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Important notice - Major update coming on June 1st. Please read carefully.
shinedarrenfower
#ShineEvent #Birdworld #Farnham #Surrey #Parents #SpinaBifida #Hydrocephalus #SummerHolidays #Picnic For more information please contact Joanne Tailor by Monday 1st August to confirm your places. E: joanne.tailor@shinecharity.org.uk or T: 01959 534618
farnham - surrey - birdworld - picnic - hydrocephalus - parents - shineevent - summerholidays - spinabifida -
moyonofun - childrensbooksgalore - droneblocks - hamza_abazov -
instagram
linneabertlin
Gravity
art - jewellery - contemporaryart - color - handcraft - artinfo - artnews - myart - follow - ring - silver - spinabifidaawarness - craftivism - smithing - fineart - medical - artist - hydrocephalus - contemporaryjewellery - creative - instaartoftheday - spinabifida - necklace - jewelleryart - colour - linneabertlin -
linneabertlin : #handcraft #craftivism #instaartoftheday #contemporaryjewellery #art #artist #fineart #spinabifida #spinabifidaawarness #hydrocephalus #medical #art #myart #contemporaryart #artnews #artinfo #creative #color #colour #linneabertlin #follow #silver #smithing #jewelleryart #jewellery #ring #necklace
redefinearts - barrfaber - constantinevisualarts - casvanderpas -
instagram
linneabertlin
Gravity
art - jewellery - contemporaryart - color - handcraft - artinfo - artnews - myart - follow - ring - silver - spinabifidaawarness - craftivism - smithing - fineart - medical - artist - hydrocephalus - contemporaryjewellery - creative - instaartoftheday - spinabifida - necklace - jewelleryart - colour - linneabertlin -
linneabertlin : #handcraft #craftivism #instaartoftheday #contemporaryjewellery #art #artist #fineart #spinabifida #spinabifidaawarness #hydrocephalus #medical #art #myart #contemporaryart #artnews #artinfo #creative #color #colour #linneabertlin #follow #silver #smithing #jewelleryart #jewellery #ring #necklace
keystonejewelry - poreliza - isikboutique - beadsbyika -
instagram
doctural
Endoskopik hidrosefali emeliyyatı #neurosurgery #endoscopy #endoscopicsurgery #endoscopicbrainsurgery #brain #hydrocephalus #etv #ventriculostomy
etv - endoscopy - hydrocephalus - endoscopicbrainsurgery - brain - neurosurgery - endoscopicsurgery - ventriculostomy -
dr.emin.haciyev : Ugurlar
___g_u_n_e_l___ - lala_382 - turkaneyusifova414 - hasan_juventus -
instagram
shinedarrenfower
Runs are by far our most popular active challenges, and we’re not surprised! Whatever your distance, there’s a run out there for you! Sign UP: www.shinecharity.org.uk/running #Run4Shine #Charity #Marathon #SpinaBifida #Hydrocephalus
run4shine - hydrocephalus - spinabifida - marathon - charity -
aamotk - titashrinks - matty_j71 - regular_hero -
instagram
deeawong
6 weeks old male baby cat with hydrocephalus. #necropsy #baby #cat #hydrocephalus #vet #clinic #bandung #indonesia
vet - necropsy - indonesia - hydrocephalus - cat - bandung - clinic - baby -
bandungeverything - sahrul.ngagel - onigiri_obc - catxy -
instagram
amburmorrison
Love being able to be home with my little man. Making cookies just because together. #makingmemories #zachblake #sahm #spinabifidakidsrock #spinabifida #hydrocephalus #myleomenigocele #chiarimalformation
myleomenigocele - sahm - spinabifidakidsrock - hydrocephalus - zachblake - chiarimalformation - spinabifida - makingmemories -
themintmom - windpixie - little_flower_natalie - mars_bars83 -
instagram
melissaweidert
