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Important notice - Major update coming on June 1st. Please read carefully.
chrispotter4mscure
It's World MS Day today and I just have to voice my feelings that I really HATE MS Hugs!! Feels like being in a vice grip with knives!!!! The MS Hug, as it is called, (though it is not like any hug you could ever want) is technically a type of neuropathic pain classified as a type of paresthesia (felt in the chest and/or rib cage area. Basically you have tiny muscles between each rib (intercostal muscles) that help hold your rib cage together as you breath in and out as well as allow your torso to flex and bend; it is believed that a lesion in the spinal cord causes them to contract/spasm creating the sensation that your chest is caving in or the sensation that you are wearing a tight girdle (a girdle is kind of like a corset). This pain is usually felt in the chest but can reach down to your abdomen and sometimes around your back, but as always with MS, everyone is a little different. This can last from minutes, to hours, to days at a time often making it feel painful or difficult to breathe, even making you feel the need to vomit. #msawareness #MSHugsSuck #CureMS #baclofen #multiplesclerosiscansuckit #WorldMSDay
mshugssuck - msawareness - worldmsday - baclofen - curems - multiplesclerosiscansuckit -
ladycave81 - driedrie - mireyaz - athagreat_ -
instagram
cerebral_palsy_and_me
A much needed day off today! Everyone is getting ready for the wedding of the year this weekend and we can not wait!! My oldest brother is getting married in Saturday and Gabriel is going to be a page boy with his cousin, they are going to look absolutely gorgeous 😍 and can't wait to see my date Auntie Dawny πŸ˜‚πŸ˜‰ So hospital appointment this morning with 4 physics and a doctor telling me about the baclofen pump for Gabriel and how it would benefit him. Now, this is yet another step in his life that I struggle with, putting a pump under his skin that goes into his spinal fluid just worries me. Also, put him through another operation, top ups and replacement every 7 years for what? It won't make him walk, it won't make him move on his own so what is the benefit?! With all those people sitting and talking to me, I tried my best not to shed a tear and I succeeded in not crying this time 😬 He's going to try some new medicine that will reduce his eccentric movement...but I love his little eccentric moves 😒 As we were so late out of hospital we decided to grab a pub lunch just the two of us and now at horse riding. Mum is using the Caddy Van today so got to get Gabriel and his wheelchair in my car which isn't impossible but a little difficult at times, especially when I need to change him before horse riding, in the middle of fields and stables....so the Mercedes boot came in handy!! πŸ˜‚πŸ˜‚ Really looking forward to seeing not only my brother get married but be part of seeing two people who are made for each other declare their love for each other ❀️❀️ To make sure I'm not too happy we've been declined charity funding again for some equipment for Gabriel, and people think things are easy and we get given things for free - we really don't!! #cerebralpalsyandme #cerebralpalsyawareness #disabledson #singlemum #rda #wedding #hospitalapp #baclofen #operations #mercedes #love
operations - love - mercedes - rda - singlemum - wedding - cerebralpalsyawareness - hospitalapp - cerebralpalsyandme - baclofen - disabledson -
crumbz - antsneath - arash.heydariii - gnezdinaadelasn -
instagram
reedrylereedkyle
Just me dying on a heat pad. #lyrica #norco #bentyl #clonazepam #baclofen #trazadone
bentyl - norco - clonazepam - trazadone - baclofen - lyrica -
ryanchorbagian - e.a.maltez - rollalldaymtb - ceebow -
instagram
feliz_pharmd
Look at the flick of the wrist πŸ˜œπŸ’Š #compounding #baclofen
compounding - baclofen -
abccompoundingpharmacy : πŸ™Œ πŸ™Œ πŸ™Œ
smeshma - imfabulyss - sincerelycymone - iamchasb -
instagram
petrushcaramher
La dosis de siempre #lyrica #amantadina #baclofen #diasepan.... Esto es todos los días #NMO
baclofen - amantadina - diasepan - lyrica - nmo -
tattoolifecommunity - beto.chinas -
instagram
michal_hromas
Ranni sypani :)))) // #morning #pills vs. #8GB #usb #flash #disc #multiplesclerosis #luhacovice #tecfidera #ltryptofan #dlphenylalanin #baclofen #selzin #magneb6 #treatment #breakfast
