Congrats Hayley and team for winning the 2015 Girls Jr. National Championships 18 Open Gold medal and earning the all tournament MVP award! 🏆🎉#gjnc2015nola #mvp 👏🏻 #ebv
crissyy28 : Go Hayley!!
lukegrafton - eberanek14 - lisaecaputo - lisa84060 -
#piccollage #books #fragment #escritos #fragmento #de #mi #libro #boricua #writer #facebook #snapchat #etc #ebv #historias
de - escritos - fragmento - historias - fragment - writer - mi - snapchat - libro - etc - ebv - books - facebook - boricua - piccollage -
_michelle27 - saryvf - keziiaa - puerto_rico_cristo_teama -
🎶 #piccollage #jandasilva #bff #mynigga #follow4follow #snapchat #kik #ebv #masters #voices #friends #goodtimes #buenosmomentos #cantantes #cristianos #unavoz
snapchat - voices - kik - unavoz - ebv - goodtimes - follow4follow - friends - masters - bff - cristianos - cantantes - mynigga - buenosmomentos - jandasilva - piccollage -
saryvf - keziiaa - leojimeh - nildita30 -
#piccollage #buenosmomentos #encasa #friends #church #christian #goodtimes #beauty #masters #maestras #de #ebv #kik #snapchat #youtube #f4f #follow4follow
christian - beauty - de - goodtimes - kik - ebv - snapchat - church - follow4follow - friends - masters - maestras - youtube - buenosmomentos - encasa - f4f - piccollage -
nildita30 - keziiaa - puerto_rico_cristo_teama -
#piccollage #primas #ebv #snapchat #facebook #boricua #puertorico #happyface #blackandwhite #smiles #beauties #haha
smiles - beauties - blackandwhite - puertorico - haha - snapchat - ebv - facebook - primas - boricua - happyface - piccollage -
portu_sergio - keziiaa - saryvf - nildita30 -
cassidydrurypullen : Thank you!:)
eberanek14 - bridgette.chalmers - mriemer41 - morteza_akrami -
#Repost @lymestats with @repostapp. ・・・ Have you been diagnosed with CFS? One of the most common misdiagnoses of Lyme disease, Chronic Fatigue Syndrome (CFS) is a non-specific diagnosis given when rudimentary tests fail to uncover the underlying cause. More sophisticated investigations often reveal the presence of a range of pathogens capable of establishing life-long infections with sophisticated immune evasion strategies. Among these pathogens are Borrelia burgdorferi and common Lyme disease co-infections such as HHV6, EBV, Mycoplasma. Sign and share the White House petition to urge legislation, funding for better testing and treatment, and education of doctors and the public for this complex disease called Lyme (including co-infections) - link through from the bio or at lymestats.org #cfs #lyme #lymedisease #lymestats #lymediseasechallenge #chronicfatigue #hhv6 #ebv #mycoplasma #borrelia ⛅️☝️⚡️
hhv6 - lymediseasechallenge - borrelia - lyme - lymedisease - ebv - mycoplasma - lymestats - chronicfatigue - cfs - repost -
julianlopper5 - herazee - theonlymdz - lindsayoschuler -
oldskoolparties : Love it!
call0fdaddy - marcelairias_ - vlacayo15 - lucia9568 -
janzmiller : Ick!!' Don't give it all away...
chronicillnesscaregiver : Sorry I'm new to your page as I was searching the hashtag. What's in the IV to combat the EBV?
ashleylisa1015 : @chronicillnesscaregiver it is a super immune anti viral IV. Pumping in a lot of vitamins to help my immune system fight the EBV. My naturopath is Dr. Alan Christianson. Look him up, he's amazing!
ashleylisa1015 : @janzmiller not giving, getting vitamins. My Epstein Barr is crazy active again. Trying to make it go dormant again.
chronicillnesscaregiver : @ashleylisa1015 thanks for the info! My wife had a flare up two days before her birthday beach trip in May that put her in the bed for a month.
rocco514 - acssunshine - emilyyfinch - jennifershauf -
Have you been diagnosed with CFS? One of the most common misdiagnoses of Lyme disease, Chronic Fatigue Syndrome (CFS) is a non-specific diagnosis given when rudimentary tests fail to uncover the underlying cause. More sophisticated investigations often reveal the presence of a range of pathogens capable of establishing life-long infections with sophisticated immune evasion strategies. Among these pathogens are Borrelia burgdorferi and common Lyme disease co-infections such as HHV6, EBV, Mycoplasma. Sign and share the White House petition to urge legislation, funding for better testing and treatment, and education of doctors and the public for this complex disease called Lyme (including co-infections) - link through from the bio or at lymestats.org #cfs #lyme #lymedisease #lymestats #lymediseasechallenge #chronicfatigue #hhv6 #ebv #mycoplasma #borrelia ⛅️☝️⚡️
hhv6 - lymediseasechallenge - borrelia - lyme - lymedisease - ebv - mycoplasma - lymestats - chronicfatigue - cfs -
chronicillnesscaregiver : When you mention "co-infections" you talking about the others you mentioned and are they considered part of Lyme, came about as result of? That's intriguing.