This felt so much slower than it looked strength really suffered this cut @evostrengthlv #evostrengthlv #squat #legday #girlswhopowerlift #girlswithmuscle #girlswholift #fitness #fitfam #powerlifting #muscle #ironaddict #ihadbrainsurgerywhatsyourexcuse #brainsurgerysurvivor #findacure #chiarimalformation #pseudotumorcerebri #hydrocephalus #shuntwarrior #liftheavyshit #growth #strength #struggletostrength #weightloss
brainsurgerysurvivor - fitfam - girlswhopowerlift - pseudotumorcerebri - struggletostrength - evostrengthlv - growth - chiarimalformation - ironaddict - girlswholift - girlswithmuscle - findacure - squat - liftheavyshit - shuntwarrior - ihadbrainsurgerywhatsyourexcuse - hydrocephalus - weightloss - legday - fitness - muscle - powerlifting - strength -
girls.with.muscle - marshall_fit - thepowerfoodie - hailee_coan -
instagram
krystal_dsdkzk
Its that time of month! Annual LP shunt check up for this nugget. #monash #hydrocephalus #lpshunt #checkup @djrobbo84
monash - checkup - lpshunt - hydrocephalus -
itskyleeslife - donna.redmond.543 - jade_kellett - rdavis06 -
instagram
_terecamberos_
❤️ #SpinaBifida #hydrocephalus #myson #myhero #nevergiveup
myhero - nevergiveup - myson - hydrocephalus - spinabifida -
shinedarrenfower : Nice SNAPS!
polliso831 - katelynmdalton - cocochaneladair - perez_nette -
instagram
courtneynicole1021
#babyblues #purejoy #happiness #hydrocephalusawareness #hydrocephalus #spinabifidaawareness #spinabifida
babyblues - spinabifida - spinabifidaawareness - hydrocephalus - hydrocephalusawareness - happiness - purejoy -
ericagarbel - journeyappstore - christian_owsley - kellyttle.feet -
instagram
amy_booher
{new blog post} ⚓️💙 More Than Words (pre-surgery #15) 💙 thoughts and reflection on the 5 months that have passed since my last two surgeries, as we prepare for the next one tomorrow. Thanks for the unbelievable number of messages, posts, and emails this past week, you all are amazing. I'll continue to share my journey, as long as it continues to help even a few people. Stay in the arena, friends. That's where the magic happens. I'll see you on the other side of surgery, tomorrow. Much Love. #hydrocephalus #shuntlife #brainsurgery #vpshunt #neurosurgery #stayinthearena #relentlesspursuit ⚓️ http://www.amybooher.com/blog/more-than-words-pre-surgery-15 {link in profile}
15 - hydrocephalus - brainsurgery - relentlesspursuit - shuntlife - neurosurgery - vpshunt - stayinthearena -
pherbstritt : Sending good vibes your way😎
teen_cova : Prayers 💙💕
klmichelle83 : Prayers and love sent your way💙
stay_wild_child : Covering you in prayers🙏🙏🙏🙏
kristadearey - tasmanrae - eringarson - elilicious -
instagram
dannylamb10
Super stoked to be playing at #TheHideout in Toronto on June 23rd. Sharing the stage with some rad human beings and $2.00 from each ticket sold will go to the @sbhontario. #SpinaBifida #Hydrocephalus #Music #ComeHangWithUs @asongacity @dannylambandtheassociation @muscleswithmeags @christiandistef @fs_studios @mattanthonyy @kaydmusic @jasongolden_
music - comehangwithus - hydrocephalus - thehideout - spinabifida -
zoeryck - emilyslaven - kimberly499 - mattanthonyy -
instagram
cystsmattertoo
Congratulations Pediatric Arachnoid Cyst Foundation on your work getting the first Pediatric Arachnoid Cyst Awareness Day! #pacfawareness, #cystsmattertoo, #hydrocephalus,- Mimi: diagnosed December 2007
pacfawareness - cystsmattertoo - hydrocephalus -
mnwthrt -
instagram
fiveambritt
Probably one of my favourite photos of us. In other news, I've been looking into #acupuncture Anyone else use this? #ttc #ttccommunity #ttcsisters #iui #ivf #pcos #hydrocephalus #pcossucks
iui - ivf - ttcsisters - pcossucks - ttccommunity - hydrocephalus - ttc - pcos - acupuncture -
all4kaisky : 👍💖
kellyshay16 : @fiveambritt - exactly. I'm excited to try it next week but a little nervous for the $$$. Good luck if you try it!
