tiannabowman7
I love him :) #Adorable #Sebastian #sebastianstrong #Handsome #spinabifidaawareness #SpinaBeautiful #Spinabifida #fullability #hydrocephalus
handsome - adorable - hydrocephalus - fullability - spinabeautiful - spinabifida - sebastian - sebastianstrong - spinabifidaawareness -
enchantedbadbloodswiftie13 - mayaalyona - lc11cruz - pindropchaos -
instagram
pixiestar84
#atticusmichael0210 #Wednesday #latergram #trooper #hydrocephalus
trooper - atticusmichael0210 - hydrocephalus - wednesday - latergram -
jmluvzcs : Sweet boy
aimeeluvshim : So happy he is doing well
pixiestar84 : Yes it was so much better this time, Went in Wednesday came home Friday 😁
yankeedarlin - patty68xoxo - tayatarabrina - melissa_cherp -
instagram
rhibutlerblogger
#BusinessWithFriends #business #friends #newbusiness #workfromhome #coaching #website #socialmedia #marketing #writer #blogger #blogging #personaldevelopment #selfhelp #author #hydrocephalus #drowningontheinside #book #businessgram
website - businesswithfriends - business - marketing - hydrocephalus - workfromhome - newbusiness - selfhelp - friends - blogging - author - writer - socialmedia - drowningontheinside - coaching - book - blogger - personaldevelopment - businessgram -
salmaa.t : @CLICK_HERE_163_FR33_FOLLOWS @CLICK_HERE_163_FR33_FOLLOWS @CLICK_HERE_163_FR33_FOLLOWS
disruptlifestyle : Follow 4 Follow?
picthecovenant - hunter__rose - tomtano - sociallatte -
instagram
aliasher7111
Finally discharged from the hospital and feeling better, so what's the first thing you do? Play with the hose of course πŸ’¦
brainsurgery - iodinehead - hydrocephalus - neurosurgery - shuntssuck -
aliasher7111 : #hydrocephalus #shuntssuck #neurosurgery #brainsurgery #iodinehead
shermiec : Lmao. Seriously? I hope he isn't too thirsty. Look at those classy tattoos.
xo_tiff_xo : 😘
ashton_harlan - huntersmomm - aad_345 - timberlu -
instagram
thats_keeyleaux
| my lady bug . πŸžπŸ’šπŸžπŸ’šπŸž | #london #lonlon #daughter #hobestfriend #myladybug #hydrocephalus #autism #spinalbifida #epilepsy #dyspraxia #shewon
daughter - spinalbifida - hydrocephalus - epilepsy - lonlon - dyspraxia - london - hobestfriend - shewon - myladybug - autism -
withlove_keaunte - thats_keeyleaux - promiseposey - auptimism -
instagram
cutejournalist86
#Repost @thelsbproject with @repostapp. ・・・ Did you know? #Hyperacusis is a sensitivity to sounds that can affect people with #SpinaBifida and #Hydrocephalus. Be considerate of your neighbors with the #fireworks tonight! πŸ’₯πŸŽ‰ #FourthOfJuly #4thofjuly #independenceday #TheLSBProject
thelsbproject - fireworks - hydrocephalus - 4thofjuly - independenceday - hyperacusis - spinabifida - repost - fourthofjuly -
layacy02 - andyman3959 - verdelicias - celebritychef4u -
instagram
thelsbproject
Did you know? #Hyperacusis is a sensitivity to sounds that can affect people with #SpinaBifida and #Hydrocephalus. Be considerate of your neighbors with the #fireworks tonight! πŸ’₯πŸŽ‰ #FourthOfJuly #4thofjuly #independenceday #TheLSBProject
thelsbproject - fireworks - hydrocephalus - 4thofjuly - independenceday - hyperacusis - spinabifida - fourthofjuly -
cutejournalist86 - sophlivia_twins -
instagram
ashleewellsjaxn
Someone decided to show off for Great Grandma and Grandpa today! I've never seen her take this many steps before! #novagram #savingsupernova #independentwalking #33months #cp #preemiepower #lonetwin #cerebralpalsy #hydrocephalus #miracle
novagram - hydrocephalus - preemiepower - miracle - savingsupernova - 33months - lonetwin - independentwalking - cp - cerebralpalsy -
chickenbells : Super Nova!!
