catherine_lynn_hughes
This is the suitcase that holds the programmer that magnetically programs the shunt in my brain. #Catherinesmedicaldrama #hydrocephalus #vpshunt
hydrocephalus - catherinesmedicaldrama - vpshunt -
krissylantz : Ahhhh gotta love that briefcase
lisa_lester - nurserachel85 -
instagram
lifewithlouiebutt
#hydrocephalusawareness #itsafact #themoreyouknow πŸ’§
itsafact - hydrocephalusawareness - themoreyouknow - hydrocephalus -
kimber_deyton : @sophinataylor well, then I guess you're in that 40%, huh? πŸ˜• It didn't say 100%, its basic math, you're in college.. you should know this. You came off waaaay rude when she was stating a FACT. Shame on you.
sophinataylor : @kimber_deyton yes I am im very happy to that a very rude way of coming off to someone u don't even know... Shame on you shame shame
kimber_deyton : @sophinataylor ooookay?!
lifewithlouiebutt : @sophinataylor @kimber_deyton let's not fight ladies. You can find out facts about #hydrocephalus everywhere (this actually came from one if their sites for awareness). As you both know Louis has severe hydrocephalus and with having as many followers as I do awareness is important to me 😊 have a great night
sophinataylor : @lifewithlouiebutt I know alot abut hydo I've had it my whole life I have a vp shunt and 2forms of CP and I do have hydrosufious stuff on my page as well and I've volunteered with other ppl like Louis too πŸ˜™
aarons_mommy21 : Will Louis be able to do things himself when's older or will he have to rely(sp) on someone all the time? @lifewithlouiebutt
momma2ryker_n_maddox : Whether he falls in that 60% or the other 40% he is very lucky to have such a loving momma that does so much for him. Regardless he will grow up to be perfect because of you Angie @lifewithlouiebutt
lifewithlouiebutt : @momma2ryker_n_maddox you are seriously so sweet. Thank you ❀
lisa.61413 - expecting_mourao - daviannaa._ - _britneyy.xo -
instagram
wondereyed
When you got water in yo brain #ocdpuppy #hydrocephalus #neurotic @mcouts13 @ballofurpoms
ocdpuppy - hydrocephalus - neurotic -
suebonney : Ruby!!!!
msmoose : Awww Roo
rachsheri - mcouts13 - liztag22 - its_saralala -
instagram
brantleyandme
How many babies learn to drive before they can crawl? Go Brantley Go! #brantleysbigadventure #gobabygo #spinabeautiful #spinabifida #hydrocephalus #chiarimalformation #vroomvroom #watchyourtoes
watchyourtoes - vroomvroom - hydrocephalus - gobabygo - brantleysbigadventure - chiarimalformation - spinabifida - spinabeautiful -
natalieb43 : I have the cutest nephew in the world!
twlmomma - queenbunch - jamiedotson1 - heyaitsamanda -
instagram
catherine_lynn_hughes
Admitted to NAC #UofU #hydrocephalus #Catherinesmedicaldrama
catherinesmedicaldrama - uofu - hydrocephalus -
slricker - thhhompson_97 - walter_party - nurserachel85 -
instagram
jboosway
Life w/o a bib is a messy one. Super Mario has ice cream on his head lol!!! #bibs #jboosway #specialneedsawareness #specialneedsbibs #hydrocephalus #childrensbibs #adultbibs #babybibs
adultbibs - childrensbibs - hydrocephalus - specialneedsawareness - babybibs - bibs - specialneedsbibs - jboosway -
xximaxboxxx : He looks happy!! @jboosway
jboosway : @xximaxboxxx he lllloooovvvveeesss ice cream!! Lol
xximaxboxxx - neotech_home_health -
instagram
foxxy3
😞
lifebattles - ihatethis - pain - keepfighting - staystrong - hydrocephalus - inpain - vpshunt - surgery - shunt - recovery -
jtowww : Much love for you. I know we've never met but you're so strong. And I don't think I could bear even half of what you're going throughπŸ’•
foxxy3 : #hydrocephalus #surgery #keepfighting #staystrong #lifebattles #surgery #recovery #shunt #vpshunt #inpain #pain #ihatethis
lucavitelloo - mmaddyrose - kirstyrobson_ - cory_finch -
instagram
ktpie4141
We did some sensory play in Occupational Therapy today and Cam did great! Normally he doesn't like sensory play but he actually participated today 😊 Happy Friday! #supercam #camspam #veinofgalen #hydrocephalus #hemiplegia #occupationaltherapy #18months
occupationaltherapy - veinofgalen - hemiplegia - hydrocephalus - 18months - supercam - camspam -
carla_monti : That smile! 😍😍
tonebologn : He is so adorable! !!!β™‘β™‘β™‘
_queenbeebih : Loved seeing you guys today! Hes adorable! Because he has such a wonderful mommy!
