rain_dance_maggie80
This is the very brave @lukepaton tomorrow we are running #greatsouthrun for @shineukcharity .. luke is a very very dear friend and the strongest person we know.. xx please dig deep and give a donation text PATN91 followed by £10 or ur amount too 70070 xxx
hydrocephalus - greatsouthrun -
rain_dance_maggie80 : #hydrocephalus
leah_coley_xx - jay12015 -
instagram
lisa_sorenson
See the hump below Elisabeth's right shoulder? That's her spine. Due to her severe scoliosis she rarely finds the balance to sit unsupported anymore, but when she does, we cheer! Three cheers for Lizzy! #scoliosis #spine #curvedspine #syrinx #hydrocephalus #specialneeds #ElisabethElva
specialneeds - syrinx - spine - elisabethelva - curvedspine - hydrocephalus - scoliosis -
awaywithepilepsy : Woo hoo!
tarathompson57 : Good job girlie girl!! And I love her sassy giraffe pants! We are fans of animal print at our house!
smashpitcher : I am so glad you are back on here!
taniawc6 - ksmith7769 - stefamosa - stiffanykinn -
instagram
chronically_determined
OMG ๐Ÿ˜ณ INSURANCE APPROVED MY CHIARI DECOMPRESSION SURGERY WITH DR ROSNER ๐Ÿ’ฅโœจ๐Ÿ’ฅโœจ
chronicpain - conquerchiari - pots - fightlikeagirl - zipperhead - brainsurgery - spoonielife - chiarimalformationawareness - mylife - chronicillness - spooniesisters - posturalorthostatictachycardiasyndrome - invisibleillness - hydrocephalus - chroniccondition - lifeofaspoonie - chiaristrong -
chronically_determined : #chiarimalformationawareness #fightlikeagirl #chronicpain #chronicillness #lifeofaspoonie #spoonielife #spooniesisters #chroniccondition #hydrocephalus #posturalorthostatictachycardiasyndrome #pots #mylife #conquerchiari #chiaristrong #invisibleillness #zipperhead #brainsurgery
rosey088 : Woo hoo! Hope it helps you! ๐Ÿ’œ
rock_a_duckie : Yayayay!
imspikesmom - j_trammell - kronically_me - hannahkubi -
instagram
daylightfoundation
#SpinaBifidaAwareness #ASecondForSB #hydrocephalus #shunt #technology
asecondforsb - shunt - technology - hydrocephalus - spinabifidaawareness -
carlicc11 -
instagram
umbop85
#Bex #brave #hydrocephalus #cpp #gorgeous #littlemix #perrie #halfterm
perrie - brave - hydrocephalus - littlemix - bex - gorgeous - cpp - halfterm -
niamhygreenxx : Like for like ???? Xx
caitlin_louise4 : I are soooo pretty bex xx
kerryb603 : Lovely photo x
stephlyd - bernilau1 - topptrends - kelgrieve -
instagram
theblackruby
12/12/12..a day I will never forget,Never will the 12th of December , 2012,tally again in history...I decided to spend my day with the children of @ffajemilo foundation.It was my first encounter with them,I was 2nd runner-up Miss Nigeria at the time,so I decided to have a mini pageant for the girls,they were all crowned #queens .Seen here is Beautiful Latifat waving like a queen that she is to her fans..lol #hydrocephalus #spinabifida #festusfajemilofoundation
festusfajemilofoundation - spinabifida - hydrocephalus - queens -
rukky_inikay : Smiles
declectic : My charity baby!!!
alfyayo : Touching lives! Nice one girl
allyberry13 - eye_fee - mercybabs - teejay1607 -
instagram
shineukcharity
1000's of ppl are helping #ShineUKCharity raise AWARENESS 4 #SpinaBifida and #hydrocephalus today, by wearing yellow!