sarahmischia : Go, little precious one, go!
juneandjanuary : she's amazing.
karinleigh : She's so damn amazing
librarianly : omg!! She has it down! Piper only took a few weeks once she got this far, and she walks everywhere!
mommaemmalee : She said Slow down ?!?!
ashleewellsjaxn : @mommaemmalee ha! I said slow down. ;)
erinwinebrenner : Yay!!!!! So awesome!
the.indigo.rose - reflectivelysweet - denisedk12 - larinhaol -
instagram
coco_lina_
#schwerkranker#hydrocephalus#amgesundwerden#schmusen#schmusengehttrotzdem#liebe#brandlbracke#dog#bettzeit#kuschelnmitmama#kuschelnmitmamaistdiebestemedizin#unserganzerstolz#bett#bedtime#ichliebedich
schwerkranker - schmusengehttrotzdem - kuschelnmitmamaistdiebestemedizin - liebe - schmusen - bettzeit - hydrocephalus - dog - kuschelnmitmama - brandlbracke - bett - ichliebedich - unserganzerstolz - amgesundwerden - bedtime -
giehlman - nadineee_sch - heidi_mit_jogurt_im_rucksack - niink94 -
instagram
missdanielle_25
On our first family outing in 2wks!!! WooHoo. He's got his puppy & turtle, he's ready to take on the world! #Happy #CerebralPalsy #Hydrocephalus #CarRide #Love #Perfection
love - perfection - carride - hydrocephalus - cerebralpalsy - happy -
mansour.mirzaee - the_worldisurs - ashleebruce96 - _.aliyaakers._ -
instagram
kap450
Bored in the hospital. Need answers, these meds are a very temporary solution. Any nurse friends of mine wanna come take care of me? Lol @shantel_krawetz @princess_ppeach @ariredekop @ashleymarjoriem and anyone else I'm forgetting lol #health #spinabifida #hydrocephalus #shunt #revision #shunttap #shuntseries #needles #royaluniversityhospital #ruh #yxe #saskatoon #healthcare #adult #headache #vision #sore #stiff #ache #fever #stomach
ruh - fever - stomach - healthcare - sore - needles - adult - ache - yxe - royaluniversityhospital - shuntseries - shunt - stiff - hydrocephalus - saskatoon - shunttap - health - spinabifida - headache - vision - revision -
ashleymarjoriem : Sorry to hear! Let me know if I can help at all!
kap450 : Thanks @ashleymarjoriem if u can make this shunt infection go away that'd be helpful haha :)
shantel_krawetz - franksfitness_ - _melaniealexis - princess_ppeach -
instagram
1d_elli_1d
Out taking pics with my grandma #canon #camera #systemkamera #grandma #Sweden #july #swedishgirl #directioner #spinabifida #hydrocephalus #sommarlov #directioner
sommarlov - systemkamera - spinabifida - hydrocephalus - sweden - camera - directioner - grandma - canon - july - swedishgirl -
kiranaphr - rosalinblus - matinga95 - ivanna_pob -
instagram
momofdoom
Ewan is catching a nap before a rough day of video games, short walks, and getting to watch fireworks from the roof of the hospital. They raised the EVD setting today to see how his brain is tolerating pressure. Fingers crossed he gets out of here without a shunt! #childhoodcancer #hydrocephalus #gingerkid
childhoodcancer - hydrocephalus - gingerkid -
staceyolyvia : Hope for fast recovery
spacecasie - nellsusannepassmore - mylifewitholiver - gena579 -
instagram
mrsvickymartin
Happy Independence Day, America! πŸŽ‰πŸ‡ΊπŸ‡Έ #4thofjuly #independenceday #osteogenesisimperfecta #hydrocephalus
4thofjuly - osteogenesisimperfecta - independenceday - hydrocephalus -
burdenphoto : Love it!β™‘β™‘β™‘
tldimatteo : Perfect! πŸ‡ΊπŸ‡Έ
candice_lynette : ❀️
ashmazerolle : He's so sweet!! Love it
ashloubird : Happy 4th!