mrs_katecompton : KF my phone completely took a crap I think it's water damage and I'm freaking out. A whole week of babe's life in photos gone :(((((
ktpie4141 : Nooo!!!! Omg that's horrible :(((( try putting it in a bag with rice? @mrs_katecompton
ktpie4141 : It was good seeing you all today too! And thank you that's so sweet 😘 @_queenbeebih
xo_lovelo - alygonzaless - stasia246 - nahiomy85 -
instagram
emiliemweber
Keeping this little guy busy through the month of June #Finn #preemie #hydrocephalus #2yearsold #earlyintervention
hydrocephalus - earlyintervention - preemie - 2yearsold - finn -
cassiweber : Look at all of those free days for auntie time!
jpsound86 - cassiweber - brookeannmechelke - jmitchellparker -
instagram
shinedarrenfower
If you are involved with a Trust or Foundation, either as a staff member or trustee, and would be interested in supporting Shine please call us on 01733 421362 or email liz.cook@shinecharity.org.uk #Hydrocephalus #SpinaBifida #Charity #UK #Advice #Information #IIH #IH #ShineUKCharity #Equality #Campaigning #Community #Support #ThirdSector #NonProfit
information - equality - advice - hydrocephalus - shineukcharity - community - iih - ih - thirdsector - uk - spinabifida - campaigning - nonprofit - support - charity -
eugenegessman - nonprofitweekly - selamtaproject - crewekids -
instagram
shinedarrenfower
Instead of being given the usual collection of picture frames, plants or bottles of bubbly, your celebration could help Shine to make real and lasting positive changes in the lives of people living with spina bifida and hydrocephalus. #Hydrocephalus #SpinaBifida #Charity #UK #Advice #Information #IIH #IH #ShineUKCharity #Equality #Campaigning #Community #Support #ThirdSector #NonProfit
information - equality - advice - hydrocephalus - shineukcharity - community - iih - ih - thirdsector - uk - spinabifida - campaigning - nonprofit - support - charity -
healthysouls - gather_clothing - puredrift_ - yasmin786inayah -
instagram
shinedarrenfower
Just so YOU know ............ there's NO AGE LIMIT to Shine's FREE membership scheme! πŸ˜†πŸ˜†πŸ˜†πŸ˜‡πŸ˜‡ shinecharity.org.uk/membership #Hydrocephalus #SpinaBifida #Charity #UK #Advice #Information #IIH #IH #ShineUKCharity #Equality #Campaigning #Community #Support #ThirdSector #NonProfit
information - equality - advice - hydrocephalus - shineukcharity - community - iih - ih - thirdsector - uk - spinabifida - campaigning - nonprofit - support - charity -
eugenegessman - healthysouls - rims1008 - suuue123 -
instagram
shinedarrenfower
There are many ways in which your school could raise money for Shine: 1. Organise a fashion show 2. Hold a talent competition 3. Have a collection after an assembly or concert 4. Run a non-uniform or fancy dress day Plz Leave a comment if you'd LIKE to find out MORE! #Hydrocephalus #SpinaBifida #Charity #UK #Advice #Information #IIH #IH #ShineUKCharity #Equality #Campaigning #Community #Support #ThirdSector #NonProfit
information - equality - advice - hydrocephalus - shineukcharity - community - iih - ih - thirdsector - uk - spinabifida - campaigning - nonprofit - support - charity -
m.ray_17 - 2secondsorless - ohrientertainment -