hydrocephalus - shineukcharity - spinabifida -
heidil1988 - amydilo - ridhaayu1004 - georgeebrawn -
instagram
theblackruby
Many thanks to @truppr_ team for allowing us use their platform to create awareness through fitness on their page, and going further to get permits, Latma, Ambulance etc etc..We are indeed grateful๐Ÿ™๐Ÿ™ follow them @truppr_ @ffajemilo 25th of October marks the worlds day for hydrocephalus and spina bifida. An awareness wall is taking place in lekki phase one, admiralty way, Come walk for a cause We meet @farmcity by 4pm.. The route we are taking is admiralty way. Please be informed #hydrocephalus #spinabifida #festusfajemilofoundation #beforeyouFrolic #GoFOLIC ๐Ÿ’ช
festusfajemilofoundation - beforeyoufrolic - gofolic - hydrocephalus - spinabifida -
truppr_ : We appreciate. Thank you
chinex05 - uchenabs - mnena04 - tifeashaolu -
instagram
hazella1995
#shinewyas @shineukcharity #hydroday wearing my shine tshirt today whilst at university to raise awareness for #hydrocephalus
hydroday - shinewyas - hydrocephalus -
instagram
shineukcharity
There are endless ways to show your support for #ShineUKCharity #SpinaBifida #Hydrocephalus
hydrocephalus - shineukcharity - spinabifida -
rims1008 : Tattoo?
shineukcharity - stephm1703 - mauconline - thorndalhenriksen -
instagram
theblackruby
Then beautiful Tike caught the eyes of @burnaboygram and he asked to meet her.She also has Hydrocephalus:this is a condition when there is an accumulation of cerebrospinal fluid in the cavities of the brain. It causes increased pressure inside the skull, convulsion, an enlargement of the head, convulsion, mental disability, and in worse cases death. # 25th october marks the worlds day for hydrocephalus and spina bifida Please come out and supporr these kids as they try to create awareness for the condition we converge at farmcity, at 4, by pavillion on admiralty way. #festusfajemilofoundation #hydrocephalus #spinabifida #beforeyouFrolic #GoFOLIC ๐Ÿ’ช
festusfajemilofoundation - beforeyoufrolic - gofolic - hydrocephalus - spinabifida -
olakunbi23 : Well done darling.... God bless you for this. You have such a big heart ๐Ÿ˜˜
lenuvo : Good work my love.... always proud of you.
theblackruby : Tanchuu bebe @susu_ni
theblackruby : Thanks mami...wish u could come @arese00
theblackruby : Thank U bebe, u would have loved tike..she is beautiful @olakunbi23
theblackruby : Thanks gorgeous๐Ÿ˜™๐Ÿ˜™ @lenuvo
topefnr : @theblackruby I'll what's app you
theblackruby : @ben_carson_
i_am_just_awesome - amysmum28 - declectic - zeelinski -
instagram
theblackruby
@Festus then takes over the mike cheered on by his good friend bolu, who lounges comfortably in @burnaboygram 's armsโ˜บ #awarenesswalk for #hydrocephalus and #spinabifida by #festusfajemilofoundation this condition can be prevented when women of reproductive age take folic acid #Beforeyoufrolic #GoFoLIC๐Ÿ™…๐Ÿ‘Œ๐Ÿ‘
festusfajemilofoundation - gofolic - beforeyoufrolic - spinabifida - hydrocephalus - awarenesswalk -
poshboispice : Best valentine day ever @theblackruby iwz honoured to be a part of this great initiative. God would bless you sis. Ur heart of giving is second to none. Im proud to call you a friend
theblackruby : Thanks broโœŠโœŠโœŠโœŠโœŠ @poshboispice
ahen_ - ounjefoods - chinex05 - davidjumbo -
instagram
theblackruby
Meet Bolu, one of the kids from @ffajemilo foundation, he has both #hydrocephalus and #spinabifida. ..14th February 2013 we organised a valentine's day party for the kids...@burnaboygram came through and guess who sang every word to his lyrics. ..."Bolu"!!!๐Ÿ™Œ๐Ÿ™Œ๐Ÿ™Œ One more day guys...have u signed up??..are u gonna walk for a cause??... We converge by Farm City at 4pm..then off we go #imsuperstoked ..they do this every year 25th of October..but this is the first time it is happening on the island... #spinabifida #hydrocephalus REMEMBER, Girls of reproductive age #Beforeyoufrolic #GoFoLIC ๐Ÿ™…๐Ÿ’ช
beforeyoufrolic - gofolic - hydrocephalus - imsuperstoked - spinabifida -
theblackruby : Thanks baby...@annaebiere
theblackruby : Thank you ever so much ma...means a lot to me๐Ÿ˜€๐Ÿ˜€๐Ÿ˜€ @ifeomawilliams
funminewyork : Great work. ๐Ÿ™
theblackruby : Bolu is super cute with the biggest smile always ..thank you so much @funminewyork @annaebiere
illegal_aijay : Hey! How do i sign up + nice one dear
theblackruby : There is a link on my bio dear @illegal_aijay click on it
_komee : Good job
g_whizle : Very lovely..... Young ladies pls take health precautionary measures early enuf aii.....