samandant - raiderettetracy - shannieellis14 - rhondamdraper -
instagram
thekat5150
#baby #sleepingbaby #babyjordan #efects #mommyandbaby #childrenshospital #hydrocephalus
baby - mommyandbaby - childrenshospital - efects - babyjordan - hydrocephalus - sleepingbaby -
thekat5150 - dmcsaf -
instagram
dmcsaf
This #kid is getting #stronger and more #curious. ..can't leave #nothing in his #reach.... getting #braver... #hewillWALKoneday #hydrowarrior #hydrostrong #hydrocephalus #toddlerlife
toddlerlife - braver - hydrocephalus - reach - stronger - hydrostrong - hydrowarrior - nothing - curious - hewillwalkoneday - kid -
clouds_85 : Go Jordan!!!
ilovenyc2006 - mrsautumnx - charliesangel729 - cgt2 -
instagram
ktpie4141
THIS! This is what makes everything worth it! Seeing my baby make progress is the best feeling in the world and I am so thankful for everyone that has made it possible! Ever since his last surgery there has definitely been an increase in cognitive and physical development! Cameron used his right arm/hand intentionally for the first time the other night and has continued to do so on command! He is also starting to understand more things and is doing much better with bearing weight on his legs! I know we have a long road ahead but he honestly amazes me more and more each day! I thank God for every day I get to spend with him because it is such a blessing. He is a miracle and I couldn't be more proud to call him my son πŸ’™πŸ™πŸ‘Ά #proudmama #supercam #camspam #veinofgalen #hydrocephalus #hemiplegia #19months #godisgood #miraclebaby
godisgood - miraclebaby - hemiplegia - hydrocephalus - supercam - 19months - veinofgalen - proudmama - camspam -
rachele_fox : πŸ™ŒπŸ™ŒπŸ™Œ that's awesome. Love it
_queenbeebih : Yayy! Thats amazing katie! So many prayers and wishes he keeps progressing!
hb313 : Yyyaaaayyy CAM!! Happy 4th KT!
sunny_babeyy23 : @grandmommyteri
junebugsmomma : ❀️❀️
giulianahs : Yeees CAM! πŸ™πŸ½πŸ‘¦πŸ»πŸ‘πŸ½
lvincent1018 : Go Cam Go!
mommymclean : Amazing!!!
lumminex - krystal.beingmadewhole - nahiomy85 - xo_lovelo -
instagram
jerembuss
Please consider joining Team Eva the Diva as we "walk for a cure" at this year's Hydrocephalus Association/Seattle Children's Hospital WALK, Aug. 1st at Warren G. Magnuson Park in beautiful Seattle! Donations are also always welcome. || Link in profile. || #hawalk #hydrocephalus #hydrowarrior @hydroassoc
hydrowarrior - hawalk - hydrocephalus -
rosaliejennings - heysahara - grammalee6 - jessteal88 -
instagram
ha_walk_charlotte
Over the last 50 years, there have been no significant improvements in Hydrocephalus treatments and no progress toward prevention or a cure. Register to WALK today! The link is on our profile. #Hydrocephalus #raiseawareness #WalktoEndHydrocephalus
raiseawareness - walktoendhydrocephalus - hydrocephalus -
bigtex1963 - kbrandenb - dangerouslyovereducated - charliesangel729 -
instagram
secondhopecircle
A video of Kitkat enjoying some belly rubs. This little sweetie has hydrocephalus and you may notice her paws shaking in the video. It's just one of her neurological symptoms and doesn't really affect her. She has a lot of balance issues but plays like a pro! At only 1 year, she loves to play, snuggle and purr! #specialneedspetsrock #petswithspecialneedsrock #ilovemyrescuedpet #hydro #hydrocephalus #catsofinstagram #catslife #cafsofontario #guelph #white #purr #bellyrubs #video #fosteringsaveslives #fosterfailure #adopted #adoptdontshop
fosterfailure - ilovemyrescuedpet - bellyrubs - guelph - petswithspecialneedsrock - adoptdontshop - video - cafsofontario - purr - catsofinstagram - hydrocephalus - adopted - catslife - fosteringsaveslives - white - specialneedspetsrock - hydro -
nurse_wretched : She's perfect!!!!
