allah permudahkan semuanye. ..
hazeeyanahazlyn : Bby... Minum susu mama sihat dan kuat ya? Go aldrian go! ๐Ÿ˜˜๐Ÿ˜˜ @nizakay
fishfirdauz - shheydaa - shanana07 - ad_yil -
instagram
chs83
When did she get so big?! She is growing up so fast! #preemie #hydrocephalus #hydrowarrior #Maggie #mitguld #loveyouprincessforeverandever #stopgrowingupsofast
maggie - hydrowarrior - loveyouprincessforeverandever - preemie - stopgrowingupsofast - hydrocephalus - mitguld -
stinemoooor - loulieandersen - sskeffington -
instagram
anthonibeswick
#asthma #ASD #chronicillness #costachondritis #depressed #depression #hydrocephalus #headache #hernia #gastritis #gastricreflux #invisibleillness #chestpain #chronicpain #migraine #vpshunt
chronicpain - gastritis - asd - hernia - chronicillness - depression - asthma - invisibleillness - depressed - hydrocephalus - migraine - gastricreflux - costachondritis - vpshunt - chestpain - headache -
lorienr : I've been trying to get to the bottom it~~I'm outta places to look @anthonibeswick
skittishwolf : I don't think it ever will its just getting to be to much!
kristina_sixx - chronicallyfabulous - chronically_fabulous - xevanescencex -
instagram
dmcsaf
Jordan figuring out how to get up in his #chair. Once he does it he says "up, up, up" he loves it. He's doing so awesome! #hydrocephalus #hydrostrong #hydrowarrior #toddlerlife #mickeymouseclubhouse #rockingchair
hydrostrong - toddlerlife - rockingchair - mickeymouseclubhouse - hydrowarrior - chair - hydrocephalus -
mrsautumnx : He's too cute!!!
dmcsaf : @mrsautumnx thanks!
instatoddler - mrsautumnx - clouds_85 - teachpreschool -
instagram
junebugsmomma
This is real life for us!:) We are a happy little family who has a hard time capturing a great family photo. All smiles, trying to keep this squirmy little girl from jumping out of our arms. It's one of my favorites because it is real, however, it will probably not make our annual Christmas card. #sweetsavannahmae #hydrocephalus # corticalvisualimpairment #corticalblindness #specialneeds #family
corticalblindness - specialneeds - sweetsavannahmae - hydrocephalus - family -
jennzboyz : In the moment are the best!โค
sionnaine13 : It's a great picture. You should use it for the Christmas card :)
jennzboyz : Have you seen @i_luv_sum1_with_hydrocephalus on IG? Saw this on someone's feed & thought of you:)
jennzboyz : @junebugsmomma
i_luv_sum1_with_hydrocephalus : Have k s
i_luv_sum1_with_hydrocephalus : Sorry have I seen what ?
jennzboyz : I just saw an IG user & that is her IG name:) @junebugsmomma She has a daughter w/ hydrocephalus too
junebugsmomma : Thanks @jennzboyz
amandacae - jennzboyz - ryydzia - retal_08 -
instagram
emiliemweber
Finn learned how to "say" more today!! #proudmomma #babysignlanguage #smartboy #hydrocephalus
babysignlanguage - smartboy - hydrocephalus - proudmomma -
mparkercr : So proud of my Bubs!!
brittniehelton : He is so so so cute!
katiemiller1212 - cassiweber - mparkercr - lita2twins -
instagram
kellydobson_
110% Gonna get this tattooed on me! #hydrocephalus #awareness #little #sister #proud
little - proud - hydrocephalus - sister - awareness -
ashleeteeson - becksspecks - linseyyg - _millie_may -
instagram
lifewithlouiebutt
@aad_345 and @rochelle32101 - I found it on Etsy for $20!! ๐Ÿ˜๐Ÿ’™ #hydrocephalus #hydrobaby
hydrocephalus - hydrobaby -
aad_345 : I see! โ˜บ Get him one, so our hydro babies can match! Lol hopefully @rochelle32101 gets Mikey one. ๐Ÿ˜๐Ÿ˜
lifewithlouiebutt : @aad_345 yes! Thatd be so cute.๐Ÿ˜๐Ÿ˜
prayersforellie : That's awesome!!