lymestats : @chronicillnesscaregiver if considered part of Lyme, yes though view is divided (IDSA vs. ILADS) look up Dr. Richard Horowitz who says Lyme is a multi-systemic disease syndrome since there are so many complications involved - his book and interviews are excellent
chronicillnesscaregiver : @lymestats thanks for the info. I know her EBV flares up at the most inopportune times and she does a ton of research so we will check this out.
ennaoi : Awesome post. I was misdiagnosed with this for 9 years before I was correctly diagnosed with Lyme & co.
lymestats : @ennaoi @chronicillnesscaregiver 💚💚
lymestats : @chronicillnesscaregiver i have chronic ebv as well and llmd put me on an herbal killer (tincture) for several months - we are testing my levels for it again this month to see if it has lessened
lifeastride : I was misdiagnosed with CFS for 6 years before I got a positive Lyme test.
therealauntbetty - chronically_joyful_living - trinaheff - avivapeltin -
Congrats Presley and Kyla placing 2nd at the AAU Santa Monica U16 division. Good job girls!! 👏🏻👍🏻#ebv #beachvb #aau #santamonica
rockrigg - bridgette.chalmers - eberanek14 - lukegrafton -
I took this a couple years ago while standing in line. Something about this simple act spoke to me. When I feel really down or need inspiration, I take a look at this. I don't aspire to have a large home or a fancy car. My goal is, many years from now, to still be able to hold the hand of the person I love. #love #simplicity #spoonie #hope #chronicillness #aih #autoimmunehepatitis #fibrofighter #fibromyalgia #chronicpain #ebv #chronicepsteinbarr #cfs
simplicity - love - spoonie - chronicpain - autoimmunehepatitis - cfs - chronicepsteinbarr - ebv - aih - fibromyalgia - chronicillness - fibrofighter - hope -
finonalicious : Beautiful.
life_love_and_lavender_blog : This is so perfect
chronicillnesscaregiver : That's beautiful and I hope you will be able to!!
mixedbatman - finonalicious - kwietna - rainbow_in_darkness -
Congrats Avery and partner. 2nd place at the AAU Santa Monica U18 and getting a bid to participate in the Junior Olympics!! 👏🏻👍🏻 #ebv #beachvb #aau #santamonica
averyrigg : Thank you😘😘
abbyyylane28 - henryemm - paolanicoles_ - e_gordon203 -
Stems for water tubes! #slyme #ebv #unob #pinkslyme #maria #headyglass #glassart #glasslife #glassofig #boroofig
scomomoanet : Looks like I'm gonna have some fun.
meb.glass - sherlocksglass - hunterstone420 - hippie.ty -
Disfrutando el viaje a lo inexplorado! #sisterlove #EBV #musicteachers #summer2015 #ViajealoInexplorado #ICDCManá
jai.ros - angeliito_96 - flinche - tntmusicbox -
Congrats to our athletes that came in 1st and 2nd place at the AAU Marine St. tournament 🏆. 1st place: Piper and partner 👏🏻👏🏻 2nd place: Kelli and Alexia 👏🏻👌🏻 Keep up the great work girls! #ebv #beachvb #aau #marinestreet
aless_brooks - kristal.noirr - swatchmajorseries - alvaro_herra -
francescacapolongo : @kimbo_it
maurorep - valiushh - alessioamatucciph - francescacapolongo -
#Repost @julikeenecn with @repostapp. ・・・ #ivvitamins #lymeistreatable #anewperson #CFS #EBV #Housecalls #customnutrientIVdrips #mobileivdrips #IVDoctors
ivvitamins - lymeistreatable - housecalls - ivdoctors - anewperson - ebv - customnutrientivdrips - mobileivdrips - cfs - repost -
gentletouchmobilelabs - benvolio_onyemaechi - praying4a_miracle - sal_nuno_ -
Me BEFORE treatment which included three days a week of custom IV nutrients and medication. 30 pounds heavier no energy could barely run my clinic thyroid went #hashimotosdisease adrenals were not working, hormones were a mess, had to take cortisol, #CFS #EBV #lymedisease #Lyme #Moldtoxicity #Moldsucks I didn't know exactly what was wrong but I knew something was very very wrong. And I have been a clinical nutritionist in private practice since 1996. Before that I worked worked in hospitals.