jenntrudel - krol1977 - lecibobrowski - shop_wilsons -
instagram
ellenmay242
So I went for it!!!! As everyone knows my confidence isn't great from the stroke but I faced my fears and went for it πŸ’ͺ I can't thank @officialjameelajamil enough for giving me the confidence to go and for being to kind when i arrived πŸ’— thank you @stephanienala too for always being so supportive and boosting my confidence. I probably wont get through, but its certainly given me a boost πŸ’πŸ’— #happy #jameelajamil #stephanienala #thankyou #confidence #stroke #hydrocephalus #cancer #catwalkcontender #simplybe #london #milkmodelmanagement #cosmopolitan #plussizefashion
stephanienala - cosmopolitan - jameelajamil - cancer - catwalkcontender - simplybe - hydrocephalus - confidence - milkmodelmanagement - thankyou - stroke - london - plussizefashion - happy -
jenny_soldierx : I'm so proud of you! xxx,
mae_rosexx : So proud babe, you look amazingπŸ’œ
andy_cfvsnow - mae_rosexx - eric_t_glynn - proudalouder -
instagram
dizzi_lizzi88
So proud of my gorgeous little man 😘 πŸ’— #hospital #chiarimalformation #hydrocephalus #mylittleman #somuchlove #manchesterchildrenshospital
manchesterchildrenshospital - mylittleman - somuchlove - hospital - hydrocephalus - chiarimalformation -
dcurless - coxroxx - chyna_thompson - bantomine -
instagram
angelmhansen
The new 2015 "Team Grace" Hydrocephalus Association and Seattle Children's Hospital Walk t-shirt design. Dark gray shirt with a bright blue ink. Get your orders in $20. Angel26hansen@gmail.com #teamgrace #blessthismess #wbinkattire #hydrocephalus #freshT #gograce #hawalkseattle
blessthismess - teamgrace - gograce - fresht - hawalkseattle - hydrocephalus - wbinkattire -
mrsobrien08 : Can we get this printed on a onsie?
mechellchell - rowdybusch18 - grimes2002 - nicolesobrien -
instagram
rhibutler62
Late Friday night planning for a big productive weekend! #fridaynight #late #lovewhatido #love #business #businessplan #newbusiness #newwebsite #rhibutler #hydro #hydrocephalus #blog #socialmedia #socialmediaplan #marketing #campaign #drowningontheinside
love - campaign - marketing - hydrocephalus - fridaynight - newbusiness - rhibutler - blog - business - newwebsite - socialmedia - late - drowningontheinside - businessplan - socialmediaplan - lovewhatido - hydro -
neonbrand : πŸ™Œ
nickjperoni - sixundergroundmedia - dipdaproducer - sociallatte -
instagram
krissylantz
#tbt, 2010- between brain surgeries(that were only a couple of weeks apart). My Hershey baby wouldn't leave my side. 😍🐢 Plus she looks for any excuse to get up on the couch.. #labsofinstagram #hydrocephalus
hydrocephalus - tbt - labsofinstagram -
karlymount - amberrrr_roseee - amym616 - abbydivito -
instagram
b_faitao
Every time someone asks me what's that scar? What are those tubes? What's Hydrocephalus? That's the problem!! We need more awareness for this life altering disease! #Hydrowarrior #FindACure #Hydrocephalus #RaiseAwareness #DandyWalkerMalformarion #VPShunt
findacure - dandywalkermalformarion - raiseawareness - vpshunt - hydrowarrior - hydrocephalus -
amberdowty50 - rdavis06 - sam_machado92 - lolaaaaty -
instagram
cocolicious769
My strange little mouse baby! #chihuahua #teacup #chocolatemouse #hydrocephalus #disabled #puppy
teacup - disabled - chihuahua - chocolatemouse - puppy - hydrocephalus -
farmdashian : Looks so much like Toby @cocolicious769 so adorable xxx
cocolicious769 : @farmdashian aww how is he? Charlies abit disabled and wierd bless him! U still need to bring Toby over!! xxx
farmdashian : He's a little turd! You'll have to teach me how to discipline him. He just looks at me and I let him get away with murder! How's your tribe? πŸ˜› xxx
cocolicious769 : @farmdashian all good babe. Yeah i will come and teach him a thing or two xxx
cmtstrong - chocolatelabcoco - atomsama - farmdashian -
instagram
cleaneating_sassy