multiplesclerosis - dlphenylalanin - tecfidera - 8gb - magneb6 - disc - selzin - breakfast - luhacovice - pills - ltryptofan - usb - flash - morning - treatment - baclofen -
arielpenelope : Tu flashku ale asi nezer
remtelpla - arielpenelope - truelifecenterforwellbeing - shirelyqizaker -
instagram
isyam_mohd
Tambah stok utk 2 bulan...nampak banyak tp 1 jenis je...ubat ni utk rilekkan kaki dr krem (nyetok)...sampai bila xtau la nk kena telan ubat ni..klu kaki ni kurang krem, x kebas ok dh ckit rasa...ada la perubahan jgk tp ni sama lg...wallahualam #neuro #sakitsaraf #multilevelspinalarachnoidcyst #spinalArachnoidCyst #HUSM #liobac #baclofen
neuro - sakitsaraf - liobac - multilevelspinalarachnoidcyst - spinalarachnoidcyst - baclofen - husm -
wan._.azam - produk.tok.aki - eibuei - lxaaa_ -
instagram
longhair1992
#leki #acl #baclofen #cóΕΌ Oby do Listopada wytrzymaΔ‡...grrr
cΓ³ΕΌ - baclofen - leki - acl -
julianacostamusic - naumienko_ -
instagram
rudedogchew
#bumpertheboxer #dogswheretheywant #rescuestray #colorful #gabapentin and #baclofen made me feel too good! #payingforitnow #fromyesterday when I forgot to #laydown WAHHHHH! Exactly. Could be worserπŸ˜†
colorful - fromyesterday - payingforitnow - dogswheretheywant - rescuestray - bumpertheboxer - laydown - baclofen - gabapentin -
maisymcmoo - jpmcbuhnerington - melissa5573 - andrewclois -
instagram
chrispotter4mscure
The MS Hug, as it is called, (though it is not like any hug you could ever want) is technically a type of neuropathic pain classified as a type of paresthesia (felt in the chest and/or rib cage area. Basically you have tiny muscles between each rib (intercostal muscles) that help hold your rib cage together as you breath in and out as well as allow your torso to flex and bend; it is believed that a lesion in the spinal cord causes them to contract/spasm creating the sensation that your chest is caving in or the sensation that you are wearing a tight girdle (a girdle is kind of like a corset). This pain is usually felt in the chest but can reach down to your abdomen and sometimes around your back, but as always with MS, everyone is a little different. This can last from minutes, to hours, to days at a time often making it feel painful or difficult to breathe, even making you feel the need to vomit. #msawareness #MSHugsSuck #CureMS #baclofen
msawareness - mshugssuck - baclofen - curems -
aks15 - bushwhackpetgear - narcissisticwrench - queridasabrina -
instagram
cassief717
Tablets for the week only 450 πŸ˜‚ #spoonie #spoonielife #tablets #medicate #pills #spondylolisthesis #crohns #colitis #anemia #anxiety #depression #nervedamage #spine #paracetamol #tramadol #codeine #gabapentin #fluoxetine #lansoprazole #azathioprine #amitriptyline #bisacodyl #baclofen #folicacid #fultium #accrete #toomany #spooniestrong #spoonieforlife
spondylolisthesis - azathioprine - fluoxetine - folicacid - tramadol - spoonielife - fultium - spoonieforlife - tablets - spooniestrong - accrete - paracetamol - depression - anemia - toomany - anxiety - spoonie - spine - lansoprazole - codeine - pills - medicate - nervedamage - colitis - amitriptyline - bisacodyl - baclofen - crohns - gabapentin -
kayshalsmith : 😘❀️
ruth_morley123 - organiclifeblog - deliri.um -
instagram
_melsroom
Tastes just like candy. 🍭🍬 these are the meds I currently take daily (some 2x+ daily if needed) : 10,000 IU of vitamin D, Prevacid, 100mg of Gabapentin, B complex, Zyrtec, 10mg of propranolol, 20mg of Zoloft, 60mg of pyridostigmine. Used to be more of 'em to help me sleep and to help me stay awake, but they didn't help much, so i use natural remedies for those. Also tried #Baclofen, but it made me feel worse. Meds are often trial and error and they don't come without side-effects themselves. Ah, the life of a #spoonie is delish. #MSawareness #chronicillness what's your breakfast like? 🍽 #STRONGER16 #strongerthanMS #insideaspoonielife
strongerthanms - spoonie - msawareness - baclofen - stronger16 - chronicillness - insideaspoonielife -
mskecha : Ugh i take around 8 vitamins
your_daily_cupcake : If you don't mind my asking what are you doing/taking naturally to keep you awake/energy? I take Modafinil, I still feel like I need something else.
