misstiffiniemae
Such a fantastic surprise to come home to a package from @uniquevintageclothing had seen my post wearing the swimsuit I won from them and my head scarf to protect my post #shunt Revision for #hydrocephalus #surgery sent me a #iamunique care package with three fabulous ways to keep my head covered! Sun hat, hair scarf and swim cap! 😊 along with a get well card and #iamabadass button! Such an awesome company to not only have such drool worthy #vintage and #retro inspired #pinup looks, but be so inspirational to woman and care for their #uniquevintage customers and fans! huge thanks sent out to them for all the support!!! @uniquevintage_burbank @uniquevintageclothing @uv_darlings
shunt - iamunique - uniquevintage - vintage - hydrocephalus - iamabadass - retro - surgery - pinup -
brunette_dn - joebradley32 -
instagram
ktpie4141
Happy #TherapyThursday everyone😊 We are still working hard to get Super Cam standing but he is doing great. A few months ago he was crying through every therapy session because it was so hard for him now he is getting stronger each day πŸ’ͺπŸ’™πŸ™Œ #supercam #camspam #veinofgalen #hydrocephalus #hemiplegia #miraclebaby #20months
miraclebaby - hemiplegia - hydrocephalus - supercam - 20months - veinofgalen - camspam - therapythursday -
rcirion26 - nicolercortes - bethanyyoung10 - erin_hanes9602 -
instagram
claire20_12
When u get to see how happy she is nothing in life actually really matters.. #happy #girl #disabled #hydrocephalus #schizencephaly #epiliepsy #beautiful #life #issues #smiles #strong #ateam
beautiful - smiles - life - epiliepsy - ateam - hydrocephalus - disabled - girl - strong - schizencephaly - issues - happy -
give_me_20000_f011lowes - clairewise82 - jemma9105 -
instagram
shinedarrenfower
#ShineUKCharity - www.shinecharity.org.uk #Hydrocephalus #SpinaBifida #IIH #Charity #England #Wales #NorthernIreland #Support #Community #ThirdSector
england - support - hydrocephalus - community - shineukcharity - thirdsector - spinabifida - wales - northernireland - iih - charity -
instagram
shinedarrenfower
Looking for FREE and qualified info RE: Spina Bifida? Simply visit: www.shinecharity.org.uk/SpinaBifida :) #ShineUKCharity #SpinaBifida #Hydrocephalus #Charity #NonProfit #Community #Information #ThirdSector #CharityWork #IIH #England #Wales #NorthernIreland #ShineDarrenFower
information - england - charitywork - hydrocephalus - community - iih - thirdsector - spinabifida - wales - nonprofit - northernireland - shineukcharity - shinedarrenfower - charity -
francisamonde - hearthousedallas - crewekids - lilmissmisty -
instagram
margiemom65
Chunky monkey!!! #spinabifida #myelomeningocele #hydrocephalus #miracleshappen #lovehimsomuch
myelomeningocele - hydrocephalus - miracleshappen - lovehimsomuch - spinabifida -
noreen1628 - camrynellis2 -
instagram
shinedarrenfower
Membership to Shine is ...... FREE!! #GobiRanganthan #Membership #Supporters #ShineUKCharity #SpinaBifida #Hydrocephalus #Charity #NonProfit #Community #Information #ThirdSector #CharityWork #IIH #England #Wales #NorthernIreland #ShineDarrenFower