julikeenecn : Oh and let's not forget #hairloss that was fun too. 👎😦😬😮
marylouiseweller - dizzidahlia - ski_yoga_guy - merriadearman -
#ivvitamins #lymeistreatable #anewperson #CFS #EBV #Housecalls #customnutrientIVdrips #mobileivdrips #IVDoctors
ivvitamins - lymeistreatable - housecalls - ivdoctors - anewperson - ebv - customnutrientivdrips - mobileivdrips - cfs -
therealstella_ - marylouiseweller - angels_lyyfe - dalai.lama -
Es una bendición enorme de Dios servir a mi gente, aprender de ellos y crecer juntos en él cada día. #TardeDeTalentos #EBV #NVC #COE
paopadierna1 : Hermosa mi amiga @ygambin... Te felicito por servir al Señor allá y en cualquier lugar. Tienes un corazón enorme. Love u. <3
ygambin : Love you @paopadierna1
averbeld : Bacano vale mía, que el Señor te siga usando para impactar la vida de esos pequeños...
ygambin : Así es amigo mío @averbeld
henrydsarmientop - elfedegr - pipepaternina - carlosjhan -
"Both Cancer and Lyme disease are devastating. Both wreck families. Both make victims unable to eat, unable to stay awake, unable to sleep, unable to work. Both involve excessive, invasive treatments that kill healthy cells. I have lost friends and family members to both. But there are some notable differences — and those differences are all in how other people respond to the illness. How other people perceive the sick person, and the sick person’s family. If you have Cancer, or another sickness from the established disease Canon. The register of approved diseases. Diabetes or AIDS or Parkinson’s or Multiple Sclerosis or Cancer. If you have Cancer, people will listen. If you have Cancer, your health insurance will probably cover your treatment, at least partially…whatever you want that treatment to be. If you have Lyme disease, you will get letters from your health insurance company saying that they can’t cover any of your treatment because the IDSA Guidelines don’t recognize chronic or late-stage Lyme disease. If you have Cancer, people will establish foundations, and run 5k’s, and pass acts in Congress and wear ribbons and buy bracelets and pink things to raise funds for research — to the tune of billions a year. If you have Lyme disease, no one will raise funds for research, or even believe that you have a disease. But you’ll look around one Saturday and realize your 5-year-old daughter is missing…and you’ll find her down the street, peddling her artwork and her trinkets door-to-door. To raise money for the family. If you have Lyme disease, you will go broke…while you’re going for broke. If you have Cancer, and you’re a kid, the Make-A-Wish Foundation will arrange for you to meet your favorite celebrity or go to Disney World. And Hollywood will make movie, after movie, after movie about your story." An except from an article called "Lyme? At Least It Isn't Cancer." By Emily Reach White, posted on www.lymedisease.org.
chronicpain - ehlersdanlos - tickbornedisease - pain - cfsme - rockymountainspottedfever - lymedisease - ebv - courage - lymie - babesia - chronicillness - me - strength - invisibleillness - mixedconnectivetissuedisease - pots - suffering - lyme - peoplehopetribe - invisibility - healinglyme - bartonella - hope - tbda -
lelandandlyme : @thetubefedwife I'm going to check out your blog! 💕 I know. It's so unfortunate that folks don't understand there is debilitation, suffering, pain + illness that can strike people at any age. The toll on our bodies can be just as serious and life-threatening. I am so glad we've got such amazing women like you in this community that speak up, even when facing some really, really hard stuff. You're awesome and incredibly important 👊 xoxo
lelandandlyme : @owlyfightinglyme I totally feel that 💚 I can't even believe it...it's really horrifying. I'm so glad we've got each other to talk about all of the social junk that comes along with this fabulous set of diseases. We're going to make it and be louder, and more vibrant than ever 💞 I hope you and your sweet daughter are hanging in there!
lelandandlyme : @sarahsmosaic That just makes my blood boil. I am so sorry. I have heard that before too and it is so defeating + damaging sometimes 💚💚💚 sending love and hugs.
thetubefedwife : @lelandandlyme Thank you so much! 💕 You just totally made my night! I so hope you can come to the #seattlespooniemeetup I would love to meet you! ☺️
lelandandlyme : @thetubefedwife 💕Hehe! I really hope I can make it. I'm going to try to coordinate an appt. for that date! Super excited about that. Are you still on the search for a location?