fiveambritt : @kellyshay16 good luck for you too!!!! 😊
beautyscoper : Lovely!
i.am.fruitful - beautyandwellnesscoach - bredizzz - dani_bred -
instagram
lostxinxwonderland._
🌸So I finally decided on starting to post about my daily life with a chronic illness. Feeling anxious about posting a pic of myself but oh wells... So I am 19 and have Spina Bifida & Hydrocephalus and for 5 yrs have been battling with Depression and Anxiety & other medical stuff. Hoping to be able to connect with other fellow spoonies🎗💕 I know all my posts have been in 🔳 But I have decided to post in colour as I am trying to get my mental health better and I think that this will help to see my future in bright colours🙂 I am here for you all and always will be💝 (DM always open) ~MGVD~ #depression #depressed #pain #quotes #life #sad #sadness #anxiety #hurt #broken #thoughts #selfharmmm #chronicpain #chronicillness #spinabifida #hydrocephalus #backpain #stoma #shunt #fighter #mentalillness #disability #staystrong #spoonie #spooniesupport
chronicpain - life - spooniesupport - staystrong - hydrocephalus - mentalillness - sad - quotes - anxiety - pain - hurt - chronicillness - depression - stoma - fighter - shunt - spoonie - broken - depressed - disability - selfharmmm - sadness - thoughts - spinabifida - backpain -
that1kidboi : Wow you're beautiful 😍
shinedarrenfower : Nice SNAPS!
judlock - fix_your_wings - disabilitysupportprogram - humanswithchronic -
instagram
neederz
Happy to say we are home and recovering well! That was the scariest weekend of my life and yes it may happen again but I am praying it won't. So proud of our Hero 💙⚓️😍 #hydrocephalus #shuntrevision #happytobehome #NintendoKid #WiiU #lovehim #ourHero @seanmackaytattoo #smiles #truelove
smiles - happytobehome - hydrocephalus - ourhero - nintendokid - truelove - wiiu - lovehim - shuntrevision -
seanmackaytattoo - bwfishman - show_pony_store - junkferguson -
instagram
dmcsaf
He #stealsmyheart everyday. What a #beautiful #blessed he has been. He brings me so much #joy! #nothingcomparestoyou #iloveyoutothemoonandback #myson #hydrowarrior #hydrocephalus #cerebralpalsy #lovemyson
beautiful - nothingcomparestoyou - joy - hydrocephalus - blessed - iloveyoutothemoonandback - hydrowarrior - myson - lovemyson - cerebralpalsy - stealsmyheart -
clouds_85 - christina_jordansmommy_pannell - herroldslandscaping - mrsautumnx -
instagram
wyattsmomma2016
Sweet pea did great at physical therapy! #happybaby #happymommy #physicaltherapy #hydrocephalus #succeeding #fuckdoctors #mybabyisdoinggreat
fuckdoctors - happymommy - mybabyisdoinggreat - physicaltherapy - happybaby - hydrocephalus - succeeding -
jenrene__ - jlmikesell - ristroller - hayleyhodgson19 -
instagram
b_faitao
Classic post-haircut selfie.of course the amazing @anaisedelia ways does great work. Honeslty; I haven't felt like my self lately. Im down, upset, and finding it hard to stay positive. I should be feeling happy, I'm almost done with nursing school and will be able to start my life. But something is holding me back. The fear of the inevitable. When will my next surgery be? When will I wake up and find my self forced to go to the ER due to a shunt malfunction. The anxiety grows daily. Despite it all- I will fight every single day. I know that I can't change my condition but I can change my mind. I hope to one day help others just like my self who are plagued by this chronic fear and disease. I want to show people that you CAN live with this. I am a nursing student and I have a 4.0 - you CAN be successful. It's a diagnosis, not a prognosis⚓️💪🏼💙. #hydrocephalus #hydrowarrior #hydrocephalusawareness #raiseawareness #dandywalkermalformation #VPshunt #shunt
hydrocephalusawareness - hydrowarrior - shunt - raiseawareness - vpshunt - hydrocephalus - dandywalkermalformation -
yddam_ : @anaisedelia my cousin kills hair!