england - supporters - hydrocephalus - community - membership - gobiranganthan - northernireland - iih - shinedarrenfower - charity - information - charitywork - thirdsector - spinabifida - wales - nonprofit - shineukcharity -
reyfonder - simplyrepair - crewekids - yulindogmeat -
instagram
shineukcharity
#Hydrocephalus #SpinaBifida #IIH #Charity #ThirdSector #NonProfit #England #Wales #NorthernIreland www.shinecharity.org.uk
england - hydrocephalus - thirdsector - spinabifida - wales - nonprofit - northernireland - iih - charity -
hazella1995 - ellie228x - jantips - sammy_jh -
instagram
shinedarrenfower
#ShineUKCharity #SpinaBifida #Hydrocephalus #Charity #NonProfit #Community #Information #ThirdSector #CharityWork #IIH #England #Wales #NorthernIreland #ShineDarrenFower
information - england - charitywork - hydrocephalus - community - iih - thirdsector - spinabifida - wales - nonprofit - northernireland - shineukcharity - shinedarrenfower - charity -
vederap - yulindogmeat - crewekids - verea_foundation -
instagram
shinedarrenfower
Looking for FREE info RE: Hydrocephalus? Simply visit: www.shinecharity.org.uk/Hydrocephalus :) #ShineUKCharity #SpinaBifida #Hydrocephalus #Charity #NonProfit #Community #Information #ThirdSector #CharityWork #IIH #England #Wales #NorthernIreland #ShineDarrenFower
information - england - charitywork - hydrocephalus - community - iih - thirdsector - spinabifida - wales - nonprofit - northernireland - shineukcharity - shinedarrenfower - charity -
healthysouls - izacyeaman - safehousemovement - yulindogmeat -
instagram
shinedarrenfower
#CharityWalk #SponsoredWalk #Walk4Shine #ShineUKCharity #SpinaBifida #Hydrocephalus #Charity #NonProfit #Community #Information #ThirdSector #CharityWork #IIH #England #Wales #NorthernIreland #ShineDarrenFower
england - charitywalk - charitywork - community - northernireland - iih - shinedarrenfower - charity - information - sponsoredwalk - hydrocephalus - thirdsector - walk4shine - spinabifida - wales - nonprofit - shineukcharity -
crewekids : Nice
charityclothingco - safehousemovement - crewekids - nokoreadogmeat -
instagram
amy_booher
Sweet victory. ✌🏻️ Past the worse part, now on to the healing. Let's go home. πŸ’™βš“οΈ thanks to my family, friends, and IG #Hydrocephalus family for the giant push and #relentless #love πŸ’™βš“οΈ you all are amazing. @boo_her #breathe #brainsurgery #recovery #vpshunt #shuntlife #stayheartstrong #stayinthearena #relentlesspursuit
breathe - love - recovery - hydrocephalus - brainsurgery - relentlesspursuit - shuntlife - vpshunt - stayinthearena - stayheartstrong - relentless -
lisabalint : Completely amazed by your journey! You compose yourself in such grace and with so much determination. You are an inspiration. Thank you for opening up and sharing such an intimate part of your life. Praying for healing and strength <3
hydromomma : You inspire me. I so admire your positivity. I only hope that my boys are as positive as you are in their future. Thinking of you and hoping for a smooth recovery. And no more surgery!!!
ktpie4141 : βš“οΈπŸ™πŸ’™
cbmama4 : πŸ‘πŸ‘πŸ‘πŸ‘πŸ’™πŸ’™πŸ’™πŸ’ͺπŸ’ͺπŸ’ͺ✌
lowreeezy : Love you baby girl!!! ❀️❀️❀️❀️❀️
lpunya : @amy_booher Xoxoxoxox thinking about you!