thetubefedwife : @lelandandlyme I found a perfect location 💕 but had to switch to weekend before (July 25th) since I forgot the 1st was Seafair! Lol 🙈
bekindforlyme : Thx for talking about this. Ive mentioned it on personal pgs here and there but end up feeling bad when i shouldnt. To add: I know several ppl who have Cancer and Lyme. Every single one says Lyme is much more horrific to deal with as a whole. From support, cost, pain...also, i know many ppl right now w Cancer and of course it sux of course they are scared. They are all still working, go out, do things because they can. Some days no but mostly yes. Majority of ppl i know w late stage Lyme dont have any of that. We have to humilate ourselves for help. Then the ppl say well u can die from Cancer. Yes u can and Ive lost best friend, father and several other friends to Cancer. They suffered but a few months w Lyme its almost always years. Lyme also kills but in many ways the saddest is suicide. For that to be number 1reason it speaks volumes of how much we suffer and cant get help. Its not an illness competition but heard many w Lyme wish they had Cancer instead. How sick is that? Its terrible and ive thought the same many times. Just herxing alone is like (what i heard) ten times worse than chemo sickness. Sorry for rant but appreciate u speaking on this.
bekindforlyme : @lelandandlyme ^^^that and may I repost this w ur text?
peoplehopeorg - bites.of.faith - candiceinwonderland_ - avivapeltin -
#hi #ich #schön #ebv #Model #wow #verpissdich #nackt #narcissus #nofilter #franciscolachowski #selfie
ich - schön - franciscolachowski - wow - ebv - hi - nackt - verpissdich - narcissus - model - nofilter - selfie -
emily_kunis : Hey there😏 Sexyy💋
oook17 : Yummy 😮😍
pleasedontstopthe_music : oh my gosh so cutie
pratheek20 : Woooow
timavenger90 : Du hast schöne Lippen
xx.w0nderful.xx : Voll hübsch 💕
seven_champion - prinzo.08.15 - barbara.garofalo.t - rajchris9 -
A selfie because they're important 👌 Hehe. Laying in bed now reflecting on our brief and beautiful adventure! Sometimes it's hard to come up with at least 5 reasons to be alive, but today, I counted a few more than that with ease ☀️ Of all of the pain and sickness I endure, these days bring me a bit of resuscitation 💕
chronicpain - ehlersdanlos - spooniesupport - summer - selfie - sunshine - sauvieisland - selflove - lymedisease - ebv - healing - queer - selfcare - portland - flowers - chronicillness - spooniesisters - gratitude - spoonie - mixedconnectivetissuedisease - pots - lyme - lymedontkillmyvibe - summertime - warmth -
lelandandlyme : #lyme #lymedisease #lymedontkillmyvibe #healing #spoonie #spooniesisters #spooniesupport #mixedconnectivetissuedisease #ehlersdanlos #EBV #chronicpain #chronicillness #sauvieisland #portland #pots #gratitude #summertime #summer #selfcare #selflove #queer #selfie #flowers #warmth #sunshine
bites.of.faith - hip_dysplasia - chronically_joyful_living - pearl_at_heart -
CONFESSION: my diet for the past few days has consisted almost entirely of potato chips (organic, GMO free of course!). Time to put some nutrients back in my body. My dinner tonight: Coconut kale with red lentils, green onions and fried shallots over rice. Hearty and delicious, #dinner#food#foodie#cleaneating#vegan#vegetarian#veggies#comfort#yummy#instafood#earth#love#life#love#happy#ebv#healthy#kale#lentils
life - love - kale - food - foodie - vegan - ebv - cleaneating - earth - lentils - yummy - healthy - vegetarian - comfort - instafood - dinner - happy - veggies -
dannny_daniel : @CLICK_HERE_TO_HAVE_254_FOLLOWS @CLICK_HERE_TO_HAVE_254_FOLLOWS @CLICK_HERE_TO_HAVE_254_FOLLOWS
suryodayam : 👌😍
ugly_by_nature : Nice
foodearthlife : @suryodayam 😄🍴@ugly_by_nature thank you
ugly_by_nature : @foodearthlife Your welcome 👍
vegantraveling : Yum yum💚💚💚
twovegangals - trulyhumane - medicalmunchies - foodearthlife -
#clostridi #brucelle #virusoftheday #followforfollow #EBV #epsteinbarrmerda #mihaiportatoviarugiada #faringotonsillite @rugiada_nagaf 😘
epsteinbarrmerda - followforfollow - brucelle - clostridi - faringotonsillite - ebv - mihaiportatoviarugiada - virusoftheday -
andrea_jacobellis : #citomegalovirus
federico_manzato - lentavala - stallomarco - sandro.massa -
Devon and Taylor after winning their silver medal and placing 2nd in the 14's Open Division at the New Orleans girls indoor championships. Congratulations Devon, Taylor and team!! 🏆 #ebv #beachvb
westcoastvbc : Congrats!!