ejyro - aso_ebi_couture - ibifiry - sharonmgbo -
instagram
shineukcharity
Q: Where will YOU be wearing yellow today? Raising awareness for #SpinaBifida and #Hydrocephalus #ShineUKCharity
hydrocephalus - shineukcharity - spinabifida -
shineukcharity - kazzlet - nova_alifree.palestine - thorndalhenriksen -
instagram
shineukcharity
If you are wearing YOUR yellow today, we'd love to see your snaps! #ShineUKCharity #SpinaBifida #Hydrocephalus
hydrocephalus - shineukcharity - spinabifida -
aneesas.little.stray.heart - wyattbarris - nova_alifree.palestine - thorndalhenriksen -
instagram
shineukcharity
Who's wearing yellow today then? :) #ShineUKCharity #SpinaBifida #Hydrocephalus
hydrocephalus - shineukcharity - spinabifida -
nova_alifree.palestine - amydilo - thorndalhenriksen - sherbertxoxo -
instagram
aliceandrayasunshinex
#nexttattoo ๐Ÿ˜๐Ÿ’— but gonna have a little something added to it ๐Ÿ˜Š #perfect #true #mydaughter #lyrics #inspiration #epilepsy #hydrocephalus #fighter #brave #mummysgirl
perfect - mydaughter - brave - fighter - lyrics - mummysgirl - epilepsy - hydrocephalus - nexttattoo - true - inspiration -
sara_mcdh - colondresngoc - grabingergenevive - mschris83 -
instagram
lifeasaconvert
Spina Bifida isn't always so glamorous. "My shunt hurts"
teamlosh - hydrocephalus - shunt - spinabifida -
lifeasaconvert : #spinabifida #shunt #teamlosh #hydrocephalus
the_notsoperfect_family : You have a little warrior there @lifeasaconvert
deziidoll123 : Does he have to have monthly shunt checks? I do...the WHOLE nine yards(CT, Shunt Series, Shunt Tap sometimes even a 3 day drain)
lifeasaconvert : He goes every 6mos - 1 year. He hasn't had a malfunction since 2006. @deziidoll123
deziidoll123 : I very rarely have anything wrong but in 2010(age 13) i had my first real malfunction and had my first replacement i have a VP adult valve and resevar then still have the childs tubing i also have to have SB checks losh is indeed a brave and inspiring little boy
lifeasaconvert : He had his first shunt placed around a month old and his first malfunction at 7.5 months old. Then he had another with infection a few months later. Since then we have had a lot of scares, but no issues. His soft spot just fully closed this past year (it was huge) and since then he has had a lot of headaches. Priming his shunt helps, but the doctors done want us to. He has a VP shunt. I think his headaches are related to chiari malformation. @deziidoll123
deziidoll123 : Yeah chiari malformation is a pain in the neck quite literally i get very dizzy from mine and also headaches so bad they cause myoclonic seizures
ashli4458gmailcom : Aww poor guy. Feel better soon Losh!