seve1010 : Get home safe. Let me know if you two need anything
blyebrarian : Amy, you are amazing
homesewn_kauai - phyliciamiami - carrollinebarnett - ahockma13 -
instagram
shinedarrenfower
www.shinecharity.org.uk - dedicated to supporting individuals and families as they face the challenges arising from spina bifida and hydrocephalus. #ShineUKCharity #SpinaBifida #Hydrocephalus #Charity #NonProfit #Community #Information #ThirdSector #CharityWork #IIH #England #Wales #NorthernIreland #ShineDarrenFower
information - england - charitywork - hydrocephalus - community - iih - thirdsector - spinabifida - wales - nonprofit - northernireland - shineukcharity - shinedarrenfower - charity -
sparkylons : That's Elijah :)
healthysouls - sparkylons - safehousemovement - nokoreadogmeat -
instagram
shinedarrenfower
#ShineUKCharity #SpinaBifida #Hydrocephalus #Charity #NonProfit #Community #Information #ThirdSector #CharityWork #IIH #England #Wales #NorthernIreland #ShineDarrenFower
information - england - charitywork - hydrocephalus - community - iih - thirdsector - spinabifida - wales - nonprofit - northernireland - shineukcharity - shinedarrenfower - charity -
charityclothingco - thatsjustnick - the.instamarketer - safehousemovement -
instagram
shineukcharity
SHINE 'Play & Stay' Event Date/Time: August 8, 2015 10:30AM – 12:30PM Location: Peter Pan Nursery, 12 Hoon Avenue, Newcastle-under-Lyme, #Staffordshire, ST5 9NY The group is for the parents of children with #SpinaBifida and/or #Hydrocephalus aged 5 and under For more information please contact Liz Potts, via E: liz.potts@shinecharity.org.uk or M: 07789 616469
hydrocephalus - staffordshire - spinabifida -
mamahendrie : Do you ever do any near or in Bedfordshire? Xo
carberyl96 - arraya.laineysmama - chris_w_95 - sammy_jh -
instagram
shinedarrenfower
#CharityWalk #SponsoredWalk #Walk4Shine #ShineUKCharity #SpinaBifida #Hydrocephalus #Charity #NonProfit #Community #Information #ThirdSector #CharityWork #IIH #England #Wales #NorthernIreland #ShineDarrenFower
england - charitywalk - charitywork - community - northernireland - iih - shinedarrenfower - charity - information - sponsoredwalk - hydrocephalus - thirdsector - walk4shine - spinabifida - wales - nonprofit - shineukcharity -
crewekids : Nice
charityclothingco - 41ocean - safehousemovement - carberyl96 -
instagram
shineukcharity
#Hydrocephalus #SpinaBifida #IIH #Charity #ThirdSector #NonProfit #England #Wales #NorthernIreland Sign UP: www.shinecharity.org.uk/cycling
england - hydrocephalus - thirdsector - spinabifida - wales - nonprofit - northernireland - iih - charity -
hometahnphotos - arraya.laineysmama - izacyeaman - carberyl96 -
instagram
mrsvickymartin
Sorry for the lack of blog post yesterday (as per my usual schedule), I spent the majority of Tuesday on the phone with insurance companies and financial advisors at the hospital & doctors office so I had no time to write. So yesterday was completely dedicated to making up for Tuesday with Isaiah. ❀️ We blew bubbles, read stories, cuddled, and best of all, painted with kool aid-colored yogurt. I think he may have liked the painting... 😜 #osteogenesisimperfecta #hydrocephalus #fingerpainting
osteogenesisimperfecta - hydrocephalus - fingerpainting -
slyvie : He is so beautiful. He makes me smile. Thank you for sharing him.
jenniferortiz87 : @mrsvickymartin do you just mix the kool aid with any yogurt? I want to try this with noah when we get back from clinic in Omaha!!
meaganleslie24 - shoutinglovedesigns - littlest_warrior - buttondownaccessories -
instagram
shirley_rocks87
It's hard to believe that my baby is 9 years old today!!!! Jared, you've overcome so many obstacles in your life and I could not be more proud of you! I love that you woke up all giggly this morning. It's almost as if you knew that today is YOUR DAY!!!! πŸŽ‰πŸŽ‰πŸŽ‰ just look at that handsome face!!!! Happy Birthday my sweet baby boy!!!!! Just think of all the fun and food we're going to have this weekend!!!!! I love you with all of my heart!!!!!! #HappyBirthdayJared #SpecialNeedsParenting #TeamJared #JaredsJourney #MyBaby #HappyBirthday #ShuntsQuitWeDont #hydrocephalus #warrior #FamilyFirst πŸŽ‰πŸŽ‰πŸŽ‰πŸŽ‰πŸŽ‰πŸŽ‰πŸ˜πŸ˜πŸ˜πŸ˜πŸ˜πŸ˜πŸ’™πŸ’™πŸ’™πŸ’™πŸ’™
happybirthday - warrior - specialneedsparenting - teamjared - hydrocephalus - familyfirst - mybaby - happybirthdayjared - shuntsquitwedont - jaredsjourney -
slynch426 : Happy Birthday Jared I hope you have a wonderful day !!!!