rochelle32101 : I am. Just haven't had a chance. I love it.. ๐Ÿ˜๐Ÿ˜๐Ÿ˜
rochelle32101 : @aad_345 ๐Ÿ‘†
hydromommy_ : Love it
kelllywillliams : Oh my god this is so damn cute, Louis is a rock star girl! And you are one strong mama๐Ÿ’–
cloud0086 : Aww Hydro-Triplets!!! ๐Ÿ˜๐Ÿ˜๐Ÿ˜
mommytomckinley - ejsmyworld_ - lovingbabybentley - slut_please_carysisfab -
instagram
jocey_rae24
After #surgery #hydrowarrior #hydrocephalus sucks! #shunt #haircut #poorbaby
hydrowarrior - shunt - poorbaby - surgery - haircut - hydrocephalus -
michaelbjoralt - bobbi_nichols - blueeyegem - viniciosnery -
instagram
anthonibeswick
#asthma #braindamage #costachondritis #chronicillness #depressed #depression #gastritis #gastricreflux #hernia #headache #hydrocephalus #hydrowarrior #invisibleillness #migraine #spoonie #newspoonie #chestpain
braindamage - newspoonie - gastritis - hernia - chronicillness - depression - asthma - spoonie - invisibleillness - depressed - hydrocephalus - rd - migraine - hydrowarrior - gastricreflux - costachondritis - respiratorydepression - chestpain - headache -
anthonibeswick : #respiratorydepression #rd
travel.and.style - ms_aliscia - kevinvondambers - chronically_fabulous -
instagram
maryam_hero
Hydrocephalus due to anatomic obstruction (brain tumor) #hydrocephalus , #braintumor ,#internalmedicine
braintumor - internalmedicine - hydrocephalus -
golekhaki68 : ฺ†ู‚ุฏุฑ ุฎูˆุดฺฉู„
maryam_hero : ๐Ÿ˜‰๐Ÿ˜‰
nice2h - arruman - arash.rahimi93 - hadiakhlaghi -
instagram
krystal_dsdkzk
Back with my baby! Missed him so much. My other cherubs are loving being spoilt by everyone. Hanging with mum is so lame now! :-( #kids #kolby #hydrocephalus #hydrowarrior #shuntproblems
shuntproblems - kids - kolby - hydrocephalus - hydrowarrior -
kelly_sanders88 : @krystal_dsdkzk hows he going? Are u guys still in hospital?
krystal_dsdkzk : Yeah still here @kelly_sanders88 . Maybe til Thursday. He is getting kind of better
kelly_sanders88 : Poor lil mite.. his def in the best hands tho for the time being, gwt some rest and some sleep luv :) xo
mrsccrichton : If he wanted a smooch off me he can just ask! ;) silly sausage xo xo
kyliegv : Gezzzz the little guy having a bad run of late hope you guys are home soon
kelly_sanders88 - amyfowler6 - mrsccrichton - samolovov111095 -
instagram
hydromomma
This sweet, sweet boy is all mine. I am so lucky. #hydrobabies #hydrocephalus #preemies #cerebralpalsy
preemies - hydrocephalus - hydrobabies - cerebralpalsy -
spraypal : ๐Ÿ˜๐Ÿ˜๐Ÿ˜
jmael12 - amie71081 - amindasmom - csavu21 -
instagram
mariselam08
#repost from @_rockb My son Korey is our Super Hero he has been through a lot in his life, This drawing of korey in his wheelchair dressed as batman is a message to all That no matter the situation your in, Don't let nothing stop you from reaching your Goals!! Thanks a lot to my friend @mariselam08 for creating this great art work ๐Ÿ™๐Ÿ‘๐Ÿ’ฏ โ™ฟ๏ธ #batman #superhero #cerebralpalsy #dystonia #hydrocephalus #specialneed #hero #art #artist #greatwork #wheelchairhero #blessing #prematuritymonth #teamkorey ....THANK YOUR FOR HAVING ME DRAW THIS OUT FOR YOU!!!! ๐Ÿ˜Š
art - superhero - artist - batman - blessing - hydrocephalus - wheelchairhero - hero - greatwork - specialneed - dystonia - teamkorey - prematuritymonth - cerebralpalsy - repost -
millzie_smith23 : This is so amazing
colorblind_tony : That is awesome!