aprondiva - meg_stillwell - trooppetrie - atitude34 -
instagram
mrs_angemi
This is a crazy story with an unhappy ending. @sil_v_ina sent me this case from Angola Africa of a patient they had that received no prenatal care. She tried to have a home birth and the baby was in breech position (feet first). The delivery was still attempted at home and the entire body of the baby was delivered but the head was stuck in the moms pelvis. The patient was rushed to the hospital. Because the mom had no prenatal care or ultrasound doctors really had no idea what they were dealing with! At first they thought there was another baby in there. They performed an emergency c-section to save the mothers life. When they opened the uterus they found this huge head lodged in the pelvis (hydrocephalus). Unfortunately they had to drain the head immediately which caused the infant to die, so they could pull the head through the vagina with the remainder of the body. If the mother had prenatal care including an ultrasound a c-section could have been scheduled to prevent this painful labor and loss of her baby. The term hydrocephalus is derived from the Greek words "hydro" meaning water and "cephalus" meaning head. As the name implies, it is a condition in which the primary characteristic is excessive accumulation of fluid in the brain. The excessive accumulation of CSF results in an abnormal widening of spaces in the brain called ventricles. This widening creates potentially harmful pressure on the tissues of the brain. #Iheartautopsy #med #medical #medicina #medicina #medicine #medschool #medstudent #healtheducation #hydrocephalus #pregnant #pregnancy #prenatal #brain #skull #autopsy #fetus #csection #childbirth #labor #death #breech #ultrasound
med - healtheducation - fetus - iheartautopsy - prenatal - brain - breech - pregnancy - childbirth - autopsy - death - medstudent - skull - pregnant - medical - hydrocephalus - labor - csection - medicine - ultrasound - medicina - medschool -
alialbannaa : @7nan7san thanks
dump_bodiez : @ymonster
ladytay876 : @tyronewizzard
dulldull7 : Omg
cenigan : Omg @mermaidsue_ I really wish I could un-see that picture!! ๐Ÿ˜ช
setarehv : @saraaleph ๐Ÿ˜ช
saraaleph : @setarehv aaakh
galpaltristen : @mrs_angemi that looks like it was a big hydrocephalus. This story is all too common anywhere you go in Africa. A few months ago a set of premature conjoined twins were born attached at the head. It was near the village I worked in. They didn't survive, but at least the mom did.
musicalforensics - jcampos123 - loranayeli - sevva2l -
instagram
hydromomma
Being silly after dance class. Love these two #monsters. #hydrobabies #hydrocephalus #preemies #cerebralpalsy
preemies - hydrocephalus - monsters - cerebralpalsy - hydrobabies -
alopez1217 : Aiden's faca hahaha
ltrandallgeo : Handsome boys!!! ๐Ÿ’–
_angelinatroia - nadine120286 - delaneypup71 - katiecrawford -
instagram
mommymegs2
Someone is glad to be in her bed!! #shuntrevision #hydrocephalus #hydrobaby #hydrocephalus
shuntrevision - hydrocephalus - hydrobaby -
shelbs0099 - blowery610 - dabearsma - carlicc11 -
instagram
dmcsaf
Jordan's #new #AFO #braces. We picked them up at the #clinic today. #custommade #stronger #heWILLwalkoneday #soonerratherthanlater #youcandoitson #toddlerlife #mydelayswontstopme Now let the practice wearing begin! #hardestpart
toddlerlife - afo - custommade - hydrocephalus - youcandoitson - hydrowarrior - stronger - mydelayswontstopme - hydrostrong - clinic - hewillwalkoneday - new - soonerratherthanlater - hardestpart - braces -
dmcsaf : #hydrocephalus #hydrostrong #hydrowarrior
claraa09 : Omg! Those are soooo cool.๐Ÿ˜Š๐Ÿ˜Š it's always exciting when picking out the colors and stuff lol @dmcsaf
clouds_85 : My son got new ones as well, about a month ago. Where there is a will, there will be progress! Taking my son to a spasticity appointment in the Bay Area to see if he will one day be a candidate for the SDR surgery.
claraa09 - talmojo - ksumm271 - hankevans -
instagram
foos4eva
Abs all ready to help out with our charity fundraising day #cake #coffee #coffeemorning #fundraising #charity #shine #spinabifida #hydrocephalus #goodcause #everylittlehelps #donate @shineukcharity
shine - coffee - fundraising - everylittlehelps - hydrocephalus - coffeemorning - spinabifida - cake - goodcause - donate - charity -
fitnesscrazzy1 : Great!
luke28glover - keenan610 - smidge02 - teresav2003 -
instagram
hydromomma
3 years ago the boys were 4 weeks old. Top is Aiden weighing 2lbs 5oz. Bottom is Ryan weighing 2lbs even. Life was so much harder three years ago than it is today. And for that I am #thankful. #hydrobabies #preemies #hydrocephalus #cerebralpalsy #thankfulthursday
thankful - preemies - hydrobabies - hydrocephalus - cerebralpalsy - thankfulthursday -
jmael12 : So hard for me to even look a pictures like this, remembering our time in the nicu is emotional.