chunky_tuna : Happy birthday Jared!! Auntie loves you!!!
alienlifeform : Happy 9th!!!!!!
jessiblueeyes : Happy birthday handsome! πŸ’™πŸ’™πŸ’™πŸ’™
exsandohsx3 : Happy birthday jared!!! πŸ˜πŸ˜πŸ˜˜πŸ˜˜πŸ’™
hayley_burkhead : Happy Birthday Jared!!
themrsmflores : Happy Birthday my little warrior! Were those doctors wrong or what?? God has others plans for you little baby boy, you were wonderfully made! Many blessings! With lots and lots if love! ❀️❀️❀️❀️❀️❀️❀️❀️❀️❀️❀️
lazarus_orion : πŸ‘πŸŽ‚πŸŽˆπŸŽπŸŽ‰
stacy03_ - nfgiven89 - d_ossers - sheanoodle -
instagram
shineukcharity
#Hydrocephalus #SpinaBifida #IIH #Charity #ThirdSector #NonProfit #England #Wales #NorthernIreland www.shinecharity.org.uk
england - hydrocephalus - thirdsector - spinabifida - wales - nonprofit - northernireland - iih - charity -
juliannekeu - louisetulipxx - maru.chanel - sammy_jh -
instagram
shinedarrenfower
#ShineUKCharity #SpinaBifida #Hydrocephalus #Charity #NonProfit #Community #Information #ThirdSector #CharityWork #IIH #England #Wales #NorthernIreland #ShineDarrenFower
information - england - charitywork - hydrocephalus - community - iih - thirdsector - spinabifida - wales - nonprofit - northernireland - shineukcharity - shinedarrenfower - charity -
crewekids : Impressive
tribones_cause - thatsjustnick - izacyeaman - shineukcharity -
instagram
shinedarrenfower
#ShineUKCharity - www.shinecharity.org.uk #Hydrocephalus #SpinaBifida #IIH #Charity #England #Wales #NorthernIreland #Support #Community #ThirdSector
england - support - hydrocephalus - community - shineukcharity - thirdsector - spinabifida - wales - northernireland - iih - charity -
instagram
michael_le85
2 years ago, I packed up my bags and headed to Go Vap orphanage to volunteer for 2 weeks. From a young age, I just couldn't accept the children of Vietnam still suffering from Agent Orange, despite the war ending 40 years ago. At this point, I've only seen pictures and videos but broke down inside upon my arrival at Go Vap orphanage. Was I too late? Could I save a life? Why did the family abandon their beautiful child? Why does Agent Orange still affect one generation to another? So many questions that I just couldn't answer. I met Hien, a 7 year old girl, who was in her late stages of hydrocephalus. She was bed - ridden and just looked as she was waiting for death to call her name. I didn't take a picture of her as she was in a bad state but the only appropriate picture i took was 2 newborns suffering from Agent Orange from birth. Before I left Go Vap orphanage, I told Hien I was planning to come back the following year to visit her. A few weeks later, I was informed she had passed away. Next year, Fundraise For Vietnam will be heading back to Vietnam to help poor families and orphanages (not government funded) with paying for hydrocephalus operations to give them a second chance in life. I want to take this moment to thank everyone who has made donations to make it all possible. If you know any poor families or orphanages that are not government funded in Vietnam, please do get in touch. We can't change the past but we can shape their future. Together there is hope. #FundraiseForVietnam #FFV #Vietnam #AgentOrange #Hydrocephalus #Vietnam #VietnamWar #PeaceNotWar
vietnam - agentorange - vietnamwar - ffv - peacenotwar - fundraiseforvietnam - hydrocephalus -
atryoshka : @stevesproule
linn28798 - mr_bushido_brown - chazsyed - ceymwa -
instagram
shinedarrenfower
#ShineUKCharity - www.shinecharity.org.uk #Hydrocephalus #SpinaBifida #IIH #Charity #England #Wales #NorthernIreland #Support #Community #ThirdSector
england - support - hydrocephalus - community - shineukcharity - thirdsector - spinabifida - wales - northernireland - iih - charity -
xruth.moore - shineukcharity -
instagram
believe8113
"Never be #ashamed of your #scar; it's only #proof that you are #stronger than whatever tried to hurt you." #Hydrocephalus #PseudoTumorCerebri #Awareness #TBI #BrainSurgerySurvivor #Overcomer #VPShunt #DreamFightBelieve β™‘ #GodIsGood #PraiseHim
godisgood - brainsurgerysurvivor - praisehim - stronger - pseudotumorcerebri - hydrocephalus - tbi - ashamed - vpshunt - overcomer - dreamfightbelieve - scar - awareness - proof -
showtheroll : nice!