instagram
nedadams
Spencer has learned how to catch the ball! That was this years goal. I Love when he succeeds! #HardWork #stud #LittleLeague #Mariners #baseball #Hydrocephalus
hardwork - baseball - stud - littleleague - hydrocephalus - mariners -
rachstucki - ohkaty13 - brandonstucki - hurricane_john -
instagram
shinedarrenfower
Don't FORGET that these days you can donate to Shine direct on-line! www.shinecharity.org.uk/donate πŸ˜„πŸ˜„πŸ˜„πŸ˜„ #Hydrocephalus #SpinaBifida #Charity #UK #Advice #Information #IIH #IH #ShineUKCharity #Equality #Campaigning #Community #Support #ThirdSector #NonProfit
information - equality - advice - hydrocephalus - shineukcharity - community - iih - ih - thirdsector - uk - spinabifida - campaigning - nonprofit - support - charity -
lifehacks1990 -
instagram
joeradley
Ruby stood up by herself for the very first time yesterday! πŸ˜‚ so proud of her! πŸ˜† #babysister #spinabifida #hydrocephalus #so #proud #standing #so #clever #amazing #giftfromGod
standing - clever - babysister - proud - hydrocephalus - amazing - so - spinabifida - giftfromgod -
bec_leng - zadageeson - smiffoyy - llouisew -
instagram
shinedarrenfower
Children of every generation love Teddy Bears, and we'd like to introduce you to one special bear who started life as a unique educational tool here at Shine. shinecharity.org.uk/bennybear #Hydrocephalus #SpinaBifida #Charity #UK #Advice #Information #IIH #IH #ShineUKCharity #Equality #Campaigning #Community #Support #ThirdSector #NonProfit
information - equality - advice - hydrocephalus - shineukcharity - community - iih - ih - thirdsector - uk - spinabifida - campaigning - nonprofit - support - charity -
eugenegessman - ms_woods84 - bubblylass13 - lulu17hall -
instagram
catherine_lynn_hughes
In observation overnight in the hospital. Hopefully surgery tomorrow or Monday. Glad we won the fight and were admitted. #hydrocephalus #vpshunt #Catherinesmedicaldrama
vpshunt - catherinesmedicaldrama - hydrocephalus -
cgolledge : Prayers for you Catherine!
tracylyn82 : I wish they had a dislike button! Hang in there!
slricker - jwyand - arts_by_kate -
instagram
lealykkegaard
Blodprøver og shuntjustering @hydrocephalusforeningen #shuntlife #hydrocephalus #hydrowarrior #rigshospitalet #verafiluka #sejeste
sejeste - hydrowarrior - verafiluka - rigshospitalet - hydrocephalus - shuntlife -
christinafjo : Smukke Ves ❀️
winnieraundorf - mettehellerups - piasfarveunivers - saramille123 -
instagram
camera_cupid
No New Year's Day to celebrate No chocolate covered candy hearts to give away No first of spring No song to sing In fact here's just another ordinary day No April rain No flowers bloom No wedding Saturday within the month of June But what it is, is something true Made up of these three words that I must say to you I just called to say I love you I just called to say how much I care I just called to say I love you And I mean it from the bottom of my heart - Stevie Wonder #hydrocephalus and the other is an almost normal brain scan.
hydrocephalus -
dannymaximus : Clouded judgement must look like that
camera_cupid : @dannymaximus nice interpretation. πŸ‘
ari.nathan : What's up AV!
vaimanik : This song is LOVE.