hydromomma : Hugs @jmael12
thefrontportch - ital21 - deving06 - eileen_gormley -
instagram
sionnaine13
Today's park adventure. ๐Ÿ˜Š he's such a hard worker. #cerebralpalsy #hydrobaby #hydrocephalus #tubie #beatingtheodds #slowdownfornothing #hesawesome
tubie - hydrobaby - hesawesome - hydrocephalus - slowdownfornothing - cerebralpalsy - beatingtheodds -
thefamouscb : He's like eh it was nothin' cutie!!!
truepenguin15 - suzyy_96 - bowie.j - thefamouscb -
instagram
foos4eva
Cake made for my coffee morning in aid of @shineukcharity #shine #spinabifida #hydrocephalus #charity #cake #bake #baking #instacake #justgiving #coffeemorning #donate #ribbon #yellow #worthy
shine - donate - baking - worthy - hydrocephalus - yellow - coffeemorning - spinabifida - cake - instacake - justgiving - bake - ribbon - charity -
_anbang_ : Wow!
foos4eva : @_anbang_ thank you it's for a very worthy cause x
dailymitzvah - abbieashwood - mrs_paigey_malik - sand100green -
instagram
aprimaxxi
#bbcswahili #hydrocephalus #spinalbifida #interview earlier today
bbcswahili - interview - hydrocephalus - spinalbifida -
aprimaxxi : Hivyo hivyo ilimradi mnaelewa @lexyandros
lexyandros : Mi sitaelewaaaaaa.....hahah
anettekessy : uuwiiiii neurosurgeonnn umeuzaaa balaa congrats dear @aprimaxxi umewaambia ulifly na private jet bila kuoga??lol @annetteomari
lexyandros : Mmmh...utazan itv hawakukuhoji pia... bt you chose to show us Bbc.. showoff ๐Ÿ˜œ๐Ÿ˜œ๐Ÿ˜œ๐Ÿ˜œ๐Ÿ˜œ hahaha
annetteomari : Waj , hes a neurosurgeon he doesnt have that time jamanii.. @anettekessy
reddfoxiii : I am always on your page lol
lee_haule : #HWBB ...
dahamthe1 : safi mdogo wangu
lee_haule - gerrymkaree - geofmuga - dahamthe1 -
instagram
chronically_determined
๐Ÿ”› I've been AWOL, processing, and here's the scoop ๐Ÿ‘‰ I'll be having Chiari decompression surgery on Wed, December 17th with Dr. Rosner. โ€ผ๏ธ I am very blessed, I do not have the deterioration of my spine to the extent that others do. There are some bulging and herniated disks, with loss of height between disks, but it's not severe enough at this point in time to warrant surgery, and relieving the pressure from the Chiari should slow things down ๐Ÿ™ So, brain surgery, but I don't have to worry about my spine. He'll perform a suboccipital craniectomy with a tonsillectomy, place a dura patch, and sew me back up ๐Ÿ˜ถ Even though I know I need the surgery, and I fought pretty hard to get to this point, it's still shocking to know its going to happen. I was numb Monday and most of Tuesday, but then became quickly overwhelmed, had a slight panic attack Tuesday night in class ๐Ÿ’ฅ another one yesterday ๐Ÿ’ฅ I will need to continue fundraising, but in less than 2 months, I'm having surgery!! ๐Ÿ˜ณ
chronicpain - zipperhead - wontstop - itshappening - hydrocephalus - fightlikeagirl - conquerchiari - brainsurgery - yikes - chiarimalformationawareness - mylife - craniectomy - surgery - chronicillness - spooniesisters - spoonielife - posturalorthostatictachycardiasyndrome - invisibleillness - pots - chroniccondition - cantstop - lifeofaspoonie - chiaristrong -
chronically_determined : Thank you @lifechallaccept ๐Ÿ˜˜
ehlersdanlosuk : Hoping all goes well for you
jill_murphy : Good luck!!