melfromok - cordell_thats_me - raising2gents - amanda.pausa26 -
instagram
besweetlove
Our angel yet again had another surgery. He's doing well though. Hopefully we can go back home tomorrow. http://www.gofundme.com/7f9hjq543u #24weeker #alexander #ashton #ivh #hydrocephalus #hospital #micropreemie
micropreemie - 24weeker - ivh - hospital - hydrocephalus - ashton - alexander -
happyedna.ortiz - fj_mommy - oliviahighsmith - preciosa.s_mu.y_fitnes.s -
instagram
b_faitao
Ten days post-op. Although I'd like to say things are improving- pain, soreness, headaches, and dizziness remind me everyday that this battle is far from over. But with each day that passes I have a goal to become stronger. Stronger than this disease and stronger than I've ever been before. I can, I WILL. πŸ’ͺπŸΌβš“οΈ#RaiseAwareness #FindYourStrength #FindACure #recovery #brainsurgery #HydroWarrior #hydrocephalus #Hope #Fight
findyourstrength - recovery - hydrocephalus - brainsurgery - fight - findacure - hydrowarrior - raiseawareness - hope -
cherylg87 : Thinking about you, hope you're doing good😘😘
b_faitao : Thank you! Hanging in there, I hope all is well with you!πŸ˜˜πŸ’ž @cherylg87
cherylg87 : Thanks love! I'm good.. You're amazing,, if you didn't already knowπŸ˜‰
b_faitao : You're too sweet! Thank you so much, I appreciate it more than you know! πŸ’› @cherylg87
mrs.v_102514 : Love you. Take it one day at a time.
nicniclove : Sending my love! Feel better love
b_faitao : Love youπŸ’žπŸ’• @mrs.v_102514
b_faitao : πŸ’™ @nicniclove
xoxo_taylorchristine - suzan_susu - poppystarxoxo - simba_xox -
instagram
amy_booher
Day one... Again. πŸ’™βš“οΈπŸ’™βš“οΈ #Hydrocephalus #shuntlife #vpshunt #brainsurgery #recovery #reclaimed #nevergiveup #stayinthearena #relentlesspursuit
recovery - reclaimed - nevergiveup - hydrocephalus - brainsurgery - relentlesspursuit - shuntlife - hydrowarrior - vpshunt - stayinthearena -
amy_booher : @rdavis06 @lifebehindthelends22 @youngfam07 @blyebrarian thanks #hydrowarrior family πŸ’™βš“οΈ
amy_booher : @gbelts @jess_rnc @colorchic2 thank you πŸ˜˜πŸ’™βš“οΈ
amy_booher : @caitlinstewart1989 @brandtlassen @han_house thanks girls, your support means a lot βš“οΈπŸ’™πŸ’—
amy_booher : @mikkitrow πŸ’•
amy_booher : @pdxhollym πŸ’•
melissamaegan : You are ridiculous you know that? Teach me how to look so pretty after surgery! Hang in there. Thinking of you. πŸ’™βš“οΈ
laauuurenn___ : Praying for you! πŸ’•
moparkimmie : I had a routine surgery last week and ended up being airlifted to our closest trauma centre, I remember thinking of you @amy_booher and what an inspiration you are and I can do this. Thinking of you and prayers for a quick and healthy recovery
modernthrift - mcstevens88 - carrollinebarnett - 1glennmiller -
instagram
woofslc
Sweet #MinnieMoo at the veterinary ophthalmologist today. They believe she has #hydrocephalus and she'll be getting an MRI soon to confirm and start treatment. #fosterdog #rescuedog #bulldogs #bulldogsofinstagram #adoptdontshop #adoptthecropped #americanbully #spayandneuter #specialneeds #dogstagram #dogsofinstagram
specialneeds - rescuedog - spayandneuter - dogstagram - americanbully - hydrocephalus - adoptdontshop - dogsofinstagram - fosterdog - minniemoo - bulldogs - bulldogsofinstagram - adoptthecropped -
ibleedmakeup : πŸ˜”
kelseyyeslekak : Poor baby Minnie moo
ahh_manda228 : Im so happy that there are people like you in the world.