camera_cupid : @ari.nathan taking photos of the brain.. And then typing reports :)
camera_cupid : @vaimanik just came to my head.. ❀️
shariq2406 - gautam_k_ - anandthite - rudhee_sehgal -
instagram
catherine_lynn_hughes
ER. Just had a shunt tap. #hydrocephalus #vpshunt
vpshunt - hydrocephalus -
arts_by_kate : :(
zoboegal : You got this girl
zoboegal -
instagram
believe8113
#TBT to my 8th #BrainSurgery πŸ™ˆ #VPShunt #ouch #pain #blessed #November2013 #scar #hydrocephalus #IWinAgain πŸ‘πŸ‘ŠπŸ’ͺ☺
pain - hydrocephalus - brainsurgery - tbt - blessed - november2013 - iwinagain - ouch - vpshunt - scar -
bkendra13 - emilyslesueur - meganannchowski - kcristino3 -
instagram
believe8113
Everyone, RE-READ that; enough said. #pain #struggle #strength #strong #LoveYourself #migraine #HighICP #hydrocephalus #PseudoTumorCerebri #ChronicIllness #life #IWillOvercome #ButIDontLookSick #DreamFightBelieve πŸ˜” Can't wait to be with the one who makes me feel good all weekend long!
life - strength - pain - migraine - pseudotumorcerebri - loveyourself - hydrocephalus - butidontlooksick - highicp - struggle - dreamfightbelieve - strong - chronicillness - iwillovercome -
mariannarena0810 - freakathleteapparel - theycallmetraci - chronically.amazing -
instagram
kakitopi
Pagi yang headache... Sakit kepala itu memang dah sebati dengan gua... Apa kan daya itu ujian... #SentiasaPositif #SakitPenghapusDosa #SabarBilaDiuji #Hydrocephalus
hydrocephalus - sabarbiladiuji - sakitpenghapusdosa - sentiasapositif -
cahaya_nyata - adibahfumio_ - zielalisraman - norsafikahbakri -
instagram
nikkichintala
This is what the results is of working really hard at pt and standing up for over 5 mins with mine and the therapist help πŸ˜±πŸ‘πŸ»πŸ’ͺ🏼 #baileywelton #stronggirl #shesgoingtomovemountains #spinabifidababy #spinabeautiful #spinabifida #chiari3 #ChiariMalformationbaby #hydrocephalus #helpfindacure
shesgoingtomovemountains - chiarimalformationbaby - spinabifidababy - hydrocephalus - stronggirl - baileywelton - spinabifida - chiari3 - spinabeautiful - helpfindacure -
mimim0lina - karakiralfy - rockermommy3 - kbarry777 -
instagram
shinedarrenfower
Thank you to ALL those who have taken the time to donate to Shine. VISIT: www.shinecharity.org.uk/donate #Hydrocephalus #SpinaBifida #Charity #UK #Advice #Information #IIH #IH #ShineUKCharity #Equality #Campaigning #Community #Support #ThirdSector #NonProfit
information - equality - advice - hydrocephalus - shineukcharity - community - iih - ih - thirdsector - uk - spinabifida - campaigning - nonprofit - support - charity -
lousunsmile35 - suuue123 -
instagram
catherine_lynn_hughes
Back down to SLC I go. #Catherinesmedicaldrama #hydrocephalus #Iamsickandtiredofbeingsickandtired
hydrocephalus - catherinesmedicaldrama - iamsickandtiredofbeingsickandtired -
hannah941215 : I like the 1st hashtag, lol!
hannah941215 : Sorry your in SLC again.