devnewberry : thank you so much!!💖💖
tayfourticq : thank you!!💗
baltysolo : woooooo!!!!!!!!! Go dev @devnewberry
devnewberry : ☺️💗💗 @baltysolo
64cyns : Yay Dev! #ProudAuntie
stefanieroseup : @sunshinevolleyballclub
zopike01 : ^^^👍👍👍👍
kristal.noirr - kleiner_mike - deporteconex - sunshinevolleyballclub -
Kelli looks very happy with her gold medal and team trophy 🏆after taking 1st in the girls indoor championships in New Orleans in the 15's American Division. Congratulations Kelli and team!! #ebv #beachvb
kellibarry : thanks !!
westcoastvbc : Congrats @kellibarry !!!
stefanieroseup : @sunshinevolleyballclub
mayaelizabeth__ - justin.mcc - kristal.noirr - abbyyylane28 -
jennifershauf : Praying for total restoration of your health! ❤️
ashleylisa1015 : @jennifershauf thank you! 😘
jennifershauf - davoria_jewelrypreneur - lynelle0705 - deano7246 -
Woke up at 5 am this morning with a swollen spleen + the malarial body feelings. Still running a fever so I am taking an early morning bath. In my years of experiencing infectious disease, I will no longer go to the hospital unless I know my life depends on it. I bet many other spoonies will relate to that. It's so absurd to feel unsafe + unheard at the place that is supposed to value your life with the utmost care. I swear, when I am feeling better, the health care system will feel me like a virus, and hear me like ringing in the ears. Lyme patients + chronically ill folks have wrongful deaths daily, I can't live my life knowing I did not work hard to change that statistic. I lost my Mom, grandpa + uncle to the poor health care system and the incompetence of MD's + hospitals. I can't take that. Trying to focus on my illness as a vessel of important activism + use my anger as a tool of positive force + healing for my own body. #lymie #poorhealthcaresystem #patientrights #activism #bethechange #equality #disability #disabled #haveavoice #feminism
chronicpain - cfsme - pots - disabled - ebv - bethechange - chronicillness - als - lymedontkillmyvibe - borellia - haveavoice - activism - disability - lyme - cfs - peoplehopetribe - spooniesisters - feminism - hhv6 - ehlersdanlos - fever - pain - babesia - lymie - infectiousdisease - selfcare - poorhealthcaresystem - me - lymedisease - equality - spoonie - patientrights - ms - cmv - bartonella - mixedconnectivetissuedisease - healing -
lelandandlyme : #lyme #lymedisease #lymedontkillmyvibe #borellia #bartonella #babesia #EBV #hhv6 #cmv #pots #mixedconnectivetissuedisease #ehlersdanlos #ms #als #infectiousdisease #CFS #cfsme #ME #chronicpain #chronicillness #spoonie #spooniesisters #peoplehopetribe #healing #pain #fever #selfcare
freephim : I completely agree about hospitals. It's like a game of roulette, you may get lucky and be seen by a doctor that's on the ball... or you may end up essentially trapped under poor quality care too sick to go somewhere else. I can be puking blood or having a borderline hypertensive crisis & I will wait to hear from my PCP that actually understands my case.
rebelhomemaker : 💞💞💞💞
jenniferglows : You are awesome Leland!!! YEAH!!
bites.of.faith - abovetherow - pearl_at_heart - holdaway.fit -
marie.md95 - aunt_nanni - amii38 - cocoisback57 -
Great day in Santa Monica for some of our EBV players at the U16 USAV 👍🏻👌🏻#ebv #beachvb #usavjbt #santamonica 1st place: Rio and Tabitha🏆 3rd place: Kyra and Kenzie
iman_khanalizade - reese.a.dotton - e_gordon203 - monica24weglarz_ -
Congrats to our EBV girls getting 1st and 3rd place yesterday at the CBVA U18 tournament in Long Beach👏🏻👍🏻👌🏻 1st: Mia and Grace🏆 3rd: Cameron and Presley #ebv #beachvb #cbva #longbeach
justin.mcc - emily_crazycat - paolanicoles_ - maeva.vb -