b_faitao : Amazing every time!! @yddam_
anaisedelia : @yddam_ @b_faitao Thank you, loves ❤️ & Brittany, you'll get through this. You're easily one of the strongest people I know. Chin up, mama. 😘
b_faitao : Thank you so much love 💞💜😘 @anaisedelia
yddam_ - slo_subbie - kristina_williamson - mynameissss_jeff -
instagram
hydro_mom
Amazing.. look at her sitting up by herself..in her pool! :) ♡ amazing! #hydrocephalus #teamkaylee #kayleestrong #shesMybliss
teamkaylee - kayleestrong - shesmybliss - hydrocephalus -
lil_cyn_1997 - emiyamazawa - casstay0709 - heathershortyb -
instagram
kekelighana
Baby Kafui at home with her mother and siblings. They will return to Korle Bu Teaching Hospital next week to continue draining the fluid. #ghana #ho #hydrocephalus #baby #Kekeli
ghana - baby - kekeli - hydrocephalus - ho -
jeremenz_afric - papasankofa - skyschmittie - tido_123_7 -
instagram
redbeardfx
Kombucha brewing in a continuous brewer. This has been the best thing for me when it come to being flared up and calming my stomach. I drink alot of kombucha daily, and it keeps me feeling better. Along with a SCD diet, fermented foods are essential for restoring our gut flora. Don't buy kombucha, because it costs $4 a bottle. Buy some, and start your own scoby. It's easy, and whatever you invest will pay for itself after the first batch. I spent $70 maybe for bottles, brewer, scoby online, and 2 bottles to help kick start the batch. #brewingkombucha #brewingmyown #piratelife #kombucha #eatingclean #cleaneating #organiclife #organicfoods #hydrocephalus #crohns #probiotics #probiotic #probioticfoods #probioticfarming #stayonnit #getonnit #glutenfree
brewingkombucha - eatingclean - cleaneating - stayonnit - organiclife - probioticfoods - probioticfarming - organicfoods - brewingmyown - probiotic - glutenfree - hydrocephalus - probiotics - getonnit - kombucha - piratelife - crohns -
farmorganica : Wonderful :)
cappellos - danamarieofficial - missamandalaws - nicolenewbury -
instagram
amylongabaugh
Getting some #VitaminD and other special healing that only comes from your #happyplace #recovering #shunt #surgery #hydrocephalus #dcunited #hammock
shunt - recovering - hydrocephalus - dcunited - happyplace - vitamind - hammock - surgery -
darling.c8 - hall_ash - nickrehberger - danniann522 -
instagram
redbeardfx
My scoby in my continuous brew is getting thick, and brewing quick. It's starting to be done in almost a week now. Can't wait to get more scoby babies and get 3 more containers going. #ifuckinglovekombucha #scoby #hydrocephalus #cleaneating #eatingclean #organic #organiclife #organicfoods #fermentation #fermentedfoods #kombuchatea #kombucha #crohns #probiotics #probiotic #probioticfoods #probioticfarming
eatingclean - cleaneating - organiclife - fermentedfoods - ifuckinglovekombucha - probioticfoods - scoby - organicfoods - kombuchatea - organic - probioticfarming - probiotic - hydrocephalus - probiotics - kombucha - crohns - fermentation -
mainecalifornia - secretsorganicbox - flat_earth_organic - azharofnyc -
instagram
shinedarrenfower
#WearYellowAndShine #SpinaBifida #Hydrocephalus Visit: www.shinecharity.org.uk/WYAS
spinabifida - hydrocephalus - wearyellowandshine -
hydro_mom - movement_4_tomorrow - donna_is_getting_there - chellabellab -
instagram
dannylamb10
Props to my buddy Steve Kean for entering his amazing photography project #FrontToBack into the 2016 Magnum Photography Awards. I'm rootin for ya brotha! Also.... Thanks for making me look more muscly than I actually am ;). #SpinaBifida #Hydrocephalus #FrontToBack #Photography stevekean.com