mariselam08 : @millzie_smith23 Thank you! โ˜บ๏ธ
mariselam08 : @colorblind_tony Hey ๐Ÿ˜Š Thank you!
cesar_v07 - leticia_ruiz - ace___14 - cheryllinah -
instagram
afriend_likeme
Hello Loves, please check out my KickStarter for "A Friend Like Me!" Please help me to bring a smile to these little, beautiful faces by donating to an amazing cause! All of your donations will go towards the manufacturing of the dolls and their accessories. Please know that no amount is too small, I'm grateful for any amount! FOR THOSE THAT HAVE ALREADY DONATED, THANK YOU SO MUCH FROM THE BOTTOM OF MY HEART!!!!! ๐Ÿ˜˜ PLEASE SHARE THIS LINK WITH OTHERS!!!!! The link is https://www.kickstarter.com/projects/afriendlikeme/a-friend-like-metm #Cancer #Autism #Leukemia #BreastCancer #Lupus #Military #Dwarfism #HIV #Hydrocephalus #Stuttering #CleftLip #SickleCell #MaleDolls #FemaleDolls #AFriendLikeMe #AnyIllness #AnyDisability
femaledolls - hiv - leukemia - breastcancer - stuttering - autism - anyillness - lupus - cleftlip - cancer - sicklecell - hydrocephalus - afriendlikeme - anydisability - military - dwarfism - maledolls -
thadopest_kai - tiffbeautylove - emu420essentials - mo_moni914 -
instagram
pringlea
For anyone who is interested in Emma's progress with her chair. She has MASTERED it. Turns, backwards, any which way. She can do it all. I am so proud of her.
specialneeds - mobility - wheelchairkids - spinabifida - hydrocephalus - zipzac -
dannyjduff : Awesome.
michelleooten : She is SOOO cute!
stokesdogg : So sweet! I love it
ornelas_b : She's such a smart little baby.
anna_balcom074 : Omg thats so amazing! She is so smart!
deenahskiff : That's so cool! Great job little one!
janie_brow : Brought tears to my eyes. GO EMMA GO
iamadaptive : She beautiful!! Connect with other ADAPTIVE individuals all over the world and let us show you how ANYTHING IS POSSIBLE โค๏ธ
chadaharms - amandapandapoop - deenahskiff - britt13el -
instagram
eringarson
It's been a very tough week here at SickKids, many highs and many lows, but in the end I know it is to make me better. These are my bravery beads from this hospital stay, and I have 50 so far. Each test represents each procedure, poke, test, or scan I receive in hospital. Looking back over the week its been a long road, but I believe I'm finally on the road to recovery and surgery free for a long time. Hydrocephalus will never bring me down! ๐Ÿ’ช๐Ÿ’™๐Ÿ˜ท๐Ÿฅ #hydrowarrior #hydrocephalus #sickkids #hospital #braverybeads #recovering #nevergiveup #neurosurgery #relentlesspersuit
braverybeads - sickkids - recovering - nevergiveup - hospital - hydrocephalus - neurosurgery - hydrowarrior - relentlesspersuit -
vanzzchhan - kyrafarrelly - iggenspiggen - yunikesoedarmasto -
instagram
hunterpsurfer
Less than 24 hours after surgery and he is pushing out the doors!! So Brave and Strong! #SB #spinabifida #shuntproblems #spinabifidastrong #goinghome
porkchop - shuntproblems - hydrocephalus - unstoppableporkchop - goinghome - spinabifida - spinabifidastrong - sb -
shortness16 : What a little trooper!
stancelizabev : You are a rockstar kiddo!
rockinkumaka : So glad you're home!!! See you tomorrow!
shippnick66 : Brave kid
kierrrlake : Get on little man !! Your an inspiration to others !
calling_all_the_monsters : Wow your an amazing kid! You should be so proud of what you can do and never let anyone say you can't do anything because you can do anything you want! Your going to go far in life! ๐Ÿ˜˜
matteo_zumpano : Your so cool
stuntshark : Awesome! So good to see!!!!!
carlosxlokedxout - _taylahhh98 - skater_kid_188 - alvarocoutoesilva -
instagram
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