chronically_determined : Thank you @ehlersdanlosuk and @jill_murphy!! ๐Ÿ˜˜
itsdaileytime : Hope it goes well! I had a great surgeon but she didn't know Chiari! She redid my patch 6 times due to leaks and did emergency surgery at 2 am. Gave me a VP shunt which saved me! She now knows Chiari well but 12 years ago not so much
legion_of_dome : I was there! TWICE!!! Listen, have faith in your doctor that what he's sees wrong, is something that he can fix and make your day to day functions just a bit easier. Recovery is tough. Listen to your body, don't fight the meds and REST! I saw amazing docs (the second time) at the Chiari Institute in Long Island NY. HIGHLY RECOMMEND!!!! Just take things one step at a time. Pray for knowledge and strength for your doctors and a comfortable easy healing for you๐Ÿ™Œ๐Ÿ˜Šโค๏ธ
chronically_determined : @itsdaileytime, I'm so sorry you had to go through all of that!!! I still don't understand why doctors think it's ok to do an operation on conditions they're unfamiliar with. One of the docs I saw here said he had a 30% success rate, meaning 70% of his decompression patients were worse off than before the surgery. I'm not a guinea pig, so I've continued pushing for a doc with knowledge and expertise. Thankfully, Dr. R is one of the best. Just gotta get all my ducks in a row. Thanks so much for your continued support ๐Ÿ˜˜โค๏ธ
chronically_determined : @legion_of_dome, I see Dr. Rosner in NC, who is one of the top Chiari surgeons, and usually listed up there with Dr. B at TCI, Dr. H in Maryland, Dr. O in Colorado. Geographically speaking he's the closest to me, and the most willing to work with out of network insurances to guarantee that his patients get the help they need. I spent a lot of time researching before I took the plunge, and this is where the journey has led me. It's in the hands of the insurance company now, so hopefully, I hear something back soon, and can start planning for real *fingers crossed*
michelle_ivey - rock_a_duckie - teenagebendy - briannagothier -
instagram
ale_lovemee
BIG PRAYERS for my STRONG baby brother Lex. This morning he will be having Spinal Cord Surgery. GOD just rap your arms around him please. I love you so much bubba โค #Hydrocephalus #Prayforlex
prayforlex - hydrocephalus -
melissas1606 : ๐Ÿ˜˜๐Ÿ’™
lakers24guero : ๐Ÿ™๐Ÿ™๐Ÿ™๐Ÿ™
lakers24guero - yahaira__martinez - santillanrafael - cali_luv19 -
instagram
debbie.quinn.96
#happygreysday #TGIT #merder #greysanatomy #drderekshepherd #brainsurgeon #hydrocephalus #hydrocephalusawareness #Patrickdempsey # Seattle #Jessicacapshaw #Ellisgrey #kateburton #justinchambers #ellenpompeo #calzona #mirandabailry #shondaland
greysanatomy - shondaland - calzona - drderekshepherd - brainsurgeon - justinchambers - happygreysday - mirandabailry - hydrocephalus - ellisgrey - hydrocephalusawareness - patrickdempsey - merder - tgit - ellenpompeo - jessicacapshaw - kateburton -
workwitharronlee : It's indeed a Happy Grey's Day @debbie.quinn.96!what's up?BTW,would love to learn about what you do!Check my page and bio and if you love the VALUE I share, shoot me a follow ๎ˆฎ ๎ˆฎ
bareblossom - chrissymarie777 - oneblessedcookieshop - julidole_ -
instagram
shineukcharity
Shine Lifelong Opportunities Weekends! Find out more by visiting: www.shinecharity.org.uk #SpinaBifida #Hydrocephalus #IIH
hydrocephalus - iih - spinabifida -
emzlouise - amydilo - chiariwarrior0604 - laurenewhiteford -
instagram
shineukcharity
Shine Lifelong Opportunities Weekends! Find out more by visiting: www.shinecharity.org.uk #SpinaBifida #Hydrocephalus #IIH
hydrocephalus - iih - spinabifida -
emzlouise - amydilo - chiariwarrior0604 - vgina_123 -
instagram
shineukcharity
Shine Lifelong Opportunities Weekends! Find out more by visiting: www.shinecharity.org.uk #SpinaBifida #Hydrocephalus #IIH
hydrocephalus - iih - spinabifida -
emzlouise - amydilo - chiariwarrior0604 - laurenewhiteford -
instagram
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