fronttoback - photography - hydrocephalus - spinabifida -
reagan_._ : Danny your tattoo is kinda ironic considering your a lamb and the tats a lion
sizlopic - alex_linwood - chokladboll_15 - mandoandtheworld -
instagram
ha_walk_charlotte
The reason we walk! To raise money for research and one day a cure. #hydrocephalus #HAM2016 #raiseawareness #walktoendhydrocephalus
raiseawareness - ham2016 - hydrocephalus - walktoendhydrocephalus -
lyndamonroe - cmb_1978 - premiersoccernc - melinda2235 -
instagram
panmellyon
After a crappy morning of traffic and misery, #cuddles with my best friend make less than awesome news from the doctor much easier to deal with. From #overdrainage to #underdrainage in less than a month, my brain is acting out in the worst ways. Plenty more waiting in my future before we get back to fully functioning. 😕🤕😓 #hydrowarrior #grumpybrain #hydrocephalus #makeinvisibleillnessvisible #mellyb #purplehairdontcare #puppycuddles #chronicpain #patienceisavirtue
chronicpain - cuddles - underdrainage - mellyb - puppycuddles - grumpybrain - hydrocephalus - makeinvisibleillnessvisible - patienceisavirtue - hydrowarrior - purplehairdontcare - overdrainage -
matthews2and4 : Oh my, hope this gets worked out ASAP!!
rockswithsass - andreatvdotcom - matthews2and4 - mskindnessb -
instagram
cystsmattertoo
May 29th, 2 years since fenestration of arachnoid cyst. He also has a shunt for #hydrocephalus #pacfawareness #arachnoidcysts #cystsmattertoo #brave #strong
cystsmattertoo - brave - pacfawareness - strong - hydrocephalus - arachnoidcysts -
fillllllllllllllly : Can you till me please where did you do the surgery @cystsmattertoo
cystsmattertoo : Sorry I am a nonprofit sharing photos of children that have Arachnoid Cysts. This is not my child. Just one of the many children with an AC. My son's surgery was at Children's National
cystsmattertoo : @fillllllllllllllly
fillllllllllllllly : @cystsmattertoo thank you
kikimagers05 - roshani7 - misterqv - kkromang -
instagram
shinedarrenfower
Runs are by far our most popular active challenges, and we’re not surprised! Whatever your distance, there’s a run out there for you! Sign UP: www.shinecharity.org.uk/running #Run4Shine #Charity #Marathon #SpinaBifida #Hydrocephalus
run4shine - hydrocephalus - spinabifida - marathon - charity -
molly_zhang_shiman : nice pic
7summitsproject - qorkit - brandbroadcasters - harrysandhu -
instagram
joelmilanleroypawlak
Meine neue Sonnenbrille 😊#spinabifidababy #spinabifida #Hydrocephalus
spinabifida - hydrocephalus - spinabifidababy -
danybabyundkinderwagen : Du Süßer 😍
yvonnedreissen - geraldinepatzold - luisasmummy - _.franzi.___ -
instagram
cyborgjenna2.0
Just finished the #birthdaypresent for a very special #vedswarrior and #hydrowarrior 💙❤⚓ #vedsawareness #hydrocephalusawareness #hydrocephalus #eds #ehlersdanlossyndrome #shesazebra #werezebras #nocuredontcare #crochetingthroughlife #crocheting #instacrochet #crochetersofinstagram
crocheting - crochetingthroughlife - hydrocephalus - vedswarrior - ehlersdanlossyndrome - eds - nocuredontcare - hydrowarrior - hydrocephalusawareness - instacrochet - shesazebra - crochetersofinstagram - vedsawareness - werezebras - birthdaypresent -
dont.mind_me - schmidtsimon79 - msdanielleelise - katshandmadeitems -
instagram
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