slricker - kdaddyh - lisa_lester - arts_by_kate -
instagram
6paradise66
#Minnie #spinabifida #hydrocephalus #baby #amazing #specialneeds #photography #girl #myelomeningocle #booboo #loveher #daughter #blonde #blueeyes #moroccan
specialneeds - loveher - daughter - photography - hydrocephalus - blueeyes - minnie - amazing - moroccan - booboo - spinabifida - baby - girl - myelomeningocle - blonde -
missalazay -
instagram
shinedarrenfower
For a small cost, which goes to help support people with spina bifida and/or hydrocephalus, you can design and back a balloon to travel the furthest in one or more of our 10 races each year. Plz Leave a comment if you'd LIKE to find out MORE! #Hydrocephalus #SpinaBifida #Charity #UK #Advice #Information #IIH #IH #ShineUKCharity #Equality #Campaigning #Community #Support #ThirdSector #NonProfit
information - equality - advice - hydrocephalus - shineukcharity - community - iih - ih - thirdsector - uk - spinabifida - campaigning - nonprofit - support - charity -
joffff : I'd put some coins in the bucket but releasing balloons is just littering
isaiah_adams - bemoreaware - carberyl96 - nalu.me -
instagram
ktpie4141
Cameron had his pre op appointment with the Cardiologist today and I am one very happy Mama! They are taking him off of the diuretic he's been on since birth and we don't have to go back to the cardiologist for a year! She said that he looks great! His heart is the size of a 3 year olds but that the function is good! He still has a small hole in his heart but nothing concerning and he is cleared for surgery next week! β€οΈπŸ™ŒπŸ’ͺπŸ™πŸ˜Š #GIG #supercam #camspam #veinofgalen #hydrocephalus #hemiplegia #seizures #18months #echocardiogram
seizures - hemiplegia - hydrocephalus - echocardiogram - supercam - gig - 18months - veinofgalen - camspam -
julymel : that's such great news!!! such a strong little super hero! <3
ktpie4141 : Thank you girls he is such a fighter πŸ’ͺπŸ’ͺ @alc316 @julymel
shannylkoch : Yay Cam!!! πŸ™ŒπŸ™ŒπŸ™Œ
carla_monti : That's wonderful news! What a strong gorgeous boy ❀️❀️❀️
jessicao124 : Great news!
beverly.may : Yay, awesome news!
k8luppino : I knew that boy had a big heart πŸ˜‰πŸ’—
tangledintheblue : Such great news!
ha_walk_charlotte - nahiomy85 - stasia246 - eric.griffin.355 -
instagram
shinedarrenfower
Did I mention that Membership to Shine is completely FREE!?? πŸ˜€πŸ˜€πŸ˜€πŸ˜€πŸ˜€ shinecharity.org.uk/membership #Hydrocephalus #SpinaBifida #Charity #UK #Advice #Information #IIH #IH #ShineUKCharity #Equality #Campaigning #Community #Support #ThirdSector #NonProfit
information - equality - advice - hydrocephalus - shineukcharity - community - iih - ih - thirdsector - uk - spinabifida - campaigning - nonprofit - support - charity -
elmoh_ugm - sweet_sleep - tina.morgan.f - childcreativitylab -
instagram
el_donaldo
#tbt When we had our first #hydrocephalus meetup at Niagara Falls with other families we met online, #LorelaiLeigh made the Buffalo News newspaper. And it just so happened to be my birthday that day as well. 😊 Hard to believe it's been 5 years! #2010 #niagarafalls #almostfamous #buffalonews
niagarafalls - buffalonews - 2010 - lorelaileigh - hydrocephalus - tbt - almostfamous -
jane.doh : Awww how sweet ! I was photographed and put in the paper at that age too. We are just to good looking (said in Zoolander voice)
danielle_praga - iheartmrwright - nmdsned - emilymay669 -
instagram
shinedarrenfower
A Good Helping has been compiled by Shine member Rebecca Morris, who shares her story below. She has collected recipes from celebrities and other inspirational people such as Baroness Tanni Grey Thompson DBE, Ainsley Harriott, Hugh Bonneville and Dame Ellen MacArthur, there is even a recipe from Rebecca and Benny Bear! shinecharity.org.uk/cookbook #Hydrocephalus #SpinaBifida #Charity #UK #Advice #Information #IIH #IH #ShineUKCharity #Equality #Campaigning #Community #Support #ThirdSector #NonProfit
information - equality - advice - hydrocephalus - shineukcharity - community - iih - ih - thirdsector - uk - spinabifida - campaigning - nonprofit - support - charity -
elmoh_ugm - wefficiency -
instagram
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