caseyjacketta : Oh no. I still love her so
lmvh22 : Sweet girl!
erikabeewynn : Oh, sweet baby.
gooddogden - destiny.herman - paintsforcharlie - blackmadeline_ -
instagram
ktpie4141
Vroom vroom πŸš—πŸ’¨ #supercam #camspam #veinofgalen #hydrocephalus #hemiplegia #20months
veinofgalen - hemiplegia - hydrocephalus - camspam - supercam - 20months -
krystal.beingmadewhole : He is soo cute! 😍
ktpie4141 : Thank you 😊😊 @krystal.beingmadewhole
xo_lovelo - stasia246 - fabulousmimi22 - lumminex -
instagram
professionalpatient
because today is one of those days...#chroniclife #chronicpain #chronicillness #fatigue #chronicfatigue #eds #ehlersdanlossyndrome #chiari #pseudotumorcerebri #hydrocephalus #hydrowarrior #pcos #endo #ibs #gastroparesis #syringomyelia #invisibleillness #invisibledisability #ptsd #pots #tachychardia #dysautonomia
chronicpain - chroniclife - hydrocephalus - pseudotumorcerebri - dysautonomia - eds - fatigue - pcos - ehlersdanlossyndrome - chronicillness - endo - chiari - ibs - invisibleillness - gastroparesis - pots - tachychardia - syringomyelia - hydrowarrior - invisibledisability - chronicfatigue - ptsd -
k_rose_ : That's so cute!
manic_brain - schizophreniateam - mujeres_en_un_dia - chronicallyfearless -
instagram
shinedarrenfower
www.shinecharity.org.uk - dedicated to supporting individuals and families as they face the challenges arising from spina bifida and hydrocephalus. #ShineUKCharity #SpinaBifida #Hydrocephalus #Charity #NonProfit #Community #Information #ThirdSector #CharityWork #IIH #England #Wales #NorthernIreland #ShineDarrenFower
information - england - charitywork - hydrocephalus - community - iih - thirdsector - spinabifida - wales - nonprofit - northernireland - shineukcharity - shinedarrenfower - charity -
junelimhz - 41ocean - izacyeaman - shineukcharity -
instagram
shinedarrenfower
Looking for FREE and qualified info RE: Spina Bifida? Simply visit: www.shinecharity.org.uk/SpinaBifida :) #ShineUKCharity #SpinaBifida #Hydrocephalus #Charity #NonProfit #Community #Information #ThirdSector #CharityWork #IIH #England #Wales #NorthernIreland #ShineDarrenFower
information - england - charitywork - hydrocephalus - community - iih - thirdsector - spinabifida - wales - nonprofit - northernireland - shineukcharity - shinedarrenfower - charity -
tribones_cause - izacyeaman - stephsorkin - yulindogmeat -
instagram
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