Today is July 2nd the "middle" of the year! So today we shed some light on corpus callosum awareness. The corpus callosum connects your left and right brain. Easton was born missing part of his corpus callosum. What does this mean for Easton; we don't know. Since this disorder effect every single person differently we have no idea! As of today he is doing remarkably well - he developing at his own pace and doing wonderful. What does the future hold for him? Only time will tell and this is terrifying as a parent. I worry about him fitting in and finding his place in life. I worry about his happiness how he will be treated in school. I worry about him having to struggle to understand things that just come so easily for other kids. Symptoms of having this disorder may include. - developmental delays - delay in motor skills - feeding delays - language and speech delays - low muscle tone - social immaturity - inability to see another's point of view - poor under standing of social cues - attention deficit - obsessive behavior - unable to interpret facial expression - difficulty with reasoning - difficulty with understand truth and not truth These are all very hard to understand and deal with. We have no idea if Easton will be effect by any of this we have already seen some struggles but with lots of therapy he's doing great. We take each day as it comes; and we will handle each mile stone as they come. We love you little man and we will be here supporting you, cheering for you and uplifting you! πŸ’™ #photooftheday #instagood #corpuscallosumawareness #corpuscallosum #brain #braindisorder #july #hydrocephalus #twins #twinsofig #twinsofinstagram #babies #adorable #TagsForLikes.com #happy #igbabies #childrenphoto #toddler #instababy #oneyear #photooftheday #support #family #awareness
twinsofinstagram - family - hydrocephalus - corpuscallosum - instababy - oneyear - brain - july - childrenphoto - corpuscallosumawareness - braindisorder - support - igbabies - instagood - tagsforlikes - twinsofig - twins - photooftheday - babies - toddler - adorable - awareness - happy -
jstein0109 : Idk if I want to say fortunately or unfortunately, but I was 25 when I found out that I was missing this part of my brain. I always knew there was something not so normal about me. I also have a vp shunt as well as a seizure disorder. So it's been a tough road but I'm surviving.
cleaneating_sassy : @cbmama4 yes I've heard that too! Eastons case worker asked about autism with easton since he tends to rock all the time?! But we said something to his neurologist and he said if easton was on the autistic spectrum it would be to soon to tell and really didn't show cause for concern ☺️
cleaneating_sassy : @jstein0109 oh wow we found out that Eastons brain wasn't developing "normal" when I was 18 weeks pregnant and then he had a MRI at 2 months old which showed ACC Easton has some delays but he works very hard in therapy but his therapist don't know if he has a few delays because of ACC or because he was born early. Either way we are so proud of him and how far he's come already
jstein0109 : @cleaneating_sassy that's great! I was not 3 months premature as well. I have a vp shunt due to being born with hydrocephalus as well as a seizure disorder that I am luckily taking a very good prescription for. I know it must be overwhelming but it does get better. Your son will hopefully be able to learn to adapt to the challenges he may face. I'm only speaking from experience.
jstein0109 : Born* 3 months
dmcsaf : @cleaneating_sassy Jordan was born without his corpus callosum, we were told in utero and of course given many negative scenarios as a result , but as of today, Jordan has some of those traits listed, but he's pushing through them, developmentally he's progressing and most recently has progressed with his eating (eating like a champ these days!) We are prepping for preschool in the Fall, I am daily amazed at how Jordan approaches life and its challenges, he never gives up. He remembers things by jingles...we were walking into Walmart the other day and he saw the Subway sign and said Subway. He recognizes McDonald's as we drive past them , he sings the jingle and says "I'm loving it". He amazes me. I, too, am terrified of the unknowns, but we just take it a day at a time. I love seeing your babies grow and progress, thank you for sharing. I love our hydro community Thanks @jstein0109 for sharing also and being so supportive of Jordan
theblissfulbean : You're such an incredible Mama! I am in awe of you every post I read. Sending you all so much love! 😘😘😘
heather_villalovos : Easton your amazing!! You're such a wonderful mommy. Love you all!! I love all the E's
far_nf7 - thememoirsofamommy - mamazou85 - nickky0713 -
instagram
meglaodonna
I put him on the couch for a minute and he is eating the cushions, or kissing them....either way, lol. #blindbabyproblems #septoopticdysplasia #corticalvisualimpairment #hydrocephalus #hypotonia #hydrowarrior
hydrowarrior - blindbabyproblems - septoopticdysplasia - hydrocephalus - corticalvisualimpairment - hypotonia -
meglaodonna : He thinks everything that touches his face is food or lips looking for baby kisses!!!