_melsroom : @your_daily_cupcake to sleep: I keep a journal, I meditate, I use essential oils. To stay awake/energy: I drink matcha water and kombucha.
shaypay20 : Has anyone tried amino acids for energy? I need something other than another med.
kelliemarie319 - mskecha - alxndraclark - xoliviarochex -
instagram
elisappelgren
Sedan tre dagar tillbaka har jag börjat med daglig medicin mot spasticiteten i framförallt mina ben. Nu får jag den i knappen men kanske kommer de att operera in en pump på mig istället. #cerebralpalsy #cerebralpares #baclofen #baclofenpump
baclofen - cerebralpares - baclofenpump - cerebralpalsy -
micaelagillgren : Hejja mer rörlighet och mindre spasticitet 😘
69madde - madeleineochloui - theresecarlsson26 - stina.linnea -
instagram
michal_hromas
#snidane #breakfast #luhacovice #multiplesclerosis #medicine #tecfidera #baclofen #magneb6 #selzin #enjoy #ostrava #daily #routine #treatment
multiplesclerosis - enjoy - tecfidera - snidane - ostrava - daily - magneb6 - selzin - routine - medicine - breakfast - luhacovice - baclofen - treatment -
chefboyali305 : Nice!
chefboyali305 - alexveach - medical_josh - martineoletalien -
instagram
jennyslifewithspoons
Heaven frozen on a stick. Laying low today, my back is pretty sore at the areas that were stuck/tapped and CRPS is taking it as a open invitation to go nuts but I have had worse. The other side effect I got was nightmares and crazy dreams. Mostly they related to my back hurting extremely bad (the dream was over exaggerating the pain level)leading to passing out or falling and seizing. This dream/nightmare happened repeatedly typically within first 5 minutes after falling asleep, I woke up at least the first 10 times of trying to sleep so kinda tired as well.
jennyslifewithspoons : @purpleviolin91 ⬆
purpleviolin91 : Yeah
love_much_73 : PrayingπŸ™ for you sweetie..that you be able to rest and your pain and discomfort subside and may you longer have no horrible😨 nightmares so that ur able to getπŸ˜ͺ sleep! πŸ’žπŸ’ž
shadowprovesthesunlight : Back to dose Popsicles lol. I have pain dreams sometimes. Sorry you're dealing with that
saltysweetie - ladyobsidian - fallenfirechild - shanna_and_mitch -
instagram
jennyslifewithspoons
Baclofen has been injected intercathecral, now to see if it helps...
intercathecralbaclofen - musclespasms - spoonie - baclofenpump - intercathecral - rsd - musclerelaxer - baclofen - muscletension - eds - crps - chronicallyill - spinalfluidinjection - dystonia - chronicillness -
tine5880 : Sending hugs your way!
chicky_2209 : We keep our fingers & paws crossed for you! πŸ€πŸ€
jennyslifewithspoons : #CRPS #RSD #dystonia #EDS #Spoonie #chronicallyill #chronicillness #intercathecral #intercathecralbaclofen #baclofen #baclofenpump #musclespasms #muscletension #musclerelaxer #spinalfluidinjection
purpleviolin91 : Keep us posted
chicky_2209 - chronic_khaleesi - brittneysfight - chaybshines -
instagram
just.breathee.babyycakes
Back is killing me. Just took a #baclofen
baclofen -
nostalgiaispeace -
instagram
raulrules
Let's see, #Adderall for my #ADD *oooh! A rhinestone (sorry got distracted)*...where was I...oh yes, #Prozac and #Wellbutrin for my #Anxiety and #GeneticDepression, #Topiramate and #Baclofen for the daily #ChronicPain I'm in from my lumbar #degenerativediscdisorder I got from a hiking fall on my tail bone some 25 years ago or so. And lastly, because these other fucking #ailments take away my desire from being seen in the light, #VitaminD because I'm so #vitamanDdeficient that I just as well be a #vampire. So I'll ask a serious question. Now, I've never been a fan of the old #420, but would that one #naturalherb take care of my "issues" in one fell swoop? And am totally being serious. Would it better than these chemicals I'm swallowing every day? Especially for my chronic pain? What day ye? #breakfastofchampions #pharmaceuticalsaretryingtokillme #IMissFeelingAlive
chronicpain - imissfeelingalive - breakfastofchampions - add - topiramate - 420 - vitamanddeficient - degenerativediscdisorder - prozac - pharmaceuticalsaretryingtokillme - naturalherb - geneticdepression - vampire - vitamind - adderall - anxiety - baclofen - ailments - wellbutrin -
olsenhandmade : The goose is loose.. it strikes again!! #good
raulrules : Lol @olsenhandmade, or should I say "Roach" lol, I figured it was a spellcheck error. I'm notorious for that shit. I type what I'm trying to say as I'm thinking and I end up skipping words because my brain words do fast that when I read it after I send it I'm like "DUDE!!! English really is your second language" lol.