rjaisstylist - toddgoing - cmr630 - kel77li -
instagram
ktpie4141
#tbt to last week with my little nugget he's got some moves πŸ˜‚πŸ˜πŸ‘Œ anytime he hears music this is what happens and It never gets old lol! #supercam #camspam #veinofgalen #hydrocephalus #hemiplegia #19months #tinydancer
tinydancer - hemiplegia - hydrocephalus - tbt - supercam - 19months - veinofgalen - camspam -
hhiilluuhhrree : So cute
junebugsmomma : He does!! So cute!!
mazhaste : Que hermoso ese bebé
chocthai21 : So cute! He is getting so big!πŸ’•
_arieelll : Omg he is so cute!!! πŸ˜‚πŸ’—
xo_lovelo - nahiomy85 - carrollinebarnett - ella_da_bella -
instagram
1d_elli_1d
Picture I took off my sunshine on the big screen. #OTRASweden #OTRAGothenburg #Sunshine #Hero #Sweden #Gothenburg #HarryStyles #hydrocephalus #spinabifida #wheelchair #directioner #tbt #23rdOfJune #göteborg #blue #yellow #concert #loml
hero - concert - loml - sunshine - tbt - yellow - gΓΆteborg - otragothenburg - 23rdofjune - blue - wheelchair - hydrocephalus - sweden - harrystyles - directioner - spinabifida - otrasweden - gothenburg -
idiz98 : 😍😍
1d_elli_1d : @idiz98 ikr he is so precious 😍
ivanna_pob - fembotnik - karen_mallette - krippled_klay -
instagram
_terecamberos_
Picked up my sons shoes from an awesome local artist. He was beyond himself. I love them πŸ’™πŸ’› #spinabifida #hydrocephalus #myhero #myson #nevergiveup
myhero - nevergiveup - myson - hydrocephalus - spinabifida -
kiks831 : Nice! πŸ‘πŸΌπŸ‘πŸ»πŸ‘πŸ»πŸ‘πŸ»
msssvivacious - alcam - reluvdove - cindywhopper -
instagram
blindpunker
Lola had a rough start to her life. She suffered a stroke while I was pregnant, had a bum kidney, epilepsy, hydrocephalus, and now major food allergies to several things. Riley's has made all these obstacles easier and manageable. We are so thankful for them! Now I have a few months off until my next convention and it's time to get another goodie bag put together for the kids who aren't able to be home with their families for the summer. Every 100 likes my Facebook page "Stitched from the Crypt" gets I'll add another handmade item to the package I've already started on! @walkrstalkrcon @amcthewalkingdead @aerosmith #walkerstalkercon #WalkerNation #thewalkingdead #zombies #rileys #giveback #stitchedfromthecrypt #superhero #lola #geek #nerd #wscorlando #WSCAtlanta #walkerstalker #cute #skater #dancer #skate #dance #art #artsy #mermaid #handmade #sew #unicorns #foodallergies #epilepsy #hydrocephalus #rileykids
sew - cute - epilepsy - rileys - zombies - dance - rileykids - unicorns - hydrocephalus - artsy - geek - skate - art - stitchedfromthecrypt - wscatlanta - nerd - wscorlando - lola - superhero - giveback - walkerstalker - handmade - walkernation - foodallergies - dancer - thewalkingdead - skater - walkerstalkercon - mermaid -
flickinger.melissa - dancetonightapp - angieyabbah021 - tatlockink -
instagram
Iconosquare feedback