raulrules : See, I did it again...."words do fast" what the fuck is that?!!!!!πŸ˜‚
olsenhandmade : Lol u cutie!!
svil0rdvvid - arobertor - peterrabbit86 - addonaire -
instagram
bongblazerbey
Pills glorious pills! #pills #baclofen #pregablin #trippy #meds #caps #bac #happy #life #sale #lifestyle #pillsfordays
life - lifestyle - pillsfordays - sale - trippy - caps - meds - pregablin - happy - baclofen - pills - bac -
_babisource_ - htyinc - jay.bigstagram - andreastefanci -
instagram
just.breathee.babyycakes
#pignose idk tbh blame the #baclofen #trazodone
pignose - baclofen - trazodone -
nostalgiaispeace - luckycharmscam -
instagram
belladonna_amore
When your doctor writes a script for a months supply of pain meds because you keep falling and your insurance won't cover an MRI. #sacrioilliitis #lumbarradiculopathy can't feel my legs or feet. But I am a happy camper. #norco #baclofen #flexeril
lumbarradiculopathy - flexeril - baclofen - norco - sacrioilliitis -
miguels_jr - philipmorg2 -
instagram
mediband
#ms #multiplesclerosis #baclofen #mediband #medicalid #medical available at www.mediband.com
multiplesclerosis - mediband - ms - medicalid - medical - baclofen -
multiple_sclerosis_support - dr_sn1vel - noremorse - gouthro -
instagram
wilabong
Pop pills and smoke pot till your brain rots, purple haze and acid rain drops, spiked the punch at the party and drank pop #medicated #pharma #baclofen #laxatives
laxatives - medicated - baclofen - pharma -
michael.kehl : forget the grinder. pepper mill.
nirvana628 : Hey I like that parameters lighter! I just so happen to know the drummer of that band if you ever wanna meet him! πŸ˜‰πŸ˜‚πŸ˜œπŸ€“
wilabong : @nirvana628 oh really?? I heard they are playing a show in March, I think I'm gonna be there
nirvana628 : I hope I can be there too 😊
alexisjlewis - irieesamm - thatandygirl - lisa.lampis -
instagram
jennyslifewithspoons
Had my infusion today, it went well. We are going to do the baclofen pump trial in March sometime and if it helps then schedule surgery. The pump has a catheter that is placed into your spinal fluid and a pump that is implanted into abdomen that is programmed to dispurse the baclofen. They refill the pump by injecting meds into the port of the pump.
jennyslifewithspoons : Thank you. πŸ’œ @chicky_2209 @offseids
jennyslifewithspoons : Glad to hear it works well for you. We are hoping the pump is the solution to controlinv my dystonia. @tmullen93 @jennyslifewithspoons
tmullen93 : It has helped tremendously with mine! Pray it helps you just as much!!
hollywellnessjourney : Hugs
hollywellnessjourney - lelandandlyme - offseids - cassandra_bencomo -
instagram
bracesandjaws
Life with #braces #orthodontics #tmd #maloclusion #crossbite #tmjd #tmjdandbraces #lefort1 #ehlersdanlossyndrome #myofascialpainsyndrome #trapped #spoonies #spasms #baclofen
orthodontics - spasms - maloclusion - trapped - myofascialpainsyndrome - tmjd - tmjdandbraces - lefort1 - crossbite - tmd - spoonies - ehlersdanlossyndrome - baclofen - braces -
spanjolkka : Hate rubber bands. 😀😠
sanja_sanjica1 : πŸ˜₯😷
hedveidi - bree_ca - themikeleblanc - keatingdentalarts -
instagram
bracesandjaws
When your left #scapula doesn't care how it's suppose to move! #scapuladyskinesia #nerveproblems #baclofen #eds #why #diagnostic #physicaltherapy #cranialnerves #disability #invisibleillness #sickscapula #chronicpain #hypermobility #thoracicspine #shoulderblade #pain #tmd #physio #elevation
chronicpain - hypermobility - pain - physicaltherapy - thoracicspine - scapuladyskinesia - diagnostic - eds - physio - nerveproblems - elevation - why - invisibleillness - disability - tmd - sickscapula - scapula - shoulderblade - baclofen - cranialnerves -
paulinewithbraces - amiekdockers - garykatzcounseling - disabilitysupportprogram -
instagram
wannachunkems
#TFW you misheard your appointment date and you still got there early AF thinking it was today but you have to come back on Thursday😩 πŸ‘ŽπŸ‘Ž#ClinicalTrial #GuineaPig #Baclofen #WhenBeingPunctualGoesWrong #MultipleSclerosis #ManUnited #Doyers #HashtagsAreFun
multiplesclerosis - clinicaltrial - manunited - hashtagsarefun - doyers - guineapig - tfw - baclofen - whenbeingpunctualgoeswrong -
yolasports : πŸ‘ πŸ‘ πŸ‘
thatdude_az - 420_dreams - mrstephenhowson - tommytommetom -
instagram
coramiaofficial
I'm on the #medication trifecta today. Day one of #sharkweek means #tramadol #vicodin and #baclofen for this #sickgirl. #spoonie #prettysick #excruciatingpain #numb #newlipstick #mauve #icriedmyeyelineroff #comecuddleme
newlipstick - medication - sharkweek - spoonie - comecuddleme - prettysick - mauve - excruciatingpain - tramadol - sickgirl - vicodin - numb - baclofen - icriedmyeyelineroff -
rougewench - k_rose_ - askthebiggirl - displayingmydisaffection -
instagram
eddewildt
Pssst, pillen kopen? #paracetamol #tramadol #naproxen #baclofen
paracetamol - baclofen - naproxen - tramadol -
e.a_l : Nou dat is een beste stoei partij geweest dan.. En wat bijzonder dat je naast tramadol en naproxen ook nog baclofen krijgt.
e.a_l : Ik hoop dat je snel weer in topconditie bent. Als het maar wel voor Hemelvaart is he πŸ˜„
eddewildt : @elskeleegwater beetje dealen met collega πŸ˜‰
bakkerdion : Is goed..Tramadol, lekker...
mydankslitasf - timmerjos -
instagram
thefairiegirl
Late night salad...I was so tired I fell asleep at 4pm and slept through dinner. I got up at 2am feeling pretty hungry and with spasms so I decided on salad and Hershey's kisses and Baclofen for dessert. Now for some ginger tea! #salad #spinach #organic #carrots #broccoli #latenight #treats #broccolislaw #asiago #romano #homemadedressing #garlic #teagirl #spoonie #Spasms #baclofen #spasticity #rigidity #chocolate #dinner #wideawake #gingertea #springmix #foodies #foodpics #foodie #tealover
gingertea - foodie - spoonie - springmix - carrots - romano - latenight - broccolislaw - teagirl - garlic - spasticity - chocolate - broccoli - rigidity - homemadedressing - asiago - organic - treats - salad - spinach - tealover - foodies - foodpics - dinner - wideawake - spasms - baclofen -
newsugarshop : wow
sundaeswithpotato : Awesome
celebrate_your_divinity - kolesnikanna_ - shandaya.davis - kivilsezerli -
instagram
tracey_8413
Supper #zomorph #dihydrocodeine #diazpam #baclofen #pregabalin & after's will be #oramorph #oralmorph #backpain #backproblems #toomuchpain
toomuchpain - diazpam - oralmorph - backproblems - dihydrocodeine - zomorph - pregabalin - baclofen - backpain - oramorph -
swlaurenxo : Ouch. Hope you're ok 😘 x
tracey_8413 : Thanks @swlaurenxo just in agony xx
sara_mrsb : Aww bless @t_a_edwardssw it's not nice having to take tons of medications ☺️ hope your ok πŸ’
xnearly_therex : Oh dear....hope u get well soon x
kw20sworld - rebeccar_sw - swlaurenxo - samanthab2014_sw -
instagram
tracey_8413
#oramorph #baclofen #buprenorphine #zomorph #painmeds #backproblems 😫😫😭 #controlleddrugs #morphine #backpain
morphine - baclofen - controlleddrugs - backpain - backproblems - zomorph - buprenorphine - painmeds - oramorph -
blg5693sw - sw.mrsweir - kw20sworld - thebodypillow -
instagram
tracey_8413
#zomorph #buprenorphine #dihydrocodeine #diazpam #baclofen #loadsofpainkillers #backproblems πŸ’ŠπŸ’ŠπŸ’ŠπŸ’ŠπŸ˜žπŸ˜žπŸ˜ž
backproblems - loadsofpainkillers - dihydrocodeine - diazpam - zomorph - baclofen - buprenorphine -
xnearly_therex : U must be permanently litter ly comatosed with all those meds....strong stuff....but if it helps the pain it's all good.x
xnearly_therex : Poor soul x
tracey_8413 : I was the first few days easing up on them now tho or trying to @xnearly_therex xx
xnearly_therex : Aw hope ur over the worst of it soon babe xxx
longy_2004 - mssunflower_sw - swessexemma - mommabearonamission